Michi8

Ok I just read the last posts in the "cold" thread... as far as I can see, in the last posts people were actually apologizing to each other, making up, and at least up to a point agreeing with each other.

Sure there was a somewhat heated argument but people did listen to each other and not just resort to name calling but actually argue about facts. I think really that's all one could ask for on an internet forum.

I don't usually even post on threads about threads because in my experience, it's not possible to control what other people do anyway. But that happened to be one of the more informative discussions here over the last couple days and I think it's a bit unfair to say that it was just "bickering".

Now if I start a thread about anything, sure at some point I might think that the tread is going in a direction that I didn't originally intend. But that's the thing with discussion boards, no one person can control what happens when thousands of people get together and start talking.

The only way to have a place that I can control would be to set up my own discussion board that I moderate tightly to include only people who say what I want to hear. Personally I prefer it here.

Pauliina

Thank you, Paulina. Being one who was apparently "bickering" in that thread, I thought that it all got sorted out, and was "cool." And I actually learned some new stuff in that forum that I will likely try.

I personally appreciate hearing different points of views and especially appreciate when someone backs up what they are saying with further information. Yes, sometimes things can be misconstrued and discussions can become heated, but that is the way with any public forum...especially when it's not face to face. If anyone thinks that it only happens here, then they apparently haven't been around many forums.

If a poster really doesn't want others to put their 2 cents in, then it needs to be stated at the beginning of the thread. The other option is to click "ignore" if you don't want to hear anything from a particular member.

Michelle

I mean I did wash...but not up to my elbows or anything like that....

but I did'nt do anything extra to be protective....because I had no idea!

I was shocked,,,,,

I am just being paranoid by wanting to go get a box of plastic gloves tomorrow...for that and a few other things around the house??

I don't think using gloves is paranoid. I use them for my fish tank...especially for cleaning.

Michelle

I have been dipping my hand in fish food every day.....

just my finger tips...sna never thought it was necessary to wash my hand in scalding hot water....

Lo and behold.....it has wheat gluten in it....

Its not possible....for this to affect a celiac is it???????????????

Sure, if you didn't wash your hands after touching the fish food. It's good practice to wash your hands after handling anything aquarium related (celiac or not) because of the risks of disease (salmonella or fish TB for example...although TB is extremely rare!) Blood worms are also a high risk for allergic, possibly anaphylactic, reaction.

Michelle

Hi All!

This is my first post so if I am not doing this right then sorry! I just have a question about testing. I had the celiac blood test over 2 weeks ago--not sure which (the dr. had antigliadin or something similar written on the paper and the blood lady took 1 vile of blood) and I am wondering how long does it take to receive the results? I am a very impatient person when it comes to results! I called after 1 week, then 2 weeks (no results yet) and then again yesterday and the dr. is on vacation until the 10th of October! Does anyone know if I can call the place that took the blood and find out? (I am in Canada and had the blood taken through MDS). Also, would 1 vile of blood be enough for the celiac tests needed?

I have been through a living nightmare with these symptoms (nausea, dizziness after eating, EXTREME fatigue, chronic gastritis, brain fog and many more) and testing to figure out what is wrong and would just like to be back to normal again--whatever that is?!

Anywho, thanks for listening and sorry if this is too long!

~Donna

I'm sure the length of time it takes to get results differs from province to province. And I'm sure that office policies vary too.

I know that my doctor's practice will only call with a positive test...if I really want to know more info, I can call the receptionist and get some basic info on whether the tests have come back, and whether it was a positive or negative result. Otherwise, I know I can also get info through another doctor. For example, when my son had been tested for mono (test requested by our family doctor) earlier this year, the doctor in emergency (we were there for severe tonsilitis) was able to check the results through the Capital Health computer network and confirm it was actually mono.

Michelle

So interesting! My water broke, too! It's all such a mystery, but the thought occured to me only recently connecting celiac disease to the c-section. It probably was a time issue, I agree, but it's interesting to hear your comments.

PROM (premature rupture of membranes) can possibly be related to celiac in that a vitamin C deficiency can lead to weaker membranes. That said, lots of women have PROM in absence of celiac disease. Time is a constraint with practitioners after ROM...most want delivery within 24 hours. However, as long as foreign objects (such as with vaginal exams) are not introduced (reducing the risk of infection) a woman could go much longer before delivery is necessary...thus giving the body a chance to go into spontaneous labour. Sometimes, given time, slow leaks can even repair themselves. I know of women who have safely gone days after ROM before labour started (baby is simply monitored for health & distress, but no vaginal exams are done) and amniotic fluid is naturally replenished on an ongoing basis.

Michelle

Am I missing something? I thought those were past threads.

I'm not sure. I think this has to do with not discussing/arguing with anyone but the thread author, and only if it's about Snickers? LOL!

