Michi8
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What about doing a potato salad instead? It's naturally gluten free, and potatoes are cheap!
I think banana splits would be good for dessert. Or a cheesecake or pie made with gluten free cookie crumbs for the crust. Yum!Michelle
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Can you get a copy of your original blood tests to see the original results and compare to the more recent tests? It's likely that the negative results you're getting now are because of being gluten free for so long.
Michelle
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Welcome Sam!
I'm so glad you were able to find that a gluten free diet is helpful for you. It really is a shame that your doctor didn't recognize the connection between diabetes & celiac...but its good to hear that the doctor is recognizing how this change in your eating habits is helping. Does your doctor want to do any further testing for diagnosis, or is s/he willing to accept diagnosis based on diet?
Michelle
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if it listed wheat, wouldn't it have to list gluten? I mean, they say they list for wheat, but they say nothing about gluten. Wheat free doesn't mean gluten free.
The 8 major food allergens must be listed. Wheat is one of those 8, but not barley, rye or oats. So, no, if wheat is not listed it doesn't mean that it is necessarily gluten free.
However, I am confused as to the brand of ketchup you are talking about. Is it Huntz or Hunt's?
If it's Hunt's, then here is the most up-to-date info on gluten free products from their website (Open Original Shared Link)
Q: Which Hunt's tomato products contain gluten? Do you have a list of products that contain gluten?
A: Most Hunt's tomato products are gluten-free. The exceptions include Hunt's Ketchup and Barbecue Sauce, which contain distilled vinegar made from wheat or corn and may contain trace amounts of these grains. Therefore, they are not gluten-free. Among the 11 varieties of Hunt's Spaghetti Sauces, the following three varieties include an indirect source of gluten (wheat, oats, barley, or rye):
Original Meat
Four Cheese
Italian Sausage
It is always best to read the ingredient statement printed on the label because reformulation occurs from time to time.
Michelle
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Apparently there is a stronger correlation between celiac and alopecia areata than once thought.
A Google search came up with this Pubmed article:
Open Original Shared Link
Celiac disease and alopecia areata: report of a new association.
Corazza GR,
Andreani ML,
Venturo N,
Bernardi M,
Tosti A,
Gasbarrini G.
Department of Internal Medicine, University of L'Aquila, Italy.
Celiac disease is frequently associated with other autoimmune disorders but has never been reported in association with alopecia areata. In a routine clinical practice, 3 patients with such an association were observed. In one of the patients, celiac disease was diagnosed after the occurrence of malabsorption symptoms. In the youngest patient, a 14-year-old boy, gluten-free diet resulted in complete regrowth of scalp and body hair. A prospective screening program for celiac disease using antigliadin and antiendomysial antibodies was therefore set up in 256 consecutive outpatients with alopecia areata. Three patients, all completely asymptomatic for intestinal diseases, were found to be positive and underwent biopsy. Histological analysis showed a flat intestinal mucosa consistent with the diagnosis of celiac disease. The results show that alopecia areata may constitute the only clinical manifestation of celiac disease and that the association between these two conditions is a real one because the observed frequency of association is much greater than can be expected by chance. It is suggested that antigliadin and antiendomysial antibodies should be included in the work-up of patients with alopecia areata.
PMID: 7557104 [PubMed - indexed for MEDLINE]
Michelle
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Alopecia can definitely be connected to celiac disease. Your daughter has only been gluten free just under 3 weeks, so it would not be surprising if her body is still showing effects of gluten ingestion...and it's also possible that she is still getting gluten from something in her diet, perhaps from cross contamination. Keep up with the gluten free diet, and, as suggested by loraleena talk with your doctor about testing for other health problems such as thyroid, vitamin & mineral levels, and other malabsorption issues.
Michelle
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Just another idea to throw in... Have you considered having a "fake" wedding cake for the official cake cutting photos and then having a separate, simple gluten free cake that is served to guests? I've seen it done at weddings here...essentially an elaborately decorated fake cake is rented from a bakery. Instead of cake, you could also choose to serve an entirely different type of dessert to the guests that is naturally gluten free.
One wedding I went to, bride and groom had an enormous "cake" made of profiteroles (called a croquembouche), and each guest was served a couple of those. For my wedding, in addition to a traditional cake, I had a Norwegian cake (Open Original Shared Link) and Ukrainian wedding bread.
The sky really is the limit...you have the option of creating something really unique & memorable that is gluten free...just need a bit of imagination.
Michelle
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I'm glad to know that the SCD Diet has helped you a lot.
I was wonder if you have to have severe D because in every story I read people talking about have D. See I don't have D, I actually have the complete opposite. Is this Diet also good for people with no D?
Yes, it's supposed to be. I really recommend reading Breaking the Vicious Cycle by Elaine Gottshcall. Or at least checking out her website: Open Original Shared Link
Michelle
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I have heard rumors that this was coming, here in Canada, too. It's just a matter of time before the police will show up at the doors of people who won't vaccinate, and forcibly take the kids to be vaccinated. At which point we might as well live in a communist country!
