mythreesuns

I am SOOOOO not there yet! LOL

I'm less than a month into this so I'm sort of still obessed with it. I have eaten out twice (which is a great reminder) but neither time did it turn out well.

I'm finding it quite possible that I could become OCD about gluten contamination.

you can also make your own wine, too. we do that.

Or you can just stick to vodka and cranberry juice.

Prevacid is gluten-free--I checked when I was put on it last spring.

Good to know! Thanks.

I'm not quite as concerned about the lactose, as I feel that's only a secondary problem for me, and eliminating it from my FOOD diet (along with casein) was enough to minimize the symptoms.

Thanks, I did look into Enterolab for myself and it's just too costly for us at this time. I know that sounds trite, but here it is August 16th and I haven't paid this month's mortgage yet, so I really do mean it when I say we don't have the money.

I'm in the process of a gluten-free trial myself for my own issues, but now I'm concerned about my son. He's had chronic diarrhea for more than a year, he went through a period of time where he was sick (throwing up) frequently (a couple of times a month without other obvious sickness) and he was tired a lot and his head hurt.

He went through a multitude of tests and through several channels we discovered that his ANAs came up high on his blood tests and he did get dx's of OCD and Tourette's from his developmental pediatrician.

Well, after what I went through/am going through, I decided to get him tested as well, but I wasn't sure how to go about it. For me, the blood tests and the biopsies came up negative. Is there a better way to test for children? This kid HATES bloodwork (almost passes out) and I can't see putting him through an endoscopy.

Any thoughts?

I looked up the ingredients of my current meds and this is what I found:

Prevacid contains "starch"

Relpax contains "lactose"

Now, I know lactose doesn't have gluten, but I am intolerant to milk as well, so does this mean I can't take my meds???

You are mythreesuns, I was once that, but now I am and will continue to be myfoursons. Sons are wonderful.

LOL too funny! With already having a houseful of men, I can't IMAGINE adding one more to the mix!

are you lactose or casein free? if you are casein free, wine is filtered with casein.

Um, whoops!

I am in fact at this time casein intolerant. Thanks for the tip!

Yea it was most likely the salad. Even a crumb can get us as well as the dressing. I bring by own. Make sure the vodka is potato vodka though, many of us can tolerate gluten grain alcohol but many of us can't.

I seem to be ok with vodka (thank God!) but I had no idea wine was filtered with casein.

I should just give up on eating out for now, it was just too hard to pass up meeting with a friend I haven't seen in MONTHS! Next time, it's Outback or just a bar. LOL

Yep. It was likely some kind of syrup they put in it, not the wine itself.

I'm actually drinking a glass of pinot noir right now - thank goodness wine is gluten-free!

Well, actually, I read all the ingredients of the drink and it sounded ok.

I think it *may* have been the salad. After going through the whole menu and asking questions about what was in this and what was in that, explaining what I could and couldn't eat, she finally brought me a salad with grilled chicken, sans croutons and cheese......with a big ol' slab of garlic toast on the side of it!

I scraped off with a napkin anything I thought had touched the bread, but who knows!? It could have even been the grill. Honestly, I think what I'm feeling is some kind of milk from lunch....a little early for the gluten to have hit me already.

No more fancy drinks for me! Vodka and cranberry juice ONLY!

Plain wine is fine, even the cheap plonk in the box. Any time you add flavor to anything you need to look at what has been added, since there could be gluten in it. But wine is okay. Enjoy!

Hmmm....so if it was an Red Apple Wine drink with more than just wine in it I may be in trouble? (where's the guilty face? LOL)

Just asking....

I went out to dinner tonight and now I'm kind of bloaty. I knew I shouldn't have eaten out but it was nice to catch up with an old friend.

I'm sure there was something in something that I ate...milk or gluten.

Cool! Thanks, everyone.

There's a suitcase of various colors. What do they mean?

What do the orange squares mean before some post titles?

Sorry for the stupid questions...forgive me...I'm new.

Ok, why can I see this on the forums page under "last post info" but I don't see it when I click on the Message Board???

Well, anyway, thanks for the replies! My dr of course isn't discussing celiac with me because I couldn't have because it's just too rare...

The arthritis in my foot is what finally sent me over the edge and prompted me to start the gluten free diet. The story is longer than that I assure you, but anyway...

The dr thought I originally thought I had gout, which is of course food-related, but is it related to celiac? I had thought only rheumatoid arthritis was related, but after a negative blood test for gout and looking at the x-ray, the dr it looked like mild osteoarthritis, which of course I am a little young for (33).

He said it could still be gout, but the question remains, are all types of arthritis related to celiac, or just some?

Thanks so much for all your replies. It's hard reading about celiac on the net, because while you do find articles talking about overweight celiacs, it still seems like it's not the norm, or even common.

Leah--what does "pm" mean? I've been all over message boards, but I haven't seen that abbreviation yet.

I'm so sorry! Being fresh off the diarrhea roller coaster, I can relate. I hope you feel better today.

Don't beat yourself up over this. Everyone I've talked to says it's so hard in the beginning that you WILL slip up now and again. Expect it, learn from it, and don't buy those chips again.

Canola oil is gluten-free, it comes from rape seed, which is part of the mustard family.

Sorry you aren't feeling well, chgomom!

Ok, now I REALLY don't understand! LOL

I'm sorry, again, chgomom! How did you gluten yourself?

I ate a ton of gluten-free baked goods, because I'm an avid cook & HAD to figure it all out right away.

