OrangesAndMelons
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by OrangesAndMelons
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Just got my appointment for the gastroenterology clinic. Argh. It's like this is a real thing or something!
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Ugh. It seems that when there's a positive result on the tTG-IgA, they just automatically go on to do an EMA test (which I just read online uses monkey oesophagus?!), but it takes longer to come back because it's not automated. It's just appeared on my GP app and apparently it's abnormal. So unless they've used somebody else's blood by mistake, that's not...
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Thank you
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I looked on your profile and the FB page you linked there and couldn't find a blog link…
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Ooh, recipes! Cool ?
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Labs do make mistakes sometimes, and often mistakes cause extreme results rather than slightly wrong results… I'm keeping that possibility in mind until I get the repeat test done ? It would be the only good outcome, really, because otherwise it's probably either coeliac disease, which probably means an even more annoying diet than I have already, or it's...
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I checked my blood test results and it does actually say >128, so it must be out of the range of measurement. Which a couple of people have suggested to me might mean it's more likely to be an erroneous result…
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Wow, what a bloody saga! I'm sorry it took so long and so much pressure from you to get the medical help you needed. Thank you for telling me your story. I actually *do* have mental issues, which might not help matters ?
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Thanks for the link! I'm currently in the same headspace as my partner was when he had optic neuritis and started worrying that everything he had was a sign of MS… With my sensible head on, I really don't think that what I have is DH but it doesn't really match dyshidrotic eczema properly either ? Probably just some weird random histamine thing — I'...
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Gluten police ?
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Um. I just found a table online comparing tTG-IgA tests, and the one on the table that has a reference range of 0–6.9, which was what my test's reference range was, maxes out at 128. So… I've maxed out the tTG-IgA test?!
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Erythritol is supposed to be BM neutral and have no GI effects because the gut bacteria can't digest it — my experience would match with that. Other sugar alcohols, though… ??? I'm very pale so even in winter I should be getting reasonable amounts of vitamin D — I noticed no difference health-wise when I was supplementing. In fact supplementing turne...
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That's a lot of vitamin D! In term time I basically produce rabbit pellets ? unless I go heavy on the polyols. I practically self-medicate with sugar-free sweets… The UK supplement market is quite different to the North American one, I think. For now I'm going to hold off on supplements till I know what's going on (hopefully not celiac disease…)...
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I'd have been tempted to strip off and drive home in underwear ?
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Water?! That's… unreasonably inconvenient. Did it happen with sweat?
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I never get them on my palms, thankfully; only on the sides of my fingers and occasionally the backs of them (usually a cluster of at least half a dozen). Which is why dyshidrotic eczema doesn't seem quite right. But I'm not sure they're right for DH either. Mine break eventually if I scratch them enough, then leave little craters or circles of dry skin...
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I saw that post earlier! — but when I clicked through I could only read a three line snippet. What's cc? I can't get a very good picture, and typically, my dyshidrotic eczema is as mild as it gets right now (extremely mild!) but here's my crappy itchy fluid-filled blistery things anyway… Edited to add: I once had them all over the top...
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Hehe — I've had IBS for so long I stopped mentioning it to doctors because I know there's nothing they can do. In fact I'm so used to it, when the GP asked if I had any GI symptoms after this test result came through, I said no, before remembering about the IBS!
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I'll talk to my doctor. Thanks for all the info
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Thanks I was taking them twice a day with my other meds. Lurid yellow pee galore ? I'm wary of taking magnesium salts with my lithium — I'd want to ask my doctor about it first, I think, in case it could mess with my levels.
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Thanks Posterboy ? When I was struggling to get any psychiatric care a while back, I self-treated with Omega-3-6-9 and megadose B vits and vitamin D, and they didn't seem to help much but I'm always open to trying. I'm hoping my GP will be happy to run a test for vitamin deficiencies if I turn out to have celiac disease, and then I'll know what...
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Thanks frieze!
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Googling around a bit is making me give the side-eye to what, up until now, I've assumed was dyshidrotic eczema…
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Glad to hear the diet change improved things for you!
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Thanks cyclinglady ? Glad to hear it's okay to be annoyed ? I think the bipolar disorder is probably here to stay… I have a strong family history of mental health problems including bipolar disorder, on the side that doesn't have gut problems ? I'm also autistic… LUCKY ME ? Apparently the thyroid antibodies were fine.
