OrangesAndMelons
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by OrangesAndMelons
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Apologies for the fuzz-o-vision; this website seems to heavily compress images ?
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Oh marvellous… ? They're required by law to list possible allergens including cereals containing gluten but they list it as people with an allergy to wheat and it's all so stupid and confusing. Thanks for the info
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Hmm… Not suitable for people with wheat allergy? Does that mean I can eat it? Or not? I don't have wheat allergy, but that means it might or might not at some point have touched something that has something to do with wheat ? Am I gonna have to roast my own nuts?! ? Which I've done before, but isn't exactly quick'n'easy compared to grabbing a bag off t...
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If someone tells me roasted salted almonds have gluten in them I am gonna go SO MAD ?
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Thanks for all this! I generally avoid rice TBH; congee sounds like I might as well be drinking full-fat Coke ? That all sounds pretty expensive and labour-intensive… delicious though! (Except the konjac rice — presumably it's konjac you're talking about? I can't handle the diseased-fish taste that hangs around no matter how much you rinse it.) I...
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I had heard stuff about oats being an issue for a small number of coeliacs, but put that down in my head as something to worry about further down the line if symptoms didn't go away on a gluten-free diet. Not cutting them out right from the start ? Are you sure that's not just an American thing, or a naturopathic thing? Luckily, my current medication...
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I'm not so much "blah blah blah" as "argh argh argh" ? Pissed off, overwhelmed, a bit baffled, a bit denialy. Seeing the dietitian is just part of how the coeliac clinic at my local hospital does things, and TBH since it's a very well-known (in the UK, at least) research hospital and my consultant has done research on, among other coeliac-related things...
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? I can't cut out oats too! ? Yeah that's a very coeliacy histopathology report. I think with an off-the-scale tTG-IgA and positive EMA I can't really dispute the diagnosis. I know there are people on this board suffering with horrendous symptoms who would love to have unequivocal evidence like that, and would feel very relieved at having a nice...
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That sounds quite calorie-dense…? I need to lose some weight ☹️ I did eat a similar diet for a year or so, a while back, and managed to lose a fair bit of weight because I kept my calories very low, but the high calorie density meant the volume of food was pretty low and I had gut problems. Would need to up the low-calorie vegetables I guess. If I can only ...
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Thanks — I had 4 exams, Thursday, Friday, Monday, Tuesday — so I've spent this evening recovering by pretty much lying on my bed playing video games ? Nobody should have to sit 5-hour exams. Let alone on consecutive days. It's just cruel. I love proper homemade food, but I do tend to eat quite a lot of junk or ready-prepared stuff — I get disability benef...
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Thank you — I'm not feeling super-chuffed about it at the moment. I don't feel ill! I've never had a brain MRI and I hope never to need to, but I've seen the white lesions all over my partner's brain when he was scanned (not for coeliac disease) and it's terrifying. I hope I don't have those! I'd never heard of that in coeliac disease, though I've h...
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Sorry, yes, vast genetic component in all of them; what I meant was that there are people in my family with equally severe ASD and bipolar type problems to me, who don't have digestive issues, and vice versa. I'm not ruling out interactions, though; I'd be very happy if the fatigue and fuzzy thinking lifted a bit, though I guess it's unlikely to go altogether...
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I'm not convinced it will have any effect on the ASD or bipolar disorder; those are both really strongly hereditary in my family and don't seem to link up with any digestive issues… anyway. I guess I'll see. For now, I have a deadline to finish all my sugar free biscuits ? (not too fast or I'll be on the loo all day and night… damn those polyols!)
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Will it accept shite? Hooray
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Thank you — I'll check out that topic before I go home. I don't own a microwave there unfortunately! I'll be staying on normal food for now. I'm kind of fed up of new beginnings ? I keep getting diagnosed with s$#&! Since 2014 I've gained diagnoses of diabetes, ASD, bipolar disorder, and now coeliac disease. And also gone back to school and started a...
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Thank you for the good luck wishes! I guess maybe the damage could've been at too micro a level to see, too, perhaps? I don't know what scope they used; I was a bit out of it at the time (midazolam — though it wasn't as heavily sedating as I'd hoped). And it was a different gastro who carried out the endoscopy, not the one I'll be seeing. I was a bit c...
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And found out by post. Joy. But there's so little detail — all the letter says is that the biopsies show "changes that confirm the diagnosis of coeliac disease" and that this can be "managed simply by making changes to the diet". I've been given a date for an educational session, and will apparently be getting an appointment with a coeliac dietitian and a...
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Very happy about this — I know loads of coeliacs have normal-looking endoscopies, and it doesn't mean there won't prove to be damage on the biopsy, but it's the first positive bit of coeliac-related news I've had ? Keeping my fingers crossed for a negative biopsy <pleasepleasepleasepleaseplease>
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Repeat blood test came back with the same result
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I love the idea of using disposable surface covers, thanks Repeat blood test in a few hours — I have my fingers crossed that it comes out negative and I can cancel the endoscopy!
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I'm in the UK — not sure whether coeliac disease is covered by the Equality Act but I'm sure my college will be willing to do whatever's needed. I already have first dibs on room choice because of my ASD, and because of that have elected to stay in the same room next year as familiarity reduces my anxiety. Almost no students in the UK share rooms ? ...
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Thanks! I guess maybe I could ask my corridor to only put glutenless stuff on the top shelf…? I can't guarantee someone wouldn't "borrow" my butter or whatever and leave gluteny crumbs in it ? God, I really hope the biopsy comes back negative.
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There's no room for a second microwave/fridge/freezer… the other stuff, I guess I'd have to keep in my room if I couldn't trust people. And I wouldn't be able to use the oven?
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Thing is, though, if I end up with a coeliac diagnosis, I have no idea how I'm going to manage to avoid cross-contamination… I'm in university accommodation with a shared kitchen ?
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It's not denial until I know it's true… ??? Yes, trying to think of all my favourite gluteny foods… I've got six weeks of freedom left.
