Yenni

Can you have any peanut butters, or maybe make your own? My mother used to make me stuffed monkeys. They're dates stuffed with peanut butter then rolled in powdered sugar. They're very sweet, but tasty.

I also like dried fruit for a sweet, candy-like snack. You could even dry your own fruit if you have many sensitivities. Plus, dried fruit keeps for a while and it's oh so good. Better for you than candy too.

Sometimes when I'm having a sweet craving I eat some applesauce and that sometimes does the trick.

I know, my ideas are all fruit related. Fruit is such a good, healthy snack though. You could try strawberries dipped in melted chocolate too if you can find safe chocolate. That's always a treat.

Can't do peanuts (legumes) and I do like fruits, but I am allergic to most of them. Strawberries and apples are both out for me. I eat lots of bananas and melons (different kinds) and I also love raspberries. I guess I could try dipping them in chocolate (if I can finally find that soy free one). Dipping banana would be good too.

I am all for healthy snacks, but sometimes it would be great to just have a proper "sweet tooth snack"... But I doubt that will really happen.

Thank you both!

I food process together dates and walnuts. If you can't have walnuts try dark chocolate and coconut flakes with the dates. I roll them into balls and keep 'em in the frig.

Can't do the walnuts. I'll try dates, chocolate (I have heard of a soy free one but haven't been able to find it yet) and coconut flakes.

Thanks. =)

Jenny, if you're still in Alaska you can get an IUD without having been pregnant. Google Mirena, it really has helped a lot of women.

Not sure a IUD would help me. I am not doing all of this because I don't want to get pregnant, it's because of hormonal problems. My eggs don

I have used this line of products since last September. Love them!

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Pharma grade lactose will not have casein in it, so if you are both casein and lactose intolerant, you will likely find that taking lactase (over the counter enzyme that replaces what's missing in lactose intolerant people) will resolve the issue. Lactose intolerance does not cause damage like gluten intolerance can; they are of a totally different nature.

Of course, having found a lactose free option is fabulous as well! No reason to switch back if it works for you.

I had to go off the lactose free ones too because of Migraines with Aura. If you have them in your medical history you aren't supposed to eat BCP (might work with POP). My migraines got much worse on top of things.

I did some reaserch online about Lactose Monohydrate. When they make it they remove the Casein but usually traces are left in it and the Swedish Celiac organization (I am swedish) recommends that people that are sensitive stay away from it. I am very sensitive and got very strong symtoms (like when I eat Casein or gluten) when I ate the pills with LM in it. As soon as I was given BCP without LM the symptoms got better and disappered after about a week (took time to heal).

I also read they can rarely guarantee that all the casein is gone.

"Purified lactose, even of pharmaceutical grades, still contains traces of proteinaceous matter."

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I have read this same thing on several different pages.

Also it seems doctors have different views on if Casein damages like gluten does. Dr Fine claimes it does. I dunno. All I know is my stomach hurt really bad, felt like it got inflammed, I got nasty heart burn, nausea and my stomach hated everything I ate. Just like with gluten.

I have a lot of allergies (se sig. line) along with legume, casein and gluten intolerance and I haven't been able to find any snacks to eat besides Enjoy Life's Very Berry Bar and granola. My husband is feeling all the boxes of Very Berry bars I go though in a week is heavy on our economy so I am trying to find something else.

I do eat fruits and veggies but I am looking for a snack to feed my sweet tooth. Something to eat when everyone else is eating their candy, chips, ice cr

Well, I had to go off the BCP's. The midwife never mentioned or asked anything about migraines when she gave me the pills and I had no idea that if you have migraines with Aura one isn't supposed to be on BCP's at all. At least not the combination ones with estrogen. I ended up getting much more migraines and had 4 (!!) last weekend. My husband read about Aura migraines and BCP online and everywhere it said that if you have aura or any neurological symptoms with your migraine you shouldn't be on them at all and if you are stop at once. So I stopped. No attacks so far.

I am going back to the OBGYN office on friday. See the doctor this time. I have no idea how they are gonna solve this problem now. I might be able to eat the POP pills (Progesterone only pills). THing is most of them seem to have Lactose Monohydrate in them...so I dunno.

I am disapointed with the midwife. First she made me sick as a dog for a week not listening to that I can't have dairy (my pills had Lactose monohydrate in them) and then I got bunch of migraine attacks in a short time. Is it too much to ask that I shouln't need to know everything about a medication when they give it to me? I mean I feel I have to be a doctor to protect myself. It is such and easy thing for them to ask a few questions about medical history before they give BCP.

Not happy. At least I have learnt that I can't trust doctors not to make me sick with pills anymore. Not many doctors I trust at all these days.

Just needed to vent.

I have tried Apple Cider Vinager and it works some, but not enough (we have really hard water!). I also have a problem with the smell. For some reason it stays in my hair several days even if I shampoo. Very strange.

