Michi8
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So an hour after eating, I ended up feeling absolutely exhausted (a nap didn't help) and irritable...and had absolutely no patience for my kids. Now I've got an upset stomache. Is this a typical gluten reaction?
Michelle
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Hi there,
Just wondering how quickly aphthous ulcers show up after ingesting gluten? I'm still consuming gluten until I have my biopsy at the end of next month. I've pretty much always had some problem with mouth ulcers and canker sores (they come and go), but hadn't paid much attention to what triggers them, just that they are a common symptom of celiac, and one of many symptoms I have.
Today, within seconds of taking a bite of my sandwich, I developed an ulcer on my left cheek and have a sensation of a canker sore or two developing on my tongue. Do these sore spots usually show up this quickly when reacting to wheat products, or could it be something else causing this?
Michelle
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I am getting braces next week ... fun, but my TMJ is feeling much better, and this is the next step.
My ortho wants me to take atropine to dry out my mouth 30 min. before my appt. Anyone know if it's gluten-free? Anyone with any experience taking this, it doesn't sound good to me ...
Sorry, no experience with it. I also don't remember having to take any drug like that when I had braces put on. Is it common practice now?
Michelle
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I don't remember if I've posted in this thread or not.
I'm in Central Alberta.Michelle
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as far as any b vitamin goes, it can help right away or take a few weeks to help as much as it will. you should the subtler affects sooner. but it can't hurt, so i wouldn't stop.
I pray that B12 is never a definciency for me...since I'm allergic to cobalt, I can not take any type of B12 supplement. I haven't been able to find any info on treating B12 definciency in this regard. I assume that it would need to be treated with diet alone.
Michelle
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Do some people just not have a memory? Do they just not take much interest in others? How hard should I kick my boyfriend in the shins for not saying something?
Some people can't think beyond themselves, and really cannot even grasp being unable to eat something, especially if they have none of their own allergy/intolerance problems. Take my dad for example...I've had a peanut allergy since childhood, yet he would forget and bring home treats for the family that obviously had peanuts in them. Gosh he must have felt awful to see the hurt look on his little girl's face (and then he'd return to the store to get me something too.)
Michelle
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So, do you ever feel like your in-laws just think your over-reacting at times? I think somethimes i feel like that's what they think of me...it makes me feel like a piece if cra*
I do. Apparently I'm the family hypocondriac. That goes for my own parents too.
Michelle
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I'm the only one in my family who's been tested celiac yet. But my mom recently told me that when she was carrying me she had a strange, itchy, angry rash EXACTLY as you have described, all over her abdomen and thighs. She only had it with me. Because of my genetic testing I DO know that she has at least one celiac or gluten intolerant gene because I have two. Not sure if this is relevant, but I thought it was interesting when she told me.
That's interesting to hear! My SIL had horrible PUPP on her abdomen that spread to her limbs. She was so itchy and uncomfortable for the last trimester because of it. Her baby daughter has had a lot of problems with dairy and oats (apparently she's outgrown both of those allergies since?!) and now, at 2 years old, she is always sick, and looks sickly and has problems with what is either eczema or fungus. Her father (my brother) has had numerous problems with GI health and other illnesses...I know he needs to be tested for celiac...and I bet his daughter needs to too! Alas, everyone is waiting to see what my test results reveal before proceeding down the path of testing.
Anyway, I do wonder if SIL's PUPP has anything to do with her daughter's health issues?
Michelle
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If I may add to Cheri's list:
1 egg
= 2 tablespoons oil plus 1 tablespoon water
or
= 1 teaspoon constarch lus 3 tablespoons more liquid in recipe
I got this info from a book titled Substituting Ingredients: An A to Z Kitchen Reference by Becky Sue Epstein and Hilary Dole Klein. It's very helpful for substituting all sorts of ingredients, plus has guidelines for subsituting dried herbs for fresh, has lists of measurement equivalents, and recipes for natural, homemade cleaning products.
