Michi8
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They say spice mix is allspice, cinnamon, colves, ginger, and nutmeg.
Marcia, thanks for your reply. Does your daughter know for sure what causes her reactions? This is all very confusing for me as I am not 100% sure what caused the reaction. I wish my epipen were free, I had to pay $140! And I don't have insurance! Ah!
I had a skin prick test and they tested for a lot of different foods. I'm not too concerned about the foods I'm allergic to since most of them are easy to avoid except potatoes. I'm not really sure what peanuts do to me since I eat peanut butter all the time! And peanut allergy was very high on the test
Carrie,
That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)
In terms of the peanut allergy, it is possible that you will never have an anaphylactic reaction (given you eat peanut butter regularly.) I never did, I only ever reacted with itchy tongue, throat, ears and lips. The allergist had me carry an Epipen for a while (I think a lot of allergist are being very cautious nowadays), but I think it was overkill (I had lived with my peanut allergy for 26 years at that point!)...there was never a sign of anaphylaxis for me.
I "outgrew" that peanut allergy after I had my first baby. I've since develped new foods allergies in its place. From what I understand, completely avoiding peanuts was what helped my body "outgrow" the allergy...now I ingest them on a regular basis to keep my allergy at bay.
Michelle
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Are there no indoor pools where you are? We swim all winter here, but most of our pools are indoor due to our climate...it gets awfully cold in the winter, and we only have two months of weather good enough for outdoor swimming in the summer.
Michelle
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Swimming! Excellent for overall fitness, and gentle on your joints.
Michelle
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I found this article on Medscape about the validity of electrodermal skin testing: Open Original Shared Link
HTH!
Michelle
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I've never heard of an trained Allergist testing that way, and would be suspicious of those results. Plus, is she saying you are allergic or intolerant? It's an important disctinction, since they involve different immune responses. Traditional allergy tests do not show intolerances, just allergies. Also, if I recall correctly, testing for formaldehyde sensitivity/allergy isn't part of traditional allergy tests...you would need to do a 48 hour patch test for that.
In terms of traditional allergy testing, I've never had blood tests done, just the skin prick tests. My son had the injection test in addition to skin prick test to confirm how sensitive he is to penicillin...the results showed that he needed to carry an epipen.
Michelle
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Laura -
My family doc is actually sending me to an allergist to see what kinds of allergies, food issues I might have (or if there are even any in addition to the Celiac immune issue).
How did you figure out you had other intolerance; did you doc test you or was it trial and error?
Just so you know, having an allergy panel done will not show you what you are intolerant to, just what you are allergic to.
You can have an intolerance test for lactose, but I'm not sure if an allergist does that type of testing...it's probably a test that a GI would do. I've never done an intolerance test myself as I already know that lactose is a problem for me, and I'm not up to ingesting a large amount of lactose just to see what my reaction would be...or worse, so some doctor can see what my reaction would be.
Michelle
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Hey Autumn,
I too am lactose intolerant and I absolutely love cheese. I was afraid I might have been casein intolerant but after doing some talking with a nutritionist I found out that if I was casein intolerant I would not be able to tolerate any sort of milk product. I decided to do an elimination diet and cut out all of the "unsafe" lactose containing dairy and eat the allowed cheeses such as cheddar, swiss, montarey, muenster, guoda, and a few others (i love chedder so that's really all i eat). And I am absolutely fine with them!! While this may not be the case for you it might be worth trying. I had iced cream on saturday night and had horrible stomach issues, including indigestion all day on Sunday. Everyone will react differently so its hard to compare symptoms. As some also have suggested you may want to get tested for an intolerance to casein. I was thinking about that in the begining also however it is expensive and if you can figure it out on your own it might be worth the money saved. As you may also know many of us can have other food intolerances. Maybe it was the corn in the nachos or soy? Corn doesn't always agree with me and I cannot tolerate soy at all. Sticking to whole foods (like fruits, veggies, and protein) while slowing experimenting with other gluten-free foods and added them back in have helped me to figure out what I can and cannot eat. When I do eat non safe dairy I always get sick. I am hoping this is temporary since I love yogurt and cottage cheese. I have also heard that cold dairy is the worst for those who are lactose intolerant (I am okay with drinking a cappuccino because the milk is heated and steamed). I hope you feel better soon!
Marissa, have you tried yogurt? It is supposed to have similar or lower lactose levels than hard cheeses, because the bacteria consumes the lactose. I have a horrible time with milk (including steamed milk!) and ice cream, but can tolerate yogurt with no problems at all.
Michelle
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Wow, am I the shortest one??? I'm 5'2-3/4"
Angie, I was always 5'2-3/4" until one day (about a year ago) I got measured at the doctor's office and they gave me that extra quarter inch...I'm now officially 5'3" and I'm sticking with it! LOL!
