anonymousplease
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by anonymousplease
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I'm not upset with the GFCO, they do everything in their power to protect us. I'm angry with the companies that use their logo without authorization. I'm also upset with the FDA for not requiring that anything labeled gluten-free actually get tested.
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Hi All, I created a post about this on Reddit today but wanted to share it here as well to get the word out to the community. Yesterday's post on Reddit about the update to the Gluten Free Certification Organization's logo brought up a really good conversation about the misuse of the old logo. I recently looked in my pantry and immediately found...
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I am pretty fed up with certified gluten free foods made it dedicated gluten free facilities that also use oats. If you think you've had a reaction to Udi's bread or Glutino crackers you're not crazy. It's happened to me and it took me a long time to figure out the source via process of elimination. I react to oats the same way that I do to gluten...
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Knitty Kitty - Wow thanks! I know I'm not the original poster on this thread but this was super helpful to me! I have yet to read through everything but off the bat everything you listed here I can relate to. When I got a virus last year I started drinking a ton of tea with licorice root in it to coat my throat. After that virus subsided,...
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I apologize for not being more clear - when I said stomach upset I meant my typical gluten reaction that I can feel in my gut. I don't trust medication that isn't certified gluten free, and none of it is. Obviously I'm banking on this bill being passed and the drug industry being regulated. Until then, I will continue to not trust medication that isn...
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I'm really struggling here to cope with menstrual cramps with no certified gluten free pain relievers available on the market. Some are labeled gluten free but are not tested below 20ppm. I used Aleve until I realized it was causing me stomach upset. The same goes for Advil. Advil used to advertise their regular (not gel cap) pills as gluten free but has...
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The shortness of breath is an experience I've had from eating nightshades. Some nightshades include: Cayenne Curry Powder Eggplants Goji berries Hot Sauce Ketchup Paprika All Peppers (including bell peppers, sweet peppers, chili peppers, jalapeños) Pimentos Potatoes (does not include sweet potatoes ...
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Canker Sores & Gluten
anonymousplease replied to anonymousplease's topic in Coping with Celiac Disease
Hey kanucme2019, Thank you for commenting, I appreciate your input. For me, I'm not searching for the food or ingredient cause, I know my canker sores are directly related to gluten. I'm not currently having an issue with outbreaks or anything like that, just pondering how the gluten can take effect so quickly. I just feel like there is still so much... -
Hi All, Here's a question for you: If celiac disease causes a reaction in the small intestine, why does my tongue break out in canker sores immediately after gluten touches it? Maybe this is silly and I'm missing an obvious reason but hear me out. I kind of understand why I get canker sores (the bigger ones that last for weeks) a day...
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Sorry I meant to include a link. I was referring to these: https://www.missionfoods.com/products/gluten-free-soft-taco-flour-tortilla-wraps/ I don't have an allergy to Xanthan Gum, ruled it out already but it's a good suggestion. I do my own baking and use Xanthan without issue. I agree there are a lot of mysterious ingredients in these but they are...
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I get "glutened" from Mission's Certified Gluten Free tortillas. I started eating them a couple years ago without issue and then something changed about 1 year ago and they started to make me sick. I've given them 5 or 6 tries since. Gut ache every time. I'm not sure if maybe something happens to them post testing for the gluten or how it's possible for me...
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The Gluten Contamination Study We've Been Waiting For
anonymousplease commented on Jefferson Adams's article in Additional Concerns
I agree with all of you. This study still seems totally pointless to me and I'm still not sure why it was even conducted. To disprove celiacs who say that cross contamination is a problem? To make it seem like a single crumb isn't really enough to make anyone sick? To make us all seem like we're exaggerating? We know we're not, we know what we experience... -
The Gluten Contamination Study We've Been Waiting For
anonymousplease commented on Jefferson Adams's article in Additional Concerns
Those were my feelings exactly. I worry about what happens when studies like this are misinterpreted. I think they need to be followed up with how to apply what we've learned to everyday life safely and successfully.- 70 comments
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The Gluten Contamination Study We've Been Waiting For
anonymousplease commented on Jefferson Adams's article in Additional Concerns
I don't think it's bad to perform studies like this, but I do think the results can be more harmful than helpful depending on who's lap the information falls in. This study is interesting, but is it useful or helpful to people cooking at home or at restaurants? In my opinion it is not. I think it could even give false hope to celiacs who might read it and...- 70 comments
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Thanks for reading. I too recovered from the lactose intolerance. It only comes back when I've consumed gluten but not nearly to the same extent as it did when I was a child. These days its minor gut aches and pains that often lead to nothing. The canker sores for me these days are more of a red flag that I've been exposed. My tongue will break out instantly...
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This has been my experience with a nightshade intolerance and maybe it will help some of y'all. I apologize for the length, and thank you if you get through it. To preface, I have been gluten free for 11 years but it was not until year 9 that I really started to understand celiac's disease and crack down on eliminating anything that was sketchy from...
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Thank you. I've never heard of the Mast Cell issues before. Will research.
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Thank you - I edited my post to correct my error about nuts vs. legumes.
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A couple years after being diagnosed with celiac disease, when I was in my early 20's, I lost the ability to digest peanuts & nuts (coconuts excluded). I never had a peanut or nut allergy growing up. One day in my early 20's after eating a bunch of peanuts I developed the worst burning stomach pain I've ever had. It lasted for several hours. Then I started...
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I don't mean to sidetrack from the original post but would you mind explaining how you eliminated your GERD and acid reflux? Was it through a thorough gluten free diet? Because those symptoms for me have only become a problem after going gluten free. Especially that sulphur experience you describe. Happens to me about once every two years and is extremely...
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Hey thanks for your input. I appreciate the explanation and time spent writing it. I think its time for me to test for other allergies as well.
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In my experiences the blood test and biopsy are unreliable. It is possible, since you are very new to this, that everything you were eating was not gluten free. It takes a long time to understand where gluten can be hidden in products, and even certified gluten free labeling can be inaccurate. I would give it a try again, stick with it for at least a month...
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https://www.glutenfreedietitian.com/contamination-of-naturally-guten-free-grains/ I read this recently and it explained why I get glutened by baked goods consistently. Even when I make them myself with certified gluten free flours. I get sick from Tate's too. It's not a full blown gluten attack, usually it's pretty minor, but I never feel good after...
