Yenni

Thank you both!

Can I find the Kirkman brand in a store?

I have been trying to find Vitamins. The ones I am eating has soy in them...so now I know why stomach got upset again and again.

Anyways, I have been trying to look online, in my local grocery store and I did a search here but came up with tons of threads..

So I am wondering if anyone knows of any casein, gluten and soy free Vitamins?

I am taking Calcium tablets that are safe but I was thinking I should eat a multi vitamin/mineral one too.

Jenny, you can get sick from someone with wheaty hands touching your keyboard. It has happened to me several times. The computer repair guy was here & yep then I was sitting at the computer eating a snack & ZAP...

Then there was the time I took my scrapping supplies to a weekend crop that I was teaching & the only thing they ate all weekend was wheat & then touching all my stuff. I had to come home & wash everything. I will never do that again...

I think I believe you. Yesterday I had nasty heart burn (from probably being glutened from the keyboard/mouse the evening before) and today my body aches. Especially my back. Have a head ache too.

My husband is now instructed not to eat by the computer.

akJenny,

Your dog's markings are very similar to my dog. What breed is your dog.

She is a German Shephard/Labrador retriver mix. A "Germador Shephiver".

2,5 years old now. She is a "forever puppy" though.

Just a light note to this.

When I went gluten-free, I cc'd myself a couple times with pans, but never anything else. I was thinking I was just lucky but reading the note on the silverware reminded me....

One night, shortly before I went gluten-free, I was up in the middle of the night and went into the kitchen to get a drink of water. When I turned on the light there was a VERY well fed mouse sitting on my sink looking at me. After screaming for a couple minutes I started chasing him around the kitchen trying to catch him in a bowl. All I was able to do was chase him into my silverware drawer, and then out into the heating vents.

Needless to say, the next day I took apart my kitchen and scrubbed everything I had...

Now I'm thinking the mouse did me a favor.

Okay here is the reply:

Thank you for contacting us. We appreciate hearing from you.

Hormel Smoked Pork Chops are gluten free.

We hope you will continue to use the many Hormel Foods products

available in your area.

Gina

Consumer Response Specialist

Ref # 1389546

They have like 40% salt (daily amount) in them, just thought I'd mention that.

I don't need an article to tell me a crumb will or won't make me sick...I get sick on tiny, tiny amounts. So no amount of "carefulness" is too much!!!!! You are your only (and best) advocate for your health. You must take care of yourself. Honestly, who cares what other people think when you are in bed or in the bathroom, sick as a dog, for days? Its hard to get used to...but once you do....you get over it fast!!!!! (speaking from experience).

But, since I do like articles....here's another one: https://www.celiac.com/st_prod.html?p_prodi...-52106382872.60

And, it was a relatively small sample, so its not to say that smaller amounts don't cause damage. Plus, smaller amounts *might* not cause as much damage, but still may make you sick (just a thought of mine).

Hope this helps.

1/48th of a slice of bread... Thanks for the link! This all is making me feeling better about what I am doing.

You are right in that I shouldn't care. Some times it just gets "lonely on the paranoid side of this" if you know what I mean. I think I needed to read all of this too to feel I am doing the right thing.

I have been using these products: Open Original Shared Link

I LOVE them. Great little company it seems. $3.99 flat rate shipping no matter how much you get.

Jenny, get your sister in law the book "Dangerous Grains" it is a paperback about $11.00 on amazon .com. I have learned that all you need to do it hand them the book - if they read it, you are home free...

If she is willing to read then maybe her closed mind is not totally lost

I am so darn sensitive you could just call me the gluten canary, I can go out to eat & be the taste tester. If I do not have a problem with something, no one will

re pots & pans, one set of something like stainless steel is mostly okay. definitely not teflon, I just do not like that stuff anyway, never had any non stick pans in the house. BUT, for baking pans, ie cookie sheets, cake pans, etc, that have had wheat cooked in them, I would toss them. The exception would be glass pie pans that can be washed clean and any stainless steel pans that are spotless. But if some of your cake pans and cookie sheets looked like mine - they were hopeless & got tossed.

I have a gluten-free house & if I were young enough to date they would have to be gluten-free, In years past it was no smoking, now that is standard !!!!

Just a note for people in a house not completely gluten-free, please do not use flour in your house, the stuff poofs up & gets on everything, plus you can breathe it in & it will really make you sick.

I have that book. Haven't read it all yet. I need to do that. Maybe that book will be my sister in laws christmas gift. She would get mad I think.

