mumseyh

Are you associated with the location in Hales Corners (near Milwaukee)?

It certainly sounds to me as if a gluten-free diet might be just what you need. I think that before diagnosis many of us were "searchers" who tried various different diets & supplements, always feeling that we weren't properly nourished but not knowing why. I was a vegetarian for many years too, & meanwhile ate more wheat than I care to think of now! What you & many others have discovered is that it is not enough to give up obvious forms of wheat. I did try that at one point, before I really understood what gluten was, but at the time I didn't even know about soy sauce, so I was still getting plenty of wheat, let alone gluten. And if you truly want to give the gluten-free diet a fair try, you have to look at cross contamination, cosmetics, & so on, to really eliminate any chance of gluten. Also many of us really must keep it up for several months to see results.

Nini's newbie kit is on her website & has lots of sneaky things to look out for:

Open Original Shared Link

Good luck! I have a feeling you've come to the right place.

Leah

Wow! Thanks for the website. It has great info. I am going gluten free within a week, and trying to learn all I can.

It may not have been pinned yet.

If it isn't pinned it goes to the back of the list under the main topic but shows up under the view new posts.

Thanks, now it is correct.

My topic appears on the right side of the screen but not under the main topic.

Thanks! I am reading up on going gluten free and looking forward to it. My husband thinks it is a great idea, and said he will be supportive. I was worried he might think it was a crazy whim, but he really respects the family doc for turning us on to the research. I have just lost 12 pounds on weight watchers and I asked if they have info about adapting to gluten free. The teacher suggested the core program which is mainly meat, fruit and veggies. It sounds like it should work. Thanks for the encouragement. Glad to hear your test went well, too.

Has anyone had experience with this company? My doc has recommended a Celia Gene test to determine if there is a family history. My blood work is positve and the biopsy is negative. My GI doc does not recognize gluten intolerance, but family doc is up on the latest research. I am thinking of just going gluten free and skipping this $480 test that isn't covered by insurance. Family history: My mother has an ilieostomy from severe ulcerative colitis. Also has skin form of lupus. My father died from complications after 5 surgeries in a week for a severe intestinal blockage. His autopsy stated undiagnosed diverticulitis and ruptured diverticulum. I have been treated for IBS since high school (over 30 years) with minimal results. I also have GERD and Barrett's Esophagus. My sister has some suspicious problems, as well - mainly ulcers in her mouth that nobody can clear up and yeast infections. Any insight would be appreciated.

So many of you are so knowledgeable, so I will explain my situation and I will appreciate any advice.

I have had IBS since high school (30+ years ago). Meds have never helped much. I also have been treated for GERD for about 4 years. Last week I was dxed with Barrett's Esopgagus, while having an EGD to check for Celiac. The biopsy was negative. My blood work showed the IgG was 26, and my primary doc said he thinks gluten intolerance might be my answer. The GI doc's attitude was that you either have celiac disease or you don't, and he doesn't believe you can just have a gluten allergy. His exact words were "if pickles made you sick, don't eat them. The same would be true for gluten." My primary doc has been on vacation, and I have not been able to connect with him. I am debating between doing the Enterolab test or just going gluten free. I have a lot of the related problems like anemia. Thanks for any advice.

Nancy

Versed is the conscious sedation medication, and it is wonderful. I wouldn't do it any other way. Have had it three times, and remember nothing. I was just tired the rest of the day, but that is no big deal.

I'm from Ortonville (between Flint & Pontiac). My son was dx'd in December '05; I've been gluten-free since Jan. and will probably challenge it next month.

My celiac son (and non-celiac daughter) will be spending a week at a camp near Traverse City. Hubby and I will probably camp nearby to be available if needed--it's such a great area for a getaway without kids!

I'm working with the camp's kitchen manager to see if there is anything he can safely eat. While they're very willing to help, it still seems like a big risk. We'll probably end up bringing most of his food for the week, but that seems like a lot to pack. It might be nice to be able to buy some of it while we're up there.

Does anybody know who carries gluten-free foods in the Traverse City area, or if there are any restaurants with gluten-free menus?

Carol

Hi, I'm originally from Allen Park. I taught school in Ortonville in 1977. Have been in Wisconsin for 20 years. I am waiting for biopsy results from skeptical GI doc. Have positive blood test results. Good luck with your son. It must be a lot for him to deal with.

I was diagnosed in June of 2K5 by my Arthritis DR.

He had been trying for a few months to figure out why I was not retaining calcium no matter how hi a dose he put me on. He finally did a blood test for a marker that indicated possible Sprue so he sent me to a Gastrinterologist in Milwaukee who did the upper scope and said my Vila were just NUBS. I went gluten-free as of 1 July 2K5. Within 3 months my calcium was normal. I still take 1500 mg a day. I went from 286# on 1 July 2K4 to 210# on 1 July 2K5. Since going gluten-free I have had to battle to keep the weight down. On 1 July 2K6 I was 228#.

I don't feel any better or worse since going gluten-free, but I guess my internal health is better so thats a plus.

I get most of my gluten-free stuff from Piggly Wiggly in Mayville, WI and at Outpost Foods in S Milwaukee (my son works there).

Mostly I just eat straight up foods. Any veggy, fruit raw, or carefully cooked. I read alot of labels. What I would love to find is a gluten-free wrap for burritos that is not just a plain corn tortia. They are ok but taste like a raw taco shell, which is what they are. They do not hold up if there is any juice in what you wrap with them.

I would be curious to know which GI doc you saw? I go tomorrow for a biopsy with Dr. Maurice Chung at St. Mary's. My regular doc seems to feel he is on to something, but Dr. Chung seems skeptical. I wonder if I should still have the enterolab test if I don't test positive tomorrow?

Any one know where I can get a GOOD wrap?

Leblumax:

I would be curious which GI doc you saw in Milwaukee? I am getting a biopsy from Dr. Chung at St. Mary's tomorrow. My primary doc seems convinced I will test positive for gluten allergy, but GI doc seems skeptical.

Hello to all you Wisconsinites...first of all I miss you all! I found out I had Celiac Disease by a doc in Oak Creek Wisconsin. She is awesome! She gave me so much information and we working a plan to make sure that I had no other medical issues....anyway, I am or I guess I should say was a full time Air Force Reservist at the 440th at Gen Mitchell IAP and because of the BRAC about a month ago I had been transferred to Peterson Air Force Base in Colorado Springs. I ended up having to leave Wisconsin, my home for 43 years with a newly diagnosed disease. I just wanted to mention that at the Gluten Free Trading Co they are very helpful....even the customers help each other and give each other hints. I got a wealth of information from a woman standing in line at the checkout with me. If you know where Howell Ave is go north until it turns into Chase. It's on the corner of Oklahoma and Chase......look closely, I drove by it a couple times before finding it. There is a Jewel Osco, I believe just to the west of it. I am currently trying to find some other celiacs here in Co Springs so that I can learn about knowledgable docs here. Take care of my home state!

Too bad you had to move away, but I can understand. We have lived in the MKE area for 20 years. My husband works at the airport. My doctor just told me I have a gluten allergy, but I don't know if I have Celiac Disease until futher tests. It is a blessing to have a doctor who is up on this info. I have been living with these problems for over 30 years. I am planning to go to the Gluten Free Trading Co this weekend. My doc also recommended Molly's Bakery in Pewaukee. I will not be starting the gluten-free diet until after the tests, but want to start learning. Good luck in finding help in CO. It is a beautiful state!