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Skin biopsy is enough, as said above the endoscopy is probably just to see if you also have damaged guts. It's your choice. You could compromise too, and lower your gluten intake. 50mg is probably perfectly enough, since it does show damage to quite a few and you're aiming for low maintenance. (its far less than the 5 or more grams you eat today...

OT Isn't that a felony? As in causing bodily injury or illness. (sry, but what a ******* ***. I'd be so pissed) "Assault Causing Bodily Injury or Mental Illness Any assault as previously defined which results in a bodily injury. Bodily injury is defined as physical pain, illness, or any impairment of physical condition. Assault causing...

Yes, I'll experiment some. At this time I'm pleased with desloratadin and ranitidin. But mixing might work well in emergencies, and I'll add the nasal and maybe eyedrops too. My aim is to keep the levels low enough with food. And hopefully I won't have these issues in a couple of years, but I have to assume I will. It's sad that you're on your...

No, I use desloratadin. A very friendly Antihistamine h1. No side effects at all, not even in higher doses. Not that I know. The h2 blocker, ranitidin takes off the edge off the rest of the histamine fatigue. It's as if I am being pumped with energy as it sets in. Hence it feels useless to take h2 at bedtime for me, when I can use the energy for other...

I used to think that I might have ataxia. But it turns out that I had diamine oxidase deficiency instead (or at least) . This means that I can't metabolize biogenic amines properly, foremost histamines, because I don't have sufficient of enzymes to do that. Everything I eat adds to my bucket of Biogenic amines, and it tips easily over since my...

Yes, similar at least. But in my case it's down to diamine oxidase deficiency, DAO. This means that I have excess histamines running around in my system.. You can try and see what happens with your symptoms if you eat antihistamines. If it takes the edge off, then you might have excess histamines too for any reason.

Oh, yes. We're pretty much alone in sickness. Hopefully it will change, and patients will be in the focal point in health care. At least we are able to share things with each other. I will definitely try some nasal things to aid. But I can't try Xanax, I got a similar medication because the doc assumed my issues were only psychological. That was a horrible...

Thanx. I will try to feed the right bacterias, and hopefully this deficiency is secondary.

Notme! I am on an extremely strict gluten free diet. The story is that I quit myself. And 9mts later had a slightly positive tTG-IgA result. But the celiac test was made together with a lot of other tests, because I felt as if it couldn't be just gluten or wheat. I became hypersensitive, had to keep my glutenfree to a maximum of 0ppm. Which didn...

Thanx, good to know that there's a nice gluten-free brand. I personally don't have migraines, but magnesium helped me out with muscle cramps. I will check it out. I only have a headache... And probably all other symptoms of histaminosis... Hypotension, low body temperature, tingling, itchiness, fainting, shivering, convulsions, nosebleeds, fatigue,...

I love to hear that your mast cell issues are under control!!!! Im dreaming to be able to keep things under control once healed too, this is inspiring. Unfortunately I'm a bad, bad patient.. and went on a strictly gluten-free diet nearly a year ago. I felt unheard and was in a very poor shape, and became terrible ill from tiny mistakes. My blood...

Thanx. Keeping a food journal doesn't seem easy enough though ??. But I'll try a similar version. To find "safe" food to comfort with when to high. And will probably become addicted to H1 n h2 blockers. How long have you been on them?

I don't think I have ruled out all possibilities, since dao deficiency is the only thing they've stated as a fact this far, together with some autoantibodies towards gluten. My DAO deficiency is measured at a hospital, so I believe that it may be possible. As I understand it, this falls under some kind of general food intolerance or pseudo allergy,...

. 8. Even if the DAO enzyme works hard to start breaking down the histamine, if there are additional blockages in other enzymes, harmful levels of aldehydes will increase. Aldehydes are very toxic and lead to a vast number of symptoms. Vitamin B1, known as thiamine, is a big player help reduce aldehydes." Thanx ...

Great!! It's going to be interesting to see what you think of them. But.. It sounds cruel to try to get a headache ?. Isn't that a wee bit to much to ask? What if the pills won't work? I received my blockers today. Standard h1 (desloratadin) and h2(ranitidin). They worked awesome until recently. Quick fix for high energy levels. But...