Thanks for the suggestion though.

Thanks for posting about this! I am defenitely going to order it. A very good price for it too. Only $20.00.

I bought the cook book on that same page and it is very good. Has some good info on labeling and stuff.

I haven't been able to find a clarifying shampoo that is gluten and legume free. We have hard water so I need to use a clarifying shampoo like every other week or at least once a month to remove minerals otherwise my hair feels hard and acts weird.

Does anyone know of one? I have looked for a long time for one but haven't been able to find any.

Thanks for any reply!

aka Jenny:

I have no good answer for you but when I went on BC I was taking it in the morning and felt sooooooo sick...My RN friend suggested I take it in the evening just before going to sleep. It worked for me! I made the adjustment to a new drug in my system without going through the pain. This may not help you in least as you may have already been taking them at night. Ps. I take all my other night-time drugs earlier in the evening to let my stomach settle before bed or I have reflux

I hate managing meds "sigh"

I have been taking mine at night and with food. I felt so sick, but I am pretty sure it is from the Lactose Monohydate in them. I took the Dairy free one today during the middle of the day and felt nothing. I have to take two today because I took none yesterday so I am taking the other one tonight. I am gonna keep taking them at night and with food like that.

Thanks though.

Yeah, I know what you mean about managing meds. I take Protonix too and have to take it twice a day 30 min before I eat. But things could be worse. Before I started with these dairy containing BCP I had no heartburn at all and had started to take only one instead of two. Now my stomach is hating me so I have some healing to do here and then hopefully I will get back in better shape again.

I am also very happy that now I have stopped bleeding after like 3 weeks of constant bleeding.

It has been crazy to get to the proper mediacation. We called so many places and nobody wanted to help or knew anything.

Today I finally got a hold of someone at the OBG office that could prescribe the Demulen for me and when I go to the pharmacy they give me the generic one instead (and that isn't Lactose Mono... free). My record there at the pharmacy says I am intolerant to Gluten, Diary and Soy and I guess they didn't bother to check. I askes to talk to the pharmacist and he told me they have no way of checking the medication for inactive ingredients (that must have been a lie or he was lazy????).

I ended up talking them into giving me the non-generic one (which is Demulen, the generic one is Zovia). I took it now and my stomach seems to be less unhappy about it, so that is good. Otherwise my stomach is very upset with me after 4 days of Dairy. Crazy that I react on such small amounts.

It is scary how they do not check, clamin they can't check or don't care.. I dunno. I think it is very bad anyways.

Now I need to get some more Caraphate to get my stomach back on track again too. But that isn't a biggy.

Well, I just wanted to let anyone know who might be curious how it worked out.

Here is the link to the ingredients to the Demulen if anyone is interested. Only possibly bad thing in the active pills is corn, the non-active ones have Lactose Monohydrate as I mentioned in my earlier post, so I am skipping them.

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I live in a household where gluten stuff is almost always on the kitchen Island to tempt me. It is rare that there isn't cookies, bread or cake there. It is very difficult to deal with, but I get really sick when I eat the stuff that I have never eaten any. I do feel people should show some more understanding though, remove it, take it out of sight, preferably have a gluten free home.

So I feel for you and know how hard it is.

It looks like Demulen is gluten, soy and casein/lactose free. I thought I'd post it if anyone else ever end up with this problem. It does contain corn.

BUT, the placebo contains lactose, but has no active ingredients so could just get tossed. So the active ingredient pills are free.

That was fun!

Sofisticat

Escape Artist

New Wave Puritan

Love Bug

Not sure whet it is actually saying about me though.. I don't agree on the sofisticat.

I am not going on the pills for the fibroid really. It is because my body does create the eggs, but isn't letting go of them, so I have a bunch collected in there. She said it is the estrogen that is low aparently.

I hear so many things from everywhere on what to do so I am all confused on what to do. I do feel I should get on the pill for a while to hopefully get back on track once I stopp with them. Hopefully it will not be for long.

I have tried vitamins, minerals and Omega to help with the cramps, nothing ever helped.

I am intolerant to all legumes so I am not eating Soy at all.

As far as I know you can't use a IUD if you haven't been pregnant already? At least that is the policy in Sweden (where I am from). They only put it in on women that has carried a child. Those things actually freak me out some. I know of 2 peopel that bled so much on those things that they had to go to the ER and one is now pregnant even if she used one.

I am not on the pill to not get pregnant. I am not fond of eating "unnatural" stuff eitrher, but I have to eat them for medical reasons. I just started the pill last week and have not been on them for 10 years before that so I haven't been on them really.

