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Crispy chick

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Crispy chick

  1. Crispy chick
    Where are you? I'm UK and was told the wait would be 12 months, but I got a much quicker appointment on a sun at a hospital quite far away. They are doing overtime catch up. Alternatively would you consider going gluten free and doing the 6 week gluten challenge ahead of your biopsy? Rather than stay 10 months on gluten.
  2. Crispy chick
    Not seen anyone about my gastritis yet ?. Your gp can actually refer you for endoscopy too. Perhaps you could push them rather than wait for gastro?? My situation has been a catalogue of errors from start. Unfortunately, in my experience, the more experts you are seen by, the more they use it against you and assume hypochondriac!!! Very frustrating....
  3. Crispy chick
    Hi. I am UK. I test negative on the standard UK blood test. I have recently had an endoscopy and biopsies and am awaiting the results. Keep pushing. Even if you get negative bloods, push for that endoscopy. I felt like crying when in with the gastro who declared he did not think I was celiac and did not think there was anything wrong with my stomach...
  4. Crispy chick
    I don't think the UK service is the same everywhere. My poor sister was diagnosed about 8 years ago. No dietician, no bone scan. No follow up. I'm awaiting my biopsy results. To get to this point has been a catalogue of errors. E. G gastro told me to stop eating gluten as would wait a year for endoscopy. I stop. 13 days later get an appointment which...
  5. Crispy chick
    Just out of interest cyclelady can they tell you the cause of the gastritis from the biopsy? Did they discover yours was autoimmune from analysing your biopsy?
  6. Crispy chick
    I have read a lot about betaine hcl and supplementing for reflux. Indeed I gave it a try. However, following my endoscopy the consultant could see my gastritis with polyps and erosion. I would be very scared to supplement with acid with the erosion and polyps......?
  7. Crispy chick
    Day 13 Gluten free. My original symptoms of nausea, dizziness and general malice are elevated???! I feel dreadful. With headache on top. Day 13 - withdrawl really??? Or is it proof gluten is not my problem all along? Still awaiting biopsy results.....
  8. Crispy chick
    So I am awaiting my biopsy results. I have started my gluten-free diet, irrespective. During my endoscopy I was found to have bad gastritis with polyps. I think this may be the route cause of my nausea and some of my other symptoms. However, going gluten-free takes my constant headaches away..... So gluten must be a factor. I am wondering if gluten...
  9. Crispy chick
    Hi. Do they tell you straight after the procedure if they see damage??? Or do you always have to wait for follow up biopsy results. UK.
  10. Crispy chick
    Hi. I am finally just one week away from my endoscopy. I will be going gluten-free that day. I only show up as low in vit d, but are there any supplements I should take when going gluten-free??? I managed 13 days before I had to go back on gluten because of my endoscopy appointment. During the 13 days I had bad withdrawl and the anxiety...
  11. Crispy chick
    Hi. I'm still waiting on my endoscopy. I tested negative for the usual iga antibody. They don't offer the full panel in UK. Doc has just called to say I am positive for ANA antibody which indicates autoimmune. Anyone know if this can be linked to celiac? ANA Antinuclear antibodies. Thanks
  12. Crispy chick
    Thank you folks. I am going to eat gluten and have the endoscopy in 5 1/2 weeks. As you say Ranchers Wife, my GI is dubious about me having celiac so I guess I need to be in the best place for the test. I've lived with these dire symptoms for 18 months, what's a further 5 1/2 weeks. I'll then go gluten-free immediately and hopefully see improvement. Whether...
  13. Crispy chick
    Thank you. I have spoken to my GP they recommend caution and eating it for 6 weeks. So have an appointment in 5 1/2 weeks. Back on gluten today - I swear I feel exhausted already after 2 meals. Then gluten-free again with a further 2 week withdrawl. What a busy few months to look forward to. ?
  14. Crispy chick
    Hi. Apologies for my endless posts!!! I was told by gi to go gluten-free as my endoscopy would take 9 months on NHS. So I have done 13 days. Bad withdrawl and just felt I was coming out the other end yesterday when I got a phone call offering endoscopy in 2 weeks. I am well aware of the need to be eating gluten before the biopsy. So my only question...
  15. Crispy chick
    Hi. I am day 11 gluten-free. Been having some odd withdrawals. Been fed up, off my food and low. But now I have intense anxiety. I'm shaky, feel awful and nauseous. Dizzy. Anyone else experience extreme anxiety giving up gluten??? I just need to hear from others who have gone through it. Thanks in advance x
  16. Crispy chick
    Thank you. Day 7 and feeling dreadful. My usual symptoms are still present. Maybe less bloating. Now I am depressed with anxiety. ?
  17. Crispy chick
    Hi. As per my previous post I have been advised by my GI to go gluten free as I will be waiting approx 12 months for endoscopy. So I am on day 4. I don't find it too daunting as my sister is celiac. I am being very careful. Day 4 I feel worse. I have dreadful. Acid reflux and have had minor stomach discomfort each day. My original symptoms are...
  18. Crispy chick
    Thanks for the replies. They really help. I'm going to call up today and see where I am on the endoscopy list. If it is going to be 9 months, I need to try gluten free. I have been getting supplies in and am researching to get my head around it. Just so frustrating that I can't have the biopsy first. That's our NHS I'm afraid.
  19. Crispy chick
    I am so fed up fighting!!! Just seen GI. He says highly unlikely I have celiac given I have had 3 negative tests over the years. He will do endoscopy and biopsies but the wait will be 9 months - UK. I am at a loss. So many of you guys had negative blood tests and in the UK they do not do the panel. I will try gluten free. Just frustrated because I have...
  20. Crispy chick
    Just thought I would ask if anyone has come a cross this. I have two sore points when pressed just below and to the left and right of my stomach. I am awaiting gastroentology appointment. My bloods are negative. I have a lot of other possible celiac symptoms, but can not find anything about this. They hurt to be pressed. Some days worse than others...
  21. Crispy chick
    Thanks. I fully intend to do this if I am facing a long wait. I'm just giving it a few more days until I see the gastroenterologist - just in case they can bump me up to a matter of weeks. If not, I'm going gluten free next week!!! My sister has a box of items waiting for me since she is celiac.
  22. Crispy chick
    Thank you. That is reassuring. I'm going to have to see how long my wait will be for endoscopy. I'm already on the list for one (just for my general issues, no celiac specific) and the wait is 12 months ?. I'm hoping the potential for celiac may bring it forward. Fingers crossed.
  23. Crispy chick
    Just had my latest blood test. Negative. As expected I guess, but I could cry. I just want an answer to why I feel so bad. I asked the gp - that was off one test. I mentioned the panel, she didn't comment. My test was really low though. 1.2. Is it still possible? I'm seeing gastroentology later this week so will now need to push for biposy based on...
  24. Crispy chick
    Thanks. I just feel so ill and this has been 18 months. I never considered celiac until 2 weeks ago as twice I have had my bloods tested. And twice negative results. I'm in the UK and I think they perhaps only do the one blood test, rather than the panel that people are referring to. Gi symptoms have been a part of my life for last 20 years. They are...
  25. Crispy chick
    Thank you. I think I might just push for the endoscopy if I get negative again on the standard test. I feel so ill and nothing else is showing up. If I am going to have to wait ages for endoscopy (I'm in UK) then I'll do a short trial. I too would like a formal diagnosis if I have it though, especially for my kids, so it is in their history.
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