I'm pretty sure it won't be coming to Canada. There is a push to get people to vaccinate now, but the public health nurses (at least here) will stop calling when you say you do not participate in vaccination and would prefer to not be contacted with reminders (there is no religious or medical reason needed here.) It's become easier to say no now than it used to be, I can't see the right to say no being taken away without a big backlash.
Michelle
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Maybe it's not DH.
My back looks identical to this, which is DH
Open Original Shared Link
However when you get closer, I'm noticing that a lot of pictures of Dermetitis Herpetiformis are small bubbley blisters.
My stuff is more of an itchy scab, that happens to be dry and crusty. It can easily be peeled off, and it underneath it's moist (watery) and then takes a few weeks to grab back into a large red mountain scab again.
I think there may be some variation in how DH presents itself, and how severe the outbreaks are. Hopefully your tests give you the info you need. Check out this website for information...they have some good pictures as well: Open Original Shared Link
Michelle
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I'm pretty sure he took a lesion, because he said, "this looks like a good active lesion to take" or something like that. He knew what Celiac was, and he had an a med student with him who started going on about Celiac cases.
I didn't wanna be like, by the way this is how you do a biopsy.
Ok. I'm looking at my back. It looks like he took a sample at the top (most of the bad breakouts are at the bottom-middle of my back).
I see a I looking slight with a sittch over it. I don't see a lesion at all, and the closest red bump seems to be like > < away.
It seems like a long slit, so I have no idea.
It sounds like he took a sizeable sample, but if it is of the lesion itself it will come back negative. Perhaps if the sample taken had health skin too, and the lab is careful to test all of the tissue, you may get a clear result. I've read that the lab also needs to be experienced in testing for DH to ensure that the results are accurate. Unfortunately, not many dermatologists have enough experience in DH & celiac to do accurate assessment.
Michelle
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So hows it sound? Should I expect the Dermatologist biopsy to be the end all test, and is there anyway for a false negative/positive on it?
I figure if it's acne, then it's not Celiac. If it's DH then it's Celiac (is this faulty thinking)?
Has anyone had any experience similar to this?
I think you're right to suspect celiac. Regardless of whether you get neg or pos test results you should definitely continue eating gluten free if it's helping.
In terms of the DH test, it is very possible to get a false negative. If the doctor takes the sample from the wrong spot, you're pretty much guaranteed a negative result. The biopsy must be taken from healthy-looking skin beside the lesion (I believe it's within 3mm) for an accurate result. If you do get a positive for DH, then you definitely have celiac.
Michelle
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I was surprised to see the same product placement at my local Safeway. I pointed it out to the manager, but it didn't make a difference...still placed the same way. I think part of it is about putting specialty items together or keeping the smaller packages on the same shelves. Another issue is that companies pay for specific product placement. The bigger companies have the $ to pay for prime locations, all others get lumped together on the remaining shelf space...usually high up and out of reach.
Michelle
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What I can't figure out is, in this case, having a USD $150.00(ish) genetic test is far cheaper than having me on a gluten challenge, then having me in a hospital day surgery suite, with a surgeon and a nurse, getting an endoscopy done, then having a medical lab process the biopsy. Weird crazyness!!???!!
Except that there is value in endoscopy beyond doing a biopsy for celiac. Visual inspection of the stomach & duodenum may give clues to other issues that are impacting your health, and can guide the doctor in proper treatment. A genetic test, however, may not give you the answers you want...especially if there is a celiac or gluten intolerant gene at play that hasn't yet been "discovered" through research.
Michelle
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Yes, you can get genetic testing done in Canada. Not sure how many labs do it though...and the testing is expensive, so you may find a doctor is reluctant to make a request for it without a good reason to do so (ie, if no one in your family has previously been diagnosed with celiac, then genetic testing would not be ordered for you.) Of course, YMMV, so you may find a doctor willing to back you up on it.
Michelle
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oh im soooo avoiding ff's after the last time i had them at mcdonalds and got sick (they are not gluten free looked on the website) the only place i will eat fries now is New York Fries, cause its all they make there and they use sunflower oil for frying no additives. never thought about condiments though. will stick with the baked potatoe.
There is ongoing controvesy about McDs fries. The fries served in Canada supposedly do not have gluten ingredients, but there is always the risk of CC. Open Original Shared Link
I was really pleased with New York Fries. They had an ingredients list I could check out, and were familiar with celiac...apparently they have a number of celiac customers. What pleased me the most was that their cheese sauce and gravy are gluten free too...I can have poutine there! Yum!
Michelle
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Well this diet help with a bloated stomach?
It should. The point of the diet is to help the gut properly heal.
Michelle
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Smarties are like M & Ms, but they taste a bit different. Wheat is clearly labelled in the ingredients.