Michelle

Isn't it so frustrating!?! They tell you they're making it better, but they are only making it worse. Will regular spray bottles work for oil, or do I need a special one?

It's a "special" design where you pump the lid to create pressure, and then use the spray nozzle for a fine mist. These bottles are typically sold in specialty kitchen stores, but you may be able to find them in dept. stores as well. The bottle I use is called Open Original Shared Link.

Michelle

After my first child I was diagnosed with celiac disease. Toward the end of my pregnancy I had TERRIBLE symptoms, so I know my celiac started beforehand. I was induced on her due date and I did not progress at all-- not even 1 cm after the whole day of pitocin and the like. At the end of the day, my doctor performed a c-section because of failure to progress (I felt like I failed a class!).

Now we're pregnant with #2, and planning to have a c-section and I've started thinking about the first a bit more. I've read that many celiac women had to have c-sections, but I gathered many of them were because the placenta wasn't healthy, etc. but does anyone think there could be a valid connection with "failure to progress" and untreated celiac? I'd appreciate ANY comments. Thanks.

Congrats on your second pregnancy!

It's a tough thing to figure out. c/s can happen for so many different reasons. I suppose it is possible that celiac can lead to c/s due to FTP. But one has to look at each individual case to determine the reason for a birth resulting in surgery. Induction, regardless of a mom being celiac or not, often results in surgery because it simply wasn't time for baby to be born yet...and no amount of pitocin will make a difference except to stress baby & mom's body.

I recommend checking out ICAN (International Cesaerean Awareness network): Open Original Shared Link for information, support, etc. You may find some of the info you are looking for there. At the very least, you'll find lots of moms who have BTDT with c/s. https://www.celiac.com/uploads/emoticons/default_smile.png' alt=':)'> BTW, if you are looking for a good way to work through healing from your first birth experience and to positively prepare for your second, check out Birthing From Within classes in your area: Open Original Shared Link

Michelle

who's BTDT with 2 c/s and then a home VBAC

Anyone know if the teething tablets have gluten in them or not.... DD needs them and I forgot to call yesterday

TIA

I'm not sure if they're gluten-free, I do know that they have latose in them. Maybe check out Boiron's homeopathic teething product, Camilia: http://www.boironusa.com/index.pl/prod/sp?...p;terms=camilia I found they were as effective as Hyland's, but was much easier to give, since it's in liquid form.

Michelle

I knew chromium was in vitamins, but didn't know it could be a potential allergen. And cobalt and nickel? Yikes, I already know I'm severely allergic to nickel at least skinwise. What kinds of foods is it in?

I should clarify...cobalt is in a lot of products, but I don't know about it in foods (except in vitamin B12 supplements.) Nickel is found in multi-vitamins just as chromium is. Nickel naturally occurs in many foods and water (tap water especially), and at natural levels is supposedly harmless. Canned foods have higher amounts of nickel, and nickel can leach out of cooking utensils into foods (so can chromium.) I have a list of foods to avoid, but it is rather long to type out here. You can do a google search, though, for more info. Like I said, I am still wrapping my brain around it, trying to figure out what amount of exposure is safe for me...I've just found this info out after struggling with many years of skin sensitivity and food allergies.

Michelle

I can only answer from my own experience but for me hives were part of the skin effects I would get. Pressure from my clothes or just running a fingernail across my skin would raise big itchy welts. This did go away after I was gluten free, unless I get a good glutening. I don't know if it was gluten specifically that was causing it though. My skin testing showed me to react to everything tested for except beech trees. He put me on an elimination diet that day, he later said my exteme sensitivity clued him in as to the possiblity of celiac but he didn't mention it at the time. The diet confirmed his suspisions. My allergies calmed down quickly after I had been gluten-free a few months and eliminated it from toiletries and bath products. I shudder now when I think of how many oatmeal and wheat germ oil soaks I did prediagnosis to relieve my DH and the itching from the hives.

I like to hear that gluten-free can calm allergies! I'm hoping that I will experience the same...I'm so tired of being sensitive to so many things! Right now, I'm trying to wrap my brain around my nickel, chromium & cobalt allergies...they're in so many everyday products (including vitamins & foods!) that I'm not sure how to eliminate exposure...and wonder if when I do get a handle on it, if I will see a dramatic improvement?! Next step will be gluten-free (after my biopsy.)

Michelle

My problem was that I didn't know what AFAIK means. Sorry about that. And as I mentioned I was trying to be cocky...(funny). Yes the letter from the FDA, that's why I posted the link to Dr. Mercola's video. You should listen to the video. It will explain the evilness...

I'm on the same page with you there...government regulatory bodies are not there to protect the public so much as to further the interests of business. I take the claims of both modern medical organizations and traditional/natural medical organizations with big grains of salt (they both have products to sell.) However, I do think that the best medicine combines all types of health care whether they are modern or traditional/natural.