Michelle
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Scratch or patch tests don't test for foods we eat. Those only show how our skin reacts to substances. We don't put food under our skin. We put it into our stomaches which sends it on to our intestines which produce antibodies which leak into our blood. So stool (intestinal antibodies) or blood tests more accurately test delayed reaction (IgG or IgA) food allergies.
Yes, scratch testing does test for foods we eat. Food that we react to when eaten can also induce an allergic response when it touches any mucous membrane or open spot in the skin (it's the same histamine response.) For example, I react to apples when I eat them. I also react to them if I touch the juice of an apple and then mistakenly touch my eyes. I have the same allergic response to foods as I do to danders and pollens. The difference is that I don't eat dander or pollen, so I don't have the oral response, and I try really hard not to get food allergens in my eyes. Scratch testing was very helpful for me, it gave me an accurate picture of what my allergens are.
Michelle
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Okay folks, my life has gotten a bit to full (and my roommate a bit too pissed off about lack of space in the fridge) for me to be effective doing a rotation diet to figure this stuff out right now.
My student insurance this semester doesn't cover allergy testing, but there'll be a new policy next semester that may cover some of it.
What are the options for getting tested for other food allergies and intolerances? How much do they cost? Are any of them "affordable" (in the sense that the $360 Enterolab test was a wise use of my money even though the insurance didn't cover it) if I decide to do something on my own? How accurate do they seem to be?
You can do the scratch test, and/or patch testing. That will give you an idea of your allergies, but will not show if you have intolerances. The scratch test will show allergies to foods, pollens, molds, dander, etc. Patch testing shows allergies/sensitivies to chemicals, metals, minerals, etc.
I'm not sure of the total cost, though. Our provincial health plan covers standard visits to any doctor/specialist, but does not cover the cost of the actual testing supplies. I believe I paid around $30-$50 out of pocket (extended health plans don't cover the supplies either) for scratch tests. For my patch testing, I paid $90 out of pocket.
Michelle
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I make buckwheat pancakes almost every weekend. I don't like straight buckwheat, it tastes too "healthy" for me so I do about 1/3 buckwheat, 1/3 rice flour, 1/3 random mix of flax meal, soy and potato starch.
Far from healthy when it's got bacon and drippings in it! LOL!
Michelle
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Here is the recipe!
Buckwheat Kasha
2 cups buckwheat groats
1/2 teaspoon salt
1 tablespoon butter
5 cups water
Spread buckwheat groats in a pan and place in a slow oven (250F to 275F). Heat, stirring occassionally, until the groats feel dry to the hand and are very lightly toasted. This gives kasha a pleasant nutty flavour.
Combine buckwheat with water, salt and butter. Boil for 15 minutes, then put the pot in a 350F oven. Bake for 30 minutes, lower to 300F and bake 30 minutes more. Kasha may be served with scalded milk as a cereal, or served with a sauce, or with fried, diced bacon and onions.
(Alternately, you can cook them with bacon drippings instead of butter, and/or can cook them in a pot on the stove instead of putting in the oven.)
Michelle
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Buckwheat's definitely gluten free, but for some, an aquired taste. I'm not a huge fan of kasha straight up - as I've prepared it so far. But I mix buckwheat flour in some of my recipes.
I suppose it may be an acquired taste. I grew up eating it (it's essentially served with a meal just as rice is) and absolutely love it! Love lots of other Ukrainian food too, except for studenets (headcheese/pigs knuckles) will never, ever get used to that stuff. Blech!
Michelle
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Yes, smoking does affect your bowel movements. It also apparently has a protective effect on the gut in terms of celiac (according to some studies)...but that effect is completely negated by the fact that it can cause so many cancers and other health issues.
Once you have quit for a long enough time, your bowels should no longer need the help of cigarettes. You could always take up drinking coffee instead...it helps bowel movements too.
I quit smoking 10 years ago (before I had kids) and am very happy I did...now I can't even stand being around smoke!
Michelle
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ok...my body gave my my own answer,.....