Michelle
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Maybe I'm grasping at straws here...I don't know how many of you have/had toddlers that were diagnosed with celiac's/gluten sensitivity. My oldest will be 3 in just a couple weeks, and absolutely positively WILL NOT potty train. His main gluten symptom is diarrhea/soft stools. He'll pee in the potty just fine - even standing to pee. This isn't regression from the new baby, either. He's never used the potty to poop. Up to this point he has reached all other milestones either early or on time, and started showing an interest in potty training at 15 months. I let him take it at his own pace, but this is getting ridiculous and I'm starting to wonder if the two are somehow connected.
Am I insane or is this possible somehow ???
I wouldn't connect it to celiac just yet. He is still quite young, and you may not see him completely trained until 3.5 or later. My son was capable, but refused until he was gosh darn ready. When he decided he was done with diapers/pullups he was just done...and had no accidents after that either. He decided he was ready once he started preschool at 3.5 years old. We do not know if he has celiac at this point, but we do know he has allergies.
My daughter decided to stop wearing diapers at 2.5 because diapers were uncomfortable, especially with her eczema problems. She refused to wear panties too...she still won't wear them unless she's wearing a dress or skirt, and she's four now.
Michelle
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I'm 5'3"...all the women in my family are around that height.
Michelle
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Hi Stinger, this is great information, thank you for giving your input
Michelle, how did you find out you were allergic to the dyes, if you don't mind me asking? Did you react to them while getting a tattoo, or did you have some kind of test done?? Just curious.
I just had skin patch testing done this week (got the results yesterday.) I posted a thread about here: Open Original Shared Link Two of my allergens are to chemicals/colours used in many, many products which include tattoo dyes (some hair dyes too!)
Michelle
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The Kraft recipe is foolproof as well. They may feel a little soft when they come out of the oven, but settle well when they cool.
Michelle
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Does anyone know where on the body it hurts the least to get a tattoo, and can you have a reaction to getting one (to the inks, the needles, etc.), especially someone who is very sensitive and allergic to everything?
Yes, you can be allergic to the dyes. I just found out today that I'm allergic to two common chemicals used in tattoo dyes. Guess tattoos are out for me. So are piercings due to my metal allergies.
Michelle
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I am glad it turned out to be not so bad. I hope it turns out to be only a few easy to avoid things. I am also allergic to nickel and found it to be a great excuse to buy only gold or sterling jewelry
I had my final patch appointment and found out that, along with nickel, I'm allergic to Cobalt Dichloride, Potassium Dichloride, and Neomycin Sulfate (the most commonly used antibiotic in skin creams and ointments...including Polysporin!) I also show slight sensitivity to Oak Moss (a scent used in making perfums.)
The doctor gave me handouts explaining what products I would likely find these ingredients and the lists are endless...I expect it will be more difficult to avoid some of this stuff than it is to avoid gluten. Plus Nickel can cause skin reactions that persist after complete avoidance from skin contact. Certain foods can exacerbate the problem and need to be elimiated from the diet for 3-4 weeks to rid the body of continued nickel ingestion. Then the foods can be reintroduced one at a time. Also, nickel plated utensils need to be replaced to (examples given are egg beaters and tea balls.) Oh, also "the first litre of water from the tap in the morning should not be used, as nickel may be released from the tap during the night."
I think I have some work ahead of me in figuring out sources of irriation. At least I have some clues as to why certain products bother me. Still doesn't answer, though, why I get spots that I think look like DH.
Michelle
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hey guys!
i was watching the food network and on good eats he was making angel food cake with cake flour. he said that it is different from regular flour because the gluten has been removed....that doesn't mean that we can eat it does it?!? just curious.....
thanks--
kms
Cake flour has less gluten, but is by no means gluten free. It is not safe for a gluten-free diet.
Michelle
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AAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH
Why did I never think of that!
Its always a prob because the cooking time is so sensitive and soaking them in the boiling water leaves glue at one end and cardboard at the other if you try it with spagetti....
You can break the spaghetti in half to shorten it to fit in the pot better, and give both ends equal cooking time. I do that for my family...makes it easier for my kids to eat it too...not forever trying to twirl spaghetti around the fork.
Michelle
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Unilever will always disclose gluten sources on the label. They are a celiac friendly company!
They don't list their ingredients on products in Canada, however...so they're really only friendly to US customers.
Michelle
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Gosh, I'd rather have the little shots that sounds miserable. You have my sympathy. I hope it gives you some answers.
It wasn't all that bad...I got the patches off yesterday afternoon and found out I'm reacting to at least four things, one of which is nickel (not surprising, it's a very common "allergen".) I go back today for a second look (for delayed reactions) and will be given information on what I reacted to and how to watch out for it. I'm very curious to see what turns up.
Michelle
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sorry maybe i didn't make that so clear. canola oil is derived from a weed called rapeseed which has similar toxic effects to soy. im very afraid of soy or products that mimic soy. i try to avoid them at all costs. im afraid that if i am intolerant to soy than i could very well be intolerant to rapeseed, "canola" oil. check out this site:
Open Original Shared Link
I can appreciate you being wary about related intolerances.