I am starting to think I am very sensetive. I had the nastiest heart burn today, my stomach hurts and is all swell up. My husband ate donuts by the computer yesterday. I used it after him and then I am pretty sure I bit a nail..

I dunno. I am very confused by all of this. Grr..

Thanks all for your input. This place is a life saver.

Thanks for the link and replies.

I didn't see it on that page so I sent off a message via their Costumer Service.

I'll post their answer here when I get it.

I have been eating this Smoked Pork Chop. Now I am wondering if it is safe.

These are the ingredients:

Cured with water, salt, potassium Lactate, Dextrose, Sodium Phosphates, Sodium Diacetate, Sodium Erythorbate, Sodium Nitrite

Maybe the fact that it is smoked can be bad too?

It is darn salty too.

Now I feel stupid that I ate it.

Something else I just realized.. I share tooth past with my husband who eats gluten. Maybe I should get my own.

This never ends.. So many things to think of.

I am wondering if anyone know of any Gluten, Casein and Soy free Cough Drops?

Sounds like your doctor is like the ones I have met. After spending some time reading about gluten intolerance I felt I knew more than they did. Some of them told me the weirdest things.

My blood test came out negative twice (10 years apart). Now I got positive on Milk and gluten from EnteroLab.

In Sweden (where I am from) it is illigal to keep the test results from the patients, like in the US.

To tell you the truth my doctor do not want to give me my latest test results either. I was curious what they were (even if they were negative- I had also been gluten free for 3 weeks when they were taken and the doctor told me it didn't matter) but they were not given to me. I got this very vague "they were negative anyways.." kinda mumble. They also didn't want to have anything to do with EnteroLab. And even if I felt better after stopping with gluten I was still told it couldn't be.

I am not fond of doctors after many years of this stuff...

I was sick every day for over a week after we got back from vacation a couple weeks ago. My in-laws stayed with our kids who are also gluten-free. They came over a couple days before to make sure they understood everything. Knew all about cross-contamination. Asked intelligent questions. No eye-rolling or sarcasm. Absolutely wonderful and willing to do whatever I said was necessary.

But I forgot to tell my MIL about contamination from personal care products like hand lotion. So once I figured out what I was getting glutened from, it was basically everything she would have had to touch like grabbing some gluten-free chicken nuggets out of a bag, cookies, crackers, etc. The last thing I figured out I was getting glutened from was the silverware (for crying out loud...). Once I re-cleaned the silverware and the drawer, I haven't been sick since.

It wasn't too bad the first day, but I could tell something wasn't right, then it got worse every day until I just wanted to cry. I'm still not feeling quite right (tired, unmotivated, emotional), but in my experience I should be past that in a few more days, or a week at most.

So cross-contamination will get me every time. And I don't even technically have celiac. I "just" have gluten intolerance.

I was sure when I started that I would just have to "avoid" gluten, but not be constantly worried about it like some of those poor super-sensitive people on the message board. Little did I know...

Nancy

Reading you signature my story is pretty similar to yours. I feel personality changed almost. The only thing I never seemed to have a problem with is sleeping. Even had mononucleosis when I was 20.

I have thought of the silverware drawer. There are crums in it. I usually check the silverware I use but do not always wash them off.

Today I have bad heart burn. Do not know it I got CCed or if it is just one of those days. I am super tired. Like I am most of the time.

I have been eating Roitussine Cough Drops. Doesn't look like it has any soy, casein or gluten in them..but I wonder.

Sigh, so tired of being sick.

Can you eat Naturel Yoghurt? It has those bacterias in them and helpes with candida infections.

There are pills to eat too.

I actually have gotten much less of this problem since I stopped with gluten. I have had problems all my adult life.

Also not using soap down there helpes, not taking baths, sleeping without under wear, avoiding sweets, not spray water down there a lot.

I am glad more people are aware of the grape issue with dogs. They can develop kidney failure because of grapes. Onions affect their red blood cells, and chocolate acts like poison - vomiting, diarrhea and seizures.

Good snack options would be bits of cheese, meatballs - you can make tiny meatballs and store them in the freezer or cook up the ground beef and keep it "chunky" - rinse with boiling water to get more grease off and store it in the freezer in a baggie. If someone wants to give food as treats - in addition to the veggies already mentioned - then its an option. Some dogs like potato chunks as well (cooked).