I am burping like crazy and coughing now....and I thought I was doing ok.
It's certainly not gluten....but it obviously doesn't agree....
That quick though...within 20 min???
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I'd still ike to hear what people have done with it....or have experienced with it.
Buckwheat that is.....
You can make buckwheat kasha (a Ukrainian dish) with it. It's got a kind of nutty flavour...you roast the groats before cooking it with water (there's also butter or bacon fat and salt in it.) My mom makes with with pieces of bacon too (yum!) If you're interested in the recipe, let me know and I can type it up. BTW, I've also got a recipe for baked millet kasha.
Michelle
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Ok I just read the last posts in the "cold" thread... as far as I can see, in the last posts people were actually apologizing to each other, making up, and at least up to a point agreeing with each other.
Sure there was a somewhat heated argument but people did listen to each other and not just resort to name calling but actually argue about facts. I think really that's all one could ask for on an internet forum.
I don't usually even post on threads about threads because in my experience, it's not possible to control what other people do anyway. But that happened to be one of the more informative discussions here over the last couple days and I think it's a bit unfair to say that it was just "bickering".
Now if I start a thread about anything, sure at some point I might think that the tread is going in a direction that I didn't originally intend. But that's the thing with discussion boards, no one person can control what happens when thousands of people get together and start talking.
The only way to have a place that I can control would be to set up my own discussion board that I moderate tightly to include only people who say what I want to hear.
Personally I prefer it here. Pauliina
Thank you, Paulina. Being one who was apparently "bickering" in that thread, I thought that it all got sorted out, and was "cool." And I actually learned some new stuff in that forum that I will likely try.
I personally appreciate hearing different points of views and especially appreciate when someone backs up what they are saying with further information. Yes, sometimes things can be misconstrued and discussions can become heated, but that is the way with any public forum...especially when it's not face to face. If anyone thinks that it only happens here, then they apparently haven't been around many forums.
If a poster really doesn't want others to put their 2 cents in, then it needs to be stated at the beginning of the thread. The other option is to click "ignore" if you don't want to hear anything from a particular member.
Michelle
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I mean I did wash...but not up to my elbows or anything like that....
but I did'nt do anything extra to be protective....because I had no idea!
I was shocked,,,,,
I am just being paranoid by wanting to go get a box of plastic gloves tomorrow...for that and a few other things around the house??
I don't think using gloves is paranoid. I use them for my fish tank...especially for cleaning.
Michelle
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I have been dipping my hand in fish food every day.....
just my finger tips...sna never thought it was necessary to wash my hand in scalding hot water....
Lo and behold.....it has wheat gluten in it....
Its not possible....for this to affect a celiac is it???????????????
Sure, if you didn't wash your hands after touching the fish food. It's good practice to wash your hands after handling anything aquarium related (celiac or not) because of the risks of disease (salmonella or fish TB for example...although TB is extremely rare!) Blood worms are also a high risk for allergic, possibly anaphylactic, reaction.
Michelle
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Hi All!
This is my first post so if I am not doing this right then sorry!
I just have a question about testing. I had the celiac blood test over 2 weeks ago--not sure which (the dr. had antigliadin or something similar written on the paper and the blood lady took 1 vile of blood) and I am wondering how long does it take to receive the results? I am a very impatient person when it comes to results! I called after 1 week, then 2 weeks (no results yet) and then again yesterday and the dr. is on vacation until the 10th of October! Does anyone know if I can call the place that took the blood and find out? (I am in Canada and had the blood taken through MDS). Also, would 1 vile of blood be enough for the celiac tests needed?I have been through a living nightmare with these symptoms (nausea, dizziness after eating, EXTREME fatigue, chronic gastritis, brain fog and many more) and testing to figure out what is wrong and would just like to be back to normal again--whatever that is?!
Anywho, thanks for listening and sorry if this is too long!
~Donna
I'm sure the length of time it takes to get results differs from province to province. And I'm sure that office policies vary too.