Hmmm....I may have to pick your brain a little. I have been known as the cookie lady because around Christmastime I bake DOZENS of cookies!! I'm afraid to do that this year with "regular" cookies because of the mess it makes...getting flour all over everything and all.

I had thought of baking gluten-free cookies, but I haven't quite got the nerve. But, if you're already an expert, maybe I can learn from you!

Hello All....

I am up with a flight leaving at 2 am ....right now its 10:30 pm my time.

Anyway...tonight I tried some instant labled, "GLUTEN FREE" brown rice which I had bought at Wild Oats supermarket. Well I am eating it....mmm yummmm...should have known when it tasted so oood right off the bat something was up. SO I start look at the ingredients again.....pressed canola oil. Sheesh!

Then whats up with potatoes.....I was out on the net reading saying if you have celiac....youshould avoid them till your intestine are better healed because starches are harder to digest.

Am I an idiot??? Burping myself like a baby.....I glutened myself .....

And then on top of it...I am taking medroxyprogesterone so that my Aunt Floe will come to town because of my polycystic ovaries ugggghhhh

I need hugs,,,,and reassurance.....I just wnat to cry

Ok, first of all, HUGS to you!!!!!! When I first went milk-free I used to get the rotten egg burps every time I slipped. Yuck!!

Second, being a newbie I'll ask the stupid question.....pressed canola oil has gluten in it???

I know it's not the so-called "norm" but I have struggled with my weight for YEARS. I'm just wondering if it gets easier to manage your weight when you get the gluten under control.

I have noticed already (2 mos milk-free and 3 weeks gluten free) that the belly bloat is gone, but I also feel less hungry. I felt RAVENOUSLY hungry at first, given that I was only eating fruits and veggies! LOL But now I kind of feel like I'm just not as hungry. I remember before that no matter how much I ate I was always still hungry, which makes sense if you think in terms of not being able to get enough nutrients out of the food. But because I had to eat so much to satisfy my hunger I ended up being (and still am) kinda overweight.

I don't know, I guess I'm sort of talking to myself here, trying to process how gluten may have impacted my health up to this point. Just wondering if anyone else thinks this makes sense?

Open Original Shared Link

The above link might give you better information to judge for yourself what is in a product.

I'm looking like a diva dummy. I give up!

When I contacted Garnier Fructis a while back they told me they couldn't guarantee their products aren't gluten or, soy free or was not CC.

Thanks!!!

Ok, um....I still don't know what to avoid. What EXACTLY might be on the label that would lead me to think a beauty product had gluten in it?

(I had thought I'd skip thinking about beauty products until I had food pretty well down, but then in the shower today, I have no idea how it happened, but some water went UP my nose and down my throat while I was rinsing shampoo out of my hair! )

Well, I'm staying away from gluten and casein...and that's about all I can handle right now! LOL

I'm still pretty new to all of this, so I'll have to see how it goes as I'm off the gluten longer and longer.

Thanks, guys!

Do you not drink milk because of the lactose or the casein?

I'm intolerant to the casein and goats milk also has casein.

I like almond milk, the original tastes like regular milk in cereal and cooking. For butter I used ghee which is clarified butter, has no lactose or casein in it. I buy it at the natural food store.

For ice cream I eat ben & jerry's sorbet.

For me my hair has been falling out so I am trying to go without soy and see if that helps. It was in my shampoo even.

I agree with others, get a handle on the gluten/milk thing first, worry about soy when you're up for it.

Mia

I believe it's the casein. When I tried to eliminate just the Lactose I only got limited results. I have a head full of hair, so if soy IS affecting me, it's not in that department! LOL

Well the other way is cut out everything right at the beginning and then slowly introduce?

I think summer is perhaps the easiest time to do this if you decide.

One reason is that the casein allergy and lactose intolerance can both be exasperated by the gluten and damaged villi and many people find they can add limited amounts back after a while.

I'm not rabidly anti-soy but I definately watch it... Far too many people with one auto immune response seem to trigger others. My mother has almost identical glutening symptoms as myself (not surprising really) but she reacts really badly to soy. She spent (or more accurately wasted) a year of her life in misery after starting eating soy in any quantity (before this she was a vcery occiasional soy sauce person but not TSP or other soy products...

It took her a year to be REALLY gluten-free as well so its hard to tell but she now tolerates the small amount of soy in some of her meds.

I actually started this whole journey by eliminating lactose, then added milk, then gluten. I really don't know if I could handle giving up any more right now! LOL

Well the other way is cut out everything right at the beginning and then slowly introduce?

I think summer is perhaps the easiest time to do this if you decide.

One reason is that the casein allergy and lactose intolerance can both be exasperated by the gluten and damaged villi and many people find they can add limited amounts back after a while.

I'm not rabidly anti-soy but I definately watch it... Far too many people with one auto immune response seem to trigger others. My mother has almost identical glutening symptoms as myself (not surprising really) but she reacts really badly to soy. She spent (or more accurately wasted) a year of her life in misery after starting eating soy in any quantity (before this she was a vcery occiasional soy sauce person but not TSP or other soy products...

It took her a year to be REALLY gluten-free as well so its hard to tell but she now tolerates the small amount of soy in some of her meds.

What kind of response did she have to it? What should I look out for?

I really don't think I'm having a reaction to it, but the only thing I do know is that my arthritis didn't rear it's ugly head until I went milk-free (and started injestion a lot more soy) but that seems like a pretty quick turn-around to me. Also, my migraines virtually DISAPPEARED after eliminating casein (and thus starting on the soy), so I don't know what to think.