A family eating dilemma arose today - Thanksgiving - I'm Canadian, eh

I cooked the turkey, gluten-free stuffing and gravy and brought to SIL house who made sure to have mashed potatoes made with butter from a new container (she is awesome at knowing about cc). Steamed veges - it was looking good. Grandma arrived with wheat buns and another SIL brings in all the ingredients for a wild rice salad - it looked yummy, I checked everything she showed me - the dressing, the wild rice packet. I thought - this is great cause she doesnt know that much...and its gluten-free...so we serve dinner - I move the buns away from kids then someone asks SIL about salad - she rhymes off list of ingreds then say - I mix soy sauce in the dressing. I stop dd who is about to have some - and ask - Why didnt you mention the soy sauce?.... most of them have wheat. She looks at me - but its SOY sauce! I got the bottle out and showed her the second ingred. - wheat - She now appreciates why I need to know EVERYTHING that goes into a dish.

Rest of dinner went well.....

Some good dog treats tips there. Thanks.

I am glad your family is at least interested in trying to work with you. Mine has no interest what so ever. They keep on with what they always did and let me make my own food. So I never eat what they eat. I am sure this will always be the case for the rest of my life. I'll always have to bring my own dinner.

My husband is different. He is planning on eating what I eat once we get our own place. And yesterday he said he'll tell what ever family that brings gluten to our home " leave the bred outside the door, you can pick it up when you leave".

I guess I have a question first...did you buy a set of dedicated gluten-free pots and pans?

A cutting board I can see being more like a toaster in that it needs to be completely separated, but I think if you throoughly wash your pots and pans you should be fine. My wife and daughter are both celiacs. My daughter is EXTREMELY sensitive and had an Iga well over 100 while my wife had an Iga of 9 with no symptoms whatsoever so I see both ends of the spectrum. We have a dedicated toaster, sifter and colander but we use the same pots, pans (no cast iron though) and utensils and have not had a problem. I don't mean we use them for both gluten-free and regular food at the same time, just that one day we boil regular spaghetti in a pot, then after we wash it we use it for gluten-free pasta the next day.

While you can't be too carefull with cross contamination, you probably don't need to keep completely separate cookware if it's a problem, just be sure to wash them thoroughly. If you have plenty of space to store 2 sets of pots and pans then by all means do it, we just don't have the space. JMHO

You may not have even meant that is what you are doing though....

I was just going to get a new Teflon pan and a new cutting board but ended up with new everything (not a new toaster, I just don't use any at all for now).

For now we live with with my husband's family (we have moved back and forth between Sweden and Alaska and are trying to get enough money to build a little house here) and that is what making things much harder for me. There is always crums in the kitchen, the microwave always have a sticky handle, the fridge is dirty... Just a lot of gluten around. On top of things my husbands little nephews live here during the weeks and other grandchildren are here too (getting "daycared") so the table is often sticky with stuff... Just a nightmare for me. So I ended up getting my own stuff. I keep them upstairs where we live. My food is up there too, we have our own fridge.

Well, so I agree that I could have shared, but considering everything else (and the fact that the dishes doesn't always seem totally clean) I ended up feeling safer this way.

Once we move out of here, hopefully this spring, things will be different. It will be much easier.

If you can't find store-bought gluten-free dog treats, I'm sure that your dog would be perfectly happy to get little bits of apple (with or without peanut butter), baby carrots, banana, virtually any fruit or veggie. (NO grapes, onions or macadamia nuts). That's what my dogs get. Or if she's really good, little bits of hotdog.

Thanks for the suggestions. Funny but my dog absolutely HATES Bananas. It is almost funny. I eat alot of them and I have offered her some and she almost gags when I offer.

The problem isn't my dog, its my father in law. Hard to teach an old dog to sit.

I need to get something that he can give her instead of the treats he always brings home from the coffee place. Just telling him he can't will not help. I have to actually set him up with stuff. Daisy (my dog) doesn't seem super fond of carrots either, otherwise a bag of those would have been good.

I'll have to keep on figuring this out.

Prinsessa, We have no Trader Joe's up here either so the Chicken treats are out too..Thanks though.

I seem to have more problems with my family than I have with being a Celiac... Yesterday people came over for dinner and they all had apple/nut pie with ice creme. It was nice to watch them all eat. ;o) (Luckely I wasn't in the mood for pie.)