I know that my doctor's practice will only call with a positive test...if I really want to know more info, I can call the receptionist and get some basic info on whether the tests have come back, and whether it was a positive or negative result. Otherwise, I know I can also get info through another doctor. For example, when my son had been tested for mono (test requested by our family doctor) earlier this year, the doctor in emergency (we were there for severe tonsilitis) was able to check the results through the Capital Health computer network and confirm it was actually mono.
Michelle
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So interesting! My water broke, too! It's all such a mystery, but the thought occured to me only recently connecting celiac disease to the c-section. It probably was a time issue, I agree, but it's interesting to hear your comments.
PROM (premature rupture of membranes) can possibly be related to celiac in that a vitamin C deficiency can lead to weaker membranes. That said, lots of women have PROM in absence of celiac disease. Time is a constraint with practitioners after ROM...most want delivery within 24 hours. However, as long as foreign objects (such as with vaginal exams) are not introduced (reducing the risk of infection) a woman could go much longer before delivery is necessary...thus giving the body a chance to go into spontaneous labour. Sometimes, given time, slow leaks can even repair themselves. I know of women who have safely gone days after ROM before labour started (baby is simply monitored for health & distress, but no vaginal exams are done) and amniotic fluid is naturally replenished on an ongoing basis.
Michelle
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Am I missing something? I thought those were past threads.
I'm not sure. I think this has to do with not discussing/arguing with anyone but the thread author, and only if it's about Snickers? LOL!
Michelle
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Isn't it so frustrating!?! They tell you they're making it better, but they are only making it worse. Will regular spray bottles work for oil, or do I need a special one?
It's a "special" design where you pump the lid to create pressure, and then use the spray nozzle for a fine mist. These bottles are typically sold in specialty kitchen stores, but you may be able to find them in dept. stores as well. The bottle I use is called Open Original Shared Link.
Michelle
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After my first child I was diagnosed with celiac disease. Toward the end of my pregnancy I had TERRIBLE symptoms, so I know my celiac started beforehand. I was induced on her due date and I did not progress at all-- not even 1 cm after the whole day of pitocin and the like. At the end of the day, my doctor performed a c-section because of failure to progress (I felt like I failed a class!).
Now we're pregnant with #2, and planning to have a c-section and I've started thinking about the first a bit more. I've read that many celiac women had to have c-sections, but I gathered many of them were because the placenta wasn't healthy, etc. but does anyone think there could be a valid connection with "failure to progress" and untreated celiac? I'd appreciate ANY comments. Thanks.
Congrats on your second pregnancy!
It's a tough thing to figure out. c/s can happen for so many different reasons. I suppose it is possible that celiac can lead to c/s due to FTP. But one has to look at each individual case to determine the reason for a birth resulting in surgery. Induction, regardless of a mom being celiac or not, often results in surgery because it simply wasn't time for baby to be born yet...and no amount of pitocin will make a difference except to stress baby & mom's body.
I recommend checking out ICAN (International Cesaerean Awareness network): Open Original Shared Link for information, support, etc. You may find some of the info you are looking for there. At the very least, you'll find lots of moms who have BTDT with c/s.
https://www.celiac.com/uploads/emoticons/default_smile.png' alt=':)'> BTW, if you are looking for a good way to work through healing from your first birth experience and to positively prepare for your second, check out Birthing From Within classes in your area: Open Original Shared LinkMichelle
who's BTDT with 2 c/s and then a home VBAC
I'm in Central Alberta.
https://www.celiac.com/uploads/emoticons/default_smile.png' alt=':)'> BTW, if you are looking for a good way to work through healing from your first birth experience and to positively prepare for your second, check out Birthing From Within classes in your area:
Aphthous Ulcers
in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Posted
A food log is a good idea.
I'm suspecting the bread, because it was whole wheat with wheat berries (and the mouth ulcer happened immediately)...the filling was tuna salad that I prepared myself and know the ingredients.
Michelle