When it comes to eating at DQ, however, I consider them one of the riskiest places to eat for any allergies. They do not clean the Blizzard machine well enough between orders to ensure all traces of gluten are gone. Same goes for nut allergies.
Michelle
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I just took "Breaking the Vicious Cycle" by Elaine Gottshcall out of the library, and am interested to hear how many others are doing the SCD too. AFAIK, it's not a hoax...I'll be reading through the book before I try the diet though.
Michelle
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I've seen Thai Kitchen products recommended many times here, so decided to try some...and they are great!
Just wanted to remind others that many, but not all, of their products are gluten free. I mistakenly purchased their Hot & Sour Rice Noodle Bowl without carefully reading the ingredients list. This is one of their products that does contain wheat, as I found out just before I went to prepare it (made sure I checked the list again!) My spouse will get to eat it for lunch instead.
Michelle
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Something does look different on them, and it is hard to put your finger on it.
I think Blake or Jordin as well, but present themselves well and have talent.
Lakisha stands very stiff and sometimes looks very annoyed. As for Melinda one of my coworkers summed it up, they just cannot stand to look at her, in my honest opinion I cannot see her as the next Idol because she does not have the look. Can you imagine the celiac disease cover? I look at those things. Maybe I am just shallow.
I was trying to figure out what you meant by "celiac disease cover"...took me a minute to translate it to C D...darned forum filter! LOL!
Of all the singers I see Melinda and Jordin being the most likely to win. I can see Melinda being on a C D cover. There are a few successful artists out ther who don't have the typical "look." It all depends on the photography and graphic design to bring the cover together. Jordin does have the "full package" though...and she is so young, she's really got potential for capturing the younger audience and has opportunity to really grow/mature.
Michelle
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The other thing that helped my youngest was exercise (seriously!). My first two were boys and ran around like cranzy, and didn't have problems. She was content to sit for hours playing with toys, but not moving off her bottom. Things did improve a lot after I started taking her to the playground twice a day and having her run around (not just sit on the swing).
I'm sure that wouldn't be nearly enough to solve the problem for you guys, but it might add a little bit of help...
Thank you for the suggestion. My son is definitely not a natural at most sports, so it takes some effort to get him out to really play. His passion is reading and writing, so even when he's outside, it's tough to get him moving. Having a trampoline in our yard helps get him out there more.
He is also a big guy...not fat, but we know he will be a big man (tall, big bones.) He gained weight very quickly as a baby (20lbs at 6 months on breastmilk alone), and has always been one of the biggest kids in the class.
That said, he is good at swimming and swam 2 hours per week over the winter. He is also good a skiing, and we were able to take full advantange of having lift passes at the local hill this winter. Soon he will be starting baseball and is back into swim lessons once per week until the fall when he'll go back to 2-4 hours practice per week.
All three of our kids have participated in activities outside of school year-round: gymnastics, soccer, basketball, baseball, swimming, skiing, dance, wall-climbing. They each must pick at least one sport per season.Michelle
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mood changes, slurred speech, gross motor delays......now my son already has a few delays in speech and motor but when he's on PEG it's so much worse...the minute he's not taking it everything that was messed up (besides bowels) go back to his norm. Read the insert it says not tested long term on children and not to use for more than 2 weeks.....so I guess taking it on and off for 3 years must not be good.....I so want him off of it....
I thought I was crazy but apparently there are tons of people having simular side effects that the FDA isn't listing. I found a ton of people through a yahoogroup on it.
That's interesting. There is no insert for the product we have...it gets prepared at a compounding pharmacy. I will check out Miralax some more online.
We're certainly not seeing any such side effects for my son, and he has had no mood changes. However, he is somewhat lethargic, but it goes hand in hand with his slow bowels...I think whatever is the root cause of that is impacting his energy levels overall. We did see some energy improvement when we did a short dairy free trial. We will be trying a thorough elmination diet, especially focusing on gluten and dairy to see if there are improvements.
Michelle
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Yes, constipation can be a symptom. Some have only constipation, some switch between constipation and diarrhea, some only have diarrhea and some have no GI symptoms at all. There is a very long list of possible symptoms associated with celiac disease and/or gluten intolerance.
I recommend checking out the book Celiac Disease: A Hidden Epidemic by Dr Peter Green. It is very informative and current about signs & symptoms, diagnosis, associated auto immune disorders and treatment.
Michelle
I think banana splits would be good for dessert. Or a cheesecake or pie made with gluten free cookie crumbs for the crust. Yum!
New Study On Rice And Arsenic Poisoning
in Coping with Celiac Disease
Posted
We don't know the safety of rice from other countries though. There could be arsenic or other contaminants in their products as well. For example, rice protein and wheat gluten contaminated with melamine coming from China. (Open Original Shared Link)
There is potential contamination with all sorts of foods beyond rice too. Then add on air pollution, local pesticide spraying, chemicals in household goods, etc...we're getting poisoned in all sorts of ways.
Michelle