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Defokus

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Defokus

  1. Would you recommend other tests? Would an endocrinologist be a better option to check all bloods/vitamins/mineral levels? I went to see a celiac specialist on Thursday because it’s not letting up and his attitude was “what do you think I can do for you?” I showed him all my test results and he said 2 things. 1. Not celiac but perhaps gluten intolerance and 2...
  2. Thanks! I don’t eat processed food nor gluten free labelled processed foods. I don’t understand why I felt good for one month, then suddenly on the same diet, I’m now having loose stools with indigested food and at times it’s green. Is arm and hand tingling/numbness normal? Also muscles in my back have this feeling like gas is blowing them up like a ...
  3. Thanks ? do you recommend particular digestive enzymes? Thought I’d ask to save myself using ones that have hidden nasties inside ?
  4. Really helpful thanks. I also have fatty liver (from years of alcoholism). Been dry for over a year already but it was still fatty pre-diagnosis. my lipase for the last 3 years has always been 5-10 points above the normal range so it’s not like they’re extremely elevated. Really encouraging to hear they can be reduced on a gluten-free diet.
  5. I had a blood test from an allergist and my ECP levels were 3x normal range. ECP differs from standard eosinophil percentage that is common in a CBC blood test. Levels are 66.7ug/l normal is <20ug/l. From what I read this is pretty dangerous and is also a marker for tumours or can cause organ damage. It is also termed as eosinophilia which is...
  6. Great article but as a newbie Celiac, another matrix of things to avoid when all I can eat is white rice flour, salad and vegetables. This disease really is a lifestyle nightmare when I have a family of non-celiacs and I'm the breadwinner, who now has to take extra care and time (lots of time) to prepare all my fresh meals. How can one survive when all other...
  7. Again really useful thanks. I'll look into those flours. I think I have coconut flour but was afraid of another reaction. I just seem to get better, introduce something new, then have to recover. Tough for the sole bread winner with a wife and 2 kids to support and be healthy enough to actually work. The pancreas is an interesting angle. My doctor has...
  8. Thanks Trent! Oh boy, life sometimes just throws a curve ball - potentially more autoimmune diseases... my knuckle pain has been constant for 4 months now. I guess that's not a flare up. Feeling kinda lost being a Scotsman living in Germany and not know which type of doctor to go to and what other tests I should get. Damn this disease.
  9. Thanks Ennis. Some really good advice. I'm pretty low on Vitamin D, but every time I take any type of supplement I have bad reactions. I even went out my way to find Vitamin D that is organic and has no sweeteners, fillers or any other ingredients other than what is core to making vitamin D. But hey, my body doesn't like it. From my tests all B, E and C vitamins...
  10. Looking for advice. Was diagnosed Celiac 3 months ago with all following details: Gastroenterologist scoping and bloods • biopsy Marsh score 1 no atrophy (lymphocyte count 68/100) • antibody blood test negative • both colonoscopy and endoscopy negative for infections or bowel disease Allergist gene testing and b...
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