I have never heard of rape seed (canola) oil being related to soy or having similar properties as soy. I do know that many cultures have traditionally used rape seed oil in their cooking. Just as with anything health-related, there are some alarmists out there...and web-based information needs to be taken with a large grain of salt. There is an entry at Snopes.com about the "controversy" about canola oil: Open Original Shared Link Personally, I'm not concerned about using it, but YMMV.
Michelle
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Do you think cashew butter would work and egg replacer as well? Or is that pushing it? Allergic to peanuts and eggs. Can't have almond butter either.
It's worth a shot.
Eggs (in baking) can be replaced with:
2 tablespoons oil plus 1 tablespoon water
or
1 tablespoon cornstarch plus 3 tablespoons (more) liquid in recipe
Michelle
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what a great question!!! i used to LOVE my wok before going gluten free. i stir-fried veggies and tofu with soy sauce in vegetable oil, and i thought i was being healthy!! now that i can't have gluten i haven't looked at my wok. i wouldn't even know where to start to make a stir fry. i am yet to find a gluten-free soy sauce and now i can't have soy so vegetable oil (made out of soybean oil) is out too. If you are intolerant to soy than Canola oil is out also. Its safe for me to use peanut oil because no one i know (yet) whom i cook for has an allergy to peanut oil. safflower oil might be a good alternative. hmmm...let me know what you come up with and i woudl love some of recipes, especially that pineapple fried rice!! yummy! i miss my wok
Why is Canola oil not an option for those intolerant to soy?
Michelle
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We use Kraft Peanut Butter at home, and there is usually a recipe on the side of the jar. One of their standard peanut butter cookie recipes has no flour...
From Kraft Canada:
Super Easy Peanut Butter Cookies
1) PREHEAT oven to 325°F.
2) MIX 1 cup Kraft Smooth Peanut Butter, 1/2 cup sugar and an egg with a large spoon in a medium bowl.
3) ROLL mixture into balls and place on a cookie sheet. Flatten with fork or squish with your fingers.
4) BAKE at 325°F for 20 min. Remove pan from the oven. Let cookies cool in pan for 5 min. to 'set', then transfer to a plate with spatula.
Michelle
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I use pacific's almond milk too. the vanilla is good for cereal. the original is better for substituting in recipes. Also, there is a rice milk (not rice dream) that does not have gluten in it. It's made by "Nature's Promise," which is an organic/natural line of foods that Stop n Shop sells. Im not sure if it's "organic" or just "natural" but it's in the special/ethnic/international foods aisle at the supermarket. Anyway, it's pretty good, too. Oh, and the lactaid has a yucky aftertaste. I used to use it years ago and then i found soy milk...hope that helps.
I find that the lactaid milk tastes different, but if you really, really want to have cereal with milk then it would do the trick. I don't often, but when I do I usually just take Lactaid Ultra with it.
Michelle
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Floridanative, that is an interesting fact, thank you. Could he have been referring to himself?
I wouldn't be surprised. He has been known to make jokes about himself and his health before...like when he had his bypass surgery.
Michelle
Baby Has Reflux, Need Some Help!
in Parents, Friends and Loved Ones of Celiacs
Posted
Keep it up with the breastfeeding...it takes a baby about 3 months for Mom & baby to really get into the groove of breastfeeding, and it takes baby that long to settle into life "on the outside." I know its a long haul, but the benefits are worth it.
In terms of the reflux, I'd recommend also eliminating casein, caffeine, potential allergens (such as peanut) and any gassy foods from your diet. Drinking fennel seed tea (just steep some fennel seed...you can steep it along with an herbal tea if you like) can help settle baby's tummy as well as your own. I liked to steep the fennel seeds with camomile, and keep a jug of it cold in the fridge. You can try boosting your breastmilk production with herbs...there are breastfeeding teas available if you are interested. Otherwise something like blessed thistle, marshmallow root and also fennel seed! will help with production. Stay away from sage and parsley as it will diminish your supply and encourage the milk to dry up. Garlic in your diet may help boost production as well, and the taste may encourage baby to nurse more.
Otherwise, hang in there. I know that dealing with constant spit up/reflux is stressful, as is a baby who is uncomfortable. Try a variety of holds to ease the tummy. Also try using a sling for carrying baby (try carrying through a nap, or to start a nap and then set her down)...the movement and position can be very soothing. I would not worry about a schedule for such a young baby. Every baby is different...my youngest, as long as she was breastfeeding (for 2 years!), never slept through the night...she'd nurse every two hours...but she slept with me so it disturbed my sleep as little as possible. It was tough on me, but I know that she benefitted greatly.
Finally, I found that all three of my kids outgrew the projectile spit up eventually...seemed to coincide with reaching the 20lb mark. My eldest stopped spitting up when he was 6 months, my middle child when he was 9-10 months, and my daughter when she was around 6-7 months.
Michelle