BTW, the Cold-FX product I mentioned is a popular product made with Ginseng. Apparently it has had good results in studies (for both preventing and treating colds & flu), and a lot of people swear buy it. Check it out here: Open Original Shared Link Be sure to look at both the American and Canadian pages, they may present info differently due to FDA vs. Health Canada regulations. And here is the link to the clinial trial info: Open Original Shared Link

Alas, I do not know if it is gluten free, as it does not say on their website or on the bottle.

Michelle

If you are interested in using a spray, but are concerned about CC with Pam, you can get a non-aerosol spray bottle for spraying any cooking oil:

Open Original Shared Link .com/Oil-Sprayer-Stainles...k/dp/B0000VLMU6

This particular one is pricey, but you can get cheaper versions. I have one that is plastic.

Michelle

Yes it did look like you were referencing my post Michi8, since you posted right after I said elderberry kills the cold, flu and pneumonia virus and I felt you were being rude to me, but I didn't mention that in my post. I have a dry sense of humor that sometimes gets misunderstood.

It's time for people to understand that drug companies are manipulating doctors all the way to the FDA and here is a video clip by Dr. Mercola that I found that explains it.

Open Original Shared Link

I'm sorry you thought that, but I did say that "AFAIK" (as far as I know) there wasn't a cure. I did not say you were wrong at all, so I fail to see how what I said could be rude.

Elderberry sounds promising, but it still doesn't sound like a cure (and, yes, I did do some reading and searching on it...the studies sound interesting, but were of a pretty small scale.) I also had a hard time finding anything come up that wasn't from a homeopathic perspective, although there was some interesting stuff on Medline, including information on the allergy potential of elderberries. I also found a Warning letter from the FDA to a company selling elderberry products with claims that were beyond the scope of herbals.

Michelle

No hair dye or highlighting yet! Thanks for the bits of info....maybe it is a combination of several things. She had chicken pox last year - 3 years after the Varceilla vacination and she's a little Scotch-Irish. Throw in juvenile diabetes, celiac and stress. I took her to a General Practitioner who prescribed the antihistimine and steriod. Not sure if I should take her back or who I should see. Again thanks, we'll keep reading labels and writing down when she breaks out.

You may want to take her to see a dermatologist and/or allergist who is experienced in treating children. Hives are typically a reaction to something...whether it's something that has touched the skin or has been ingested. It may be worth doing allergy testing to try to narrow down the culprit(s).

Michelle

Yes there is. Come up to the millenium... Or did you not read my post?

I said don't take my word for it. Try it yourself before you start saying "there is no cure for the cold"

Hmm, I wasn't replying to you or referencing your post. So why would you respond to me so rudely?

Michelle

AFAIK, there isn't anything that cures a cold (though some people swear by Cold FX.) However, you can try to ease the symptoms. Pretty much every cold med on the shelf has Pseudoephedrine hydrochloride in it, which can help dry up secretions, but it can also cause insomnia (too much of it gives me the shakes too). Personally, I find that every cold I have turns into a sinus cold with horrible sinus pain/headaches. My treatment of choice includes pain relief just to get through it.

Michelle

Thanks shai76

That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?

It could be. I've never seen a "Twin EpiPen"...is it a double injection kit? My son's epipen is the standard adult dose, single injection. Because he has a penicillin allergy I only buy and carry one epipen at a time...it expires before it's needed, because it's pretty hard to get penicillin accidentally (although I really need to advocate for my son with doctors, because they prescribe penicillin without thinking.) I really need to get my son a medic alert bracelet instead, as I think it would be way more helpful if he ever needed medical attention in an accident away from home and family.

Michelle

really? thats very exciting. im starting to get sick of my boring breakfasts. do you have a particular favorite yogurt? i hear most of the flavored ones contain gluten.

I don't have a particular favourite, and am not gluten-free yet (have to wait until after my gastroscopy in November) so I can't recommend a particular brand...though, as Autumn mentioned, Yoplait is supposed to be a good brand for gluten free diets.

Michelle

It has been 5 or 6 days since my last post here, and I just wanted to tell you that I have made an appointment with a gastroenterologist to be tested, but here's what's interesting: Ursula mentioned that amenorrhea is a sign of malnutrition. I hadn't considered that, for some reason. I didn't want to experiment with a gluten-free diet because I want accurate lab results, but I wanted to counter the possible effects of malnutrition, so I started taking twice the normal dose of my prenatal vitamins (I take prenatals because up till last month I was breastfeeding, and because I don't use protection there's always the off chance I could get pregnant) and about 24 hours later, I had no more diarrhea. And I haven't had any in several days, since Friday, in fact. The fact that the prenatals appear to have curbed my diarrhea makes me believe even further that I have at the least some sort of malabsorption problem. I am just antsy now to be tested and find out for sure how to change my diet.

