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Iiv

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Iiv

  1. Iiv
    Skin biopsy is enough, as said above the endoscopy is probably just to see if you also have damaged guts. It's your choice. You could compromise too, and lower your gluten intake. 50mg is probably perfectly enough, since it does show damage to quite a few and you're aiming for low maintenance. (its far less than the 5 or more grams you eat today...
  2. Iiv
    OT Isn't that a felony? As in causing bodily injury or illness. (sry, but what a ******* ***. I'd be so pissed) "Assault Causing Bodily Injury or Mental Illness Any assault as previously defined which results in a bodily injury. Bodily injury is defined as physical pain, illness, or any impairment of physical condition. Assault causing...
  3. Iiv
    Yes, I'll experiment some. At this time I'm pleased with desloratadin and ranitidin. But mixing might work well in emergencies, and I'll add the nasal and maybe eyedrops too. My aim is to keep the levels low enough with food. And hopefully I won't have these issues in a couple of years, but I have to assume I will. It's sad that you're on your...
  4. Iiv
    No, I use desloratadin. A very friendly Antihistamine h1. No side effects at all, not even in higher doses. Not that I know. The h2 blocker, ranitidin takes off the edge off the rest of the histamine fatigue. It's as if I am being pumped with energy as it sets in. Hence it feels useless to take h2 at bedtime for me, when I can use the energy for other...
  5. Iiv
    I used to think that I might have ataxia. But it turns out that I had diamine oxidase deficiency instead (or at least) . This means that I can't metabolize biogenic amines properly, foremost histamines, because I don't have sufficient of enzymes to do that. Everything I eat adds to my bucket of Biogenic amines, and it tips easily over since my...
  6. Iiv
    Yes, similar at least. But in my case it's down to diamine oxidase deficiency, DAO. This means that I have excess histamines running around in my system.. You can try and see what happens with your symptoms if you eat antihistamines. If it takes the edge off, then you might have excess histamines too for any reason.
  7. Iiv
    Oh, yes. We're pretty much alone in sickness. Hopefully it will change, and patients will be in the focal point in health care. At least we are able to share things with each other. I will definitely try some nasal things to aid. But I can't try Xanax, I got a similar medication because the doc assumed my issues were only psychological. That was a horrible...
  8. Iiv
    Thanx. I will try to feed the right bacterias, and hopefully this deficiency is secondary.
  9. Iiv
    Notme! I am on an extremely strict gluten free diet. The story is that I quit myself. And 9mts later had a slightly positive tTG-IgA result. But the celiac test was made together with a lot of other tests, because I felt as if it couldn't be just gluten or wheat. I became hypersensitive, had to keep my glutenfree to a maximum of 0ppm. Which didn...
  10. Iiv
    Thanx, good to know that there's a nice gluten-free brand. I personally don't have migraines, but magnesium helped me out with muscle cramps. I will check it out. I only have a headache... And probably all other symptoms of histaminosis... Hypotension, low body temperature, tingling, itchiness, fainting, shivering, convulsions, nosebleeds, fatigue,...
  11. Iiv
    I love to hear that your mast cell issues are under control!!!! Im dreaming to be able to keep things under control once healed too, this is inspiring. Unfortunately I'm a bad, bad patient.. and went on a strictly gluten-free diet nearly a year ago. I felt unheard and was in a very poor shape, and became terrible ill from tiny mistakes. My blood...
  12. Iiv
    Thanx. Keeping a food journal doesn't seem easy enough though ??. But I'll try a similar version. To find "safe" food to comfort with when to high. And will probably become addicted to H1 n h2 blockers. How long have you been on them?
  13. Iiv
    I don't think I have ruled out all possibilities, since dao deficiency is the only thing they've stated as a fact this far, together with some autoantibodies towards gluten. My DAO deficiency is measured at a hospital, so I believe that it may be possible. As I understand it, this falls under some kind of general food intolerance or pseudo allergy,...
  14. Iiv
    . 8. Even if the DAO enzyme works hard to start breaking down the histamine, if there are additional blockages in other enzymes, harmful levels of aldehydes will increase. Aldehydes are very toxic and lead to a vast number of symptoms. Vitamin B1, known as thiamine, is a big player help reduce aldehydes." Thanx ...
  15. Iiv
    Great!! It's going to be interesting to see what you think of them. But.. It sounds cruel to try to get a headache ?. Isn't that a wee bit to much to ask? What if the pills won't work? I received my blockers today. Standard h1 (desloratadin) and h2(ranitidin). They worked awesome until recently. Quick fix for high energy levels. But...
  16. Iiv
    Thanks Posterboy. It cannot hurt to feed the right bacteria in your gut. Especially not if one is very low in DAO. (I'm 3,5.. One study claimed that healthy controls were nearly 40(+-20).?). Luckily I don't have IgE mediatet allergies, and am quite low on Total IgE count and eosinophil. Haven't checked my histamine levels though. Hopefully...
  17. Iiv
    Appereantly it does, since the DAO enzymes are mostly produced in the mucosa of the small intestines. Hence if small intestine is damaged, it can become difficult for the body to produce enough DAO enzymes. With not enough enzymes to break histamine down, it builds up and you get overloaded with histamine in your body. With horrible reactions. Since...
  18. Iiv
    Yes, I'll eventually get some myself too. DAO definitely explains a lot of the weird symptoms I've had when being glutened, like blackouts apparently. My headaches (and DAO deficiency they say) is helped by zinc, b9 and b12 too. B6 is supposed to be linked to DAO too. Please give a review of how they work
  19. Iiv
    So. I did a weak positive tTG-IgA test a couple of months ago. But they are not sure if they want me to do a biopsy. This is probably because I have been on a strictly gluten free diet since August. Today I received a letter claiming that I have histamine intolerance. This I will not buy because I can eat tons of histamine rich foods and will...
  20. Iiv
    IgE is the common allergy antibody. IgE is not associated with celiac disease, but hayfever, dust, nuts, animals etc. It is antibodies attacking intruders, not like ttg-IgA which are autoantibodies attacking the body's own cells instead. In some countries, like Sweden, the reference range is >0.10. Anything above that is considered to have potential...
  21. Iiv
    I used to be cold, always. With 80+ degrees inside I needed two thick blankets to be able to sleep. My body temperature was usually around 96,4-97,2. I was seldom allowed to touch people. I needed heat from warm baths or another body to reheat myself if it was too cold. Today my body temperature is around 98-98,5 and it only takes a few minutes to reheat...
  22. Iiv
    Zinc deficiency is also connected to a diversity of mood issues and foggy brain and so on. adding zinc has actually been a quick fix for me. Zinc is found in whole grains too, and some other things that some people cut out in order to manage their stomachs. I can't eat meat which is high in zinc too. "zinc deficiency was observed in 67% of the...
  23. Iiv
    Hi Awol Would you mind telling a bit more about this? I too have issues of long time recovery I recently Learned, I was Hoping it was due to not being gluten-free long enough. 11 days, and still have wee bit of rashes and weariness, and stomach is on part time duty. But this did not happen from derivatives. take care
  24. Iiv
    Fascinating to go through all those long forgotten issues. I still feel a burn on back and cheek, itching on arms, ears and head mostly. No, this is not something I would want to do again. Unfortunately I cannot give any pictures of before going gluten-free since I didn't want show them back then. But most of them is covered here, in one week, milder...
  25. Iiv
    Sorry for this one, displaying a variety of different rashes throughout glutening. Some I had completely forgotten about.
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