Thank you all!! These replies are just what I needed to read. I am gonna have my husband take a look at this too. He is very supportive as is but I think he is trying to make sence out of things too. The problem is his parents and his siblings with families. Especially his sister. She has read this book ("You are what you eat") and now she is a very stubborn expert. Like she told me a couple of weeks ago that food intolerances are just the body getting too much of that type of food and if you just stopp for a while it will go away and you can eat it again. I was trying to tell her that was wrong when it comes to gluten, but she got mad instead. (sigh)

(And my dog loves the new dog food better than the old. She has even gained some weight from it. So the problem is that my father in law gives her gluten containing snacks every day. I have been looking for a gluten free snack for him to give her instead but had no luck in town so far.)

gfp, thanks for clarifying about that 1/8 wheat thin cracker thing for me. It was actually you who linked that article for me in another thread. I read it again last night and my mind got stuck with/at that 1/8 thing.

I seem to be pretty sensetive when it comes to cross contamination. I do not vomit but I feel like I have gotten the flu and it takes a long time for me to get back on track after.

I am pretty sure I have been CC from both using the Teflon pan, using the toaster and when BBQ-ing. Among other things.

Okay, so then what this means is that ANY time I eat either gluten or casein it will create an autoimmune reaction in my body? And this is why I can never, ever eat these things again, right?

Clearly, I am still in some sort of rationalization stage!!

-Courtney

I am very new at this too and just got my results the other week. My Gluten was 12 and my casein was 11. On top of that my soy was 9 but I am pretty sure I have a problem with soy still, so I don't eat that either.

Even if my results were low there is no doubt in my mind that I am not intolerant to these things because I have been very sick for almost 5 years now and I noticed changes right away after I stopped.

So yes, I would have to say that every time you eat those things there will be an autoimmune reaction.

I am pretty sure I am in the same stage as you. I am trying to make sence of all of this.

I want to join the support group up here. I will bring my husband there.

It isn't mainly my husband that is the "trouble maker" for me. I know that with some time his analytical brain will accept things.

Thank you all for your replies. Means a lot to me.

I have a question about this atricle:

Open Original Shared Link

It claimes a crum will not make you sick, but that it takeas about 1/8th of a wheat thin cracker to do damage.

(See the text in the blue field.)

That sounds like a lot to me.

I have gotten the impression there are two types of people with Gluten Intolerance. The first is very laid back and shares everything in the kitchen (utensiles). Eat out and stuff. Doesn't seem to have shanged their ways as much because of the disease. Seems to take risks. I read on a nother board about people BBQing and the Gluten intolerant person grilled their meat on the BBQ with the non/gluten people. There were no talk about checking the Briquets for wheat or anything and he just put his meat on a piece of foil on the BBQ.

The other is careful like me (and I have gotten the impression most are careful like this on this board, but I am new here).

My mind is wondering what type is right..

I am just trying to make sence of all of this. I am sorry if I am being difficult.

Thank you!!

This is from EnteroLabs page:

Our antibody tests range numerically from a positive value of 10 to as high as 350 Units. The average positive value is about 45 Units. The "units" are based on the amount of antibody detected in the assay which is reflected by more color developing as the result of a color-generating chemical reaction. Thus, the more antibody present, the higher the units of positivity. However, the amount of antibody present is not a measure of clinical severity, but rather, the amount of antibody being produced by the plasma cells in the intestine in response to gluten at that site. A positive value of any degree means your immune system is reacting to dietary gluten in the way the immune system reacts to an infection. With an infection, this immune reaction ultimately kills and clears the infectious organism. But with gluten, the reaction continues as long as it is eaten. Thus, the only way to halt this immune reaction is to remove all gluten from the diet. This is true whether your positive test is 10 units, 350 units, or anything in between.

Are the numeric values of antigliadin antibody a measure of severity?

As mentioned above, the numeric value of antibody is not necessarily a measure of severity of how your body is reacting to gluten, or the resultant damage of the reaction. This is because the main perpetrator of the immune response to gluten is not antibody but T lymphocytes (T cells) producing tissue-damaging chemicals called cytokines and chemokines. How much antibody is produced at the stimulus of T cells differs in different people. Furthermore, some people simply do not or cannot make alot of intestinal IgA antibody even though gluten may be stimulating a severe T cell-mediated immune response. Unlike antibody levels, the numeric value of malabsorption test results are an indicator of severity of intestinal damage (see below).

So as far as I understand it it doesn't matter if your result is low or high. You are gluten intolerant no matter what as long as it is positive.

I heard someone mentioning that the BBQ Briquettes can have gluten in them and that I need to get "organic" ones instead.

I am not sure if it is true and couldn't find any info on it so far. Anyone know if it is true?

(sorry I spelled Briquettes wrong, english is my second language )

I feel hungry very often too. I don't go more than 2,5 hours without eating. It is crazy.