I am beeding and spotting because of a lack of hormon that doesn't make my body let go of the eggs, so they collect in there and also I have gotten a painful fibroid. My period has been absolutely crazy this year but has been bad for the last 3. I need some help to fix this, so I need to go on the hormones. I have had an ultrasound and been to the doctor several times so they know what is happening.

I am gonna call the pharmacy today again and hopefully they will be able to help me find a gluten-free, CF and SF pill. I took the pill yesterday anyways, because I didn't want my system to get even more messed up, but I know it wasn't good to take it because of the lactose in them. I feel terrible. Hopefully I'll get a new pill today. Keep your fingers crossed.

WE did start going through the pills on the gluten-free list, but surpricingly many of them didn't have the inactive ingredients listed. I think we might have found one. It is surpricing how many they use that Lactose mono...in them. It is supposed to be cleaned of the casein, but a Swedish celiac site warned that it a lot of the time has some traces left of the casein and sensitive individuals was recommended to avoid it. I seem to be very sensitive.

Thanks for your answers!

Well, I managed to find a Swedish Celiac page and there it said it is supposed to be "cleaned" from the casein, but it is very common that it has traces of casein in it, so if one is sensitive it should be avoided. It can depend on how well it was "cleaned".

Under oral contraceptives on that list, it lists Yasmin as gluten free....

Yes, I saw that, but my problem here is that I am casein intolerant and it contains lactose.

I have two lists with gluten free drugs but I can't find out if they also are free of lactose and soy. I heard that soy is pretty uncommon but I have seen several BCP with lactose.

Nobody...? I know it was a long shot, but I wanted to try.

We have called a bunch of places; pharmacies, nurses and nobody knows anything about Celiac or anything about safe BCP's. The reason I really wanted it tonight is that I have had a veeeeeery long period now (doctors giving BCPs, then asking me to get off them, then on them again.)...so I wanted to NOT get a period for the third time in 3 weeks...

I can't find anything online about this that tells me is it has casein in it or free of it. Does anyone know?

I had an ultrasound done this week. I have a fibroid in the uterus wall (hence the painful cramps) and also lots of egg cysts that my hormones does not make let go of the ovary (hence the spotting). I guess the lack of the proper amount of hormones also makes the lining not "bleed out" properly so I have gotten more period amount over time because of that.

They put me on birth control pills. I told them I couldn't have gluten, casein or soy and I got Yasmin BCP. I have felt nasty in my stomach on the first two that I took. Recognized the symptoms from before I got better from the Celiac so I checked this evening and they have Lactose monohydrate NF in them. I asume that is dairy. I am so mad!!!!!!!

I have had a period for 3 weeks now because of stinking doctors telling me to eat BCP's then go off them and now give me one that makes me sick. I don't wanna take one tonight...I just don't know what to do.

(I was sick with the flu and sinus infection about 3 weeks ago and my doctor checked my blood for a bunch of stuff and everything was normal.)

I was put on birth control pills the other day. I have taken two and felt crap. I looked them up here and saw that they were Gluten free but I missed the fact that they have lactose in them. I have felt really bad on the two pills I took so I need to get new ones tonight!

Does anyone know of a gluten free, casein free and legume/soy free birth control pill?????

I need to go to one of the late night open doctors officec to get another kind (I am on Yasmin now).

I tried the St. Claires's Organics brand finally and I actually kinda liked it. I like some of their others stuff too. I guess I am just glad there is something I can eat when it comes to candy. Not too picky these days.

Jenny, I'll probably sound strange to you ... I have six kids! I was a business major in college and never dreamt in a million years I'd have this many because I thought I'd have a career, but it's a lot of fun. Our oldest is now in college!

Keep us posted on what the midwife says.

Nah, I don't think you are strange at all. We are all different. I like kids, as long as they aren't mine. (We might have kids one day.. Who knows. It might change when I feel well again. Next year..or 2..)

Update:

I had the ultrasound and went to see the midwife today. I have a fibroid in the wall of the uterus and also a bunch of eggs/cysts stuck in the ovaries. For some reasons my hormones aren't doing what they should and after the eggs are done they are not let go. So they stay there and also the lining of my uterus doesn't seem to get fully pushed out because of the lack of that hormone , this is why I have more amount of blood (I think she mentioned esterogen in there but not sure now). All this was not dangerous and not too uncommon. The fibroids can come and go I guess. Mine hurts a little actually.

I was given bith control pills. The proper kind this time. To let my own system rest for a while, take over and then hopefully it will start properly again when I get off them.

The fibrioid is also the reason I have bad cramps when I menstruate. The muscles needs to work more beacuse of it.

I am starting the pills today and I am going back in 6 weeks to see what has happened. They expect it to have cleared up by then and they wanna see what the fibroid is doing.

So I am relieved it isn't cancer or something nasty. She checked for infection too and that was all good.

I am glad I went. I can sleep at night again. Still have to do the pills, but I can handle that for a year or two.