I still haven't ovulated, though.

Caryn

Do your prenatals have iron in them? Iron can be very constipating, and could make the difference with diarrhea...and you don't necessarily want to trade one issue for the other. Also, be careful with taking a double dose of vitamins, as some vitamins can be harmful in larger doses.

Michelle

I know they say never to put the baby on his tummy, but putting the baby on his tummy on top of me was the only way we got ANY sleep.

Sometimes the rules gotta change when you're dealing with a reflux baby.

I would think tummy sleeping on mom would be a fine exeption to the rule, because you're right there to help if baby has issues. Besides, sleeping with mom helps to regulate baby's breathing and heart rate...makes a big difference for preventing SIDS.

Michelle

Hi,

I have a daughter going through the same thing, she is 11 weeks tomorrow...and she too is on prevacid, but is on 7.5mg 3x a day...she needed it upped after a few weeks of 7.5mg 2x/day (the 15mg solutab cut in half) she has been on it since 2.5 weeks old (zantac did nothing) mylicon drops actually made it worse for her, but I have heard that works wonders for other kids.-she is also on nutramigen as she was 3 weeks early and a c-section so I had supply issues from the start (my milk didnt come in till day 6 and she was already down over 15% of her body weight) Her issues started from day one...if you were holding her she was fine, the minute she was laying flat, screaming non-stop....only this week has she been able to "play on her back for a few minutes"

I agree with the babywearing--it saved my sanity, and still does....also she only sleeps in a her carseat, in her swing or on me...the wedges dont seem to elevate her enough...she has slept on her tummy, but only short bits, she sleeps best in her carseat....sad I know, but hey if it works.

THe other thing is the timinig of prevacid...its best on an empty stomach and then followed by eating a half an hour later...total pain in the a@@ but when I do that it seems to help the most...

good luck!

Shannon

Noah 2yr old celiac

Audrey 11 weeks reflux/GERD

Do be careful with sleeping too often in the carseat or swing, it is not good for a developing body/spine to be in the same position all the time (plus babies get so used to sleeping in a seat that they have difficulty sleeping anywhere else.) Sleeping in a sling is better as it mimicks the position in the womb. But just like adults, babies do need some freedom to move in their sleep too.

Michelle

Oh yes, hyperactive letdown, now that is fun stuff right there! Another trick for this is to nurse your baby with the baby up from the breast or laying on top of the breast with you in a reclined position. This causes the forceful letdown to have to fight gravity and also if the baby is on top of a reclined breast the extra milk will "pool" around the breast inside the baby's mouth and they can drink as needed. I used this method, I also would detach Michael at the moment of letdown, let it spray into a burp cloth and once the pressure reduced and it wasn't spraying anymore I would latch him back on. This prevented Michael from gulping and getting to much air on top of everything else.

Also Mylanta Cherry Supreme is a wonderful thing. I would give Michael 1-2 teaspoons of Mylanta (per directions from the ped gi) when he was refluxing and it would calm him immediately!

There is another website www.marcikids.com or the Midwest Acid Reflux Childrens Institue. They have the proper mathmatical equations for medicine dosing based on weight. I highly recommend this site as well.

Feel free to PM me if you would like to hear more about Michael and how we got through the last 20 months!

Yes, hyperactive letdown is a challenge. I always seemed to produce way too much all at once. Took my kids a while to figure out how to deal with it...turns out they had to adjust their latch to control the flow. The lacation consultant commented on the "poor latch" when my daughter was born, but it was obvious it was a way of coping with the milk...made nursing uncomfortable for the first couple of weeks (ouch!) but all worked out fine over time.

Laying down in bed to breastfeed seems to help too. My kids had much less trouble with spitting up when we breastfed that way. I could get a nap in at that time too.

Michelle

Thanks for all the suggestions everyone!

We have an exercise bike but that leaves my knee in pain (I think the doc said my knee cap goes slightly off track when i bend my leg so i'm starting to build up the inner muscle which keeps it in place with the special exercises). I've very keen on the swimming idea so i'll see if theres any deep indoor pools nearby....otherwise i might have to brave our pool *gasp!*

The pilates thing sounds good too, is there any chance of replicating the exercise without the machine?

You can do mat pilates (on the floor) and also on an exercise ball. There are all sorts of videos available, but I highly recommend taking a mat class to get the basics down. Pilates is excellent for working on your core strength...and strenthening your stomach muscles to properly align and support your body.

Michelle

Thanks for the recipe. It's good to know I'll be able to make gluten-free lefse when I finally need it! Do you happen to know if you can make gluten-free klub too? If I can make both of these items gluten-free, then maybe my husband won't be so resistant to trying the diet along with me!

Michelle