42yroldceliac

Has anyone been diagnosed with a low platelet count that they suspect is a result of Celiac Disease? I have had a low platelet count my whole life (around 90,000). I had a bone marrow biopsy done 20 yrs ago and it showed only minor irregularities that they thought were due to nutritional deficiencies, specifically B12 and vitamin D. Nobody ever tested me...

I’m so sorry about your niece. It’s heart-breaking when this happens to a child. My daughter is 12. I know there is something going on. She has thrown up 3 separate times at school and several times at home. She is always nauseous. This has been going on for a year now. She is super thin and pale and just doesn’t look well. I don’t seem to be gett...

I just recently found out I have Celiac Disease, and my daughter has been having vomiting and stomach pain for the past year. The doctor did not think anything of it at her last well check. However, I asked to have her screened for Celiac after my bloodwork came back positive for Celiac. They tested her TTG IgA and DGP IgA, which both came back negative...

I did wash them, but maybe not to death. LOL I think I will stick to white rice for now, since I don’t seem to have a problem with it. There is something up with quinoa with me, so I’ll just stay away from it. Maybe I’ll try it again in a year.

That is interesting! I will let you know when my biopsies come back.

I just wanted to give another update in case anyone is interested. I had my endoscopy and colonoscopy 2 days ago and even after 2 whole months of no gluten in my diet he was able to visually observe the damage from Celiac Disease (scalloped folds and blunted villi). I have to wait a week or two for the actual biopsy. He also found a nodule in my stomach...

I have been gluten free for about 2 months now and feeling really good for the last few weeks, but tonight I ate quinoa for the first time since going gluten free and about an hour later had what I would describe as an attack. I am having horrible stomach pains. Has anyone else experienced this with quinoa?

I just wanted to give an update. I am feeling much better now. No more stomach pains and my rash is completely go ne. I still have gas and my stomach seems to rumble an awful lot. I saw the GI doctor and he wants to do an endoscopy and colonoscopy to be sure i don't have something else in addition to Celiac. Do you think t his is overkill? At the time...

Thanks so much! I will look up the Fasano diet. It might be what I need. I had two really good days, and now tonight I am not feeling well again. I might have to try cutting out all processed foods.

Wow! Give that nurse practitioner a hug! I had all the classic signs of Celiac and nobody once ever mentioned Celiac. The same with my mom.

I'm so sorry you are living through that. It's crazy that the general perception is, "don't eat gluten and you'll be fine.". It sounds like that's usually not the case. I have my appointment with the GI in 2 weeks. I don't think I'm willing to go back on gluten regardless. I have many family members with anemia and have suggested that they also get tested...

I had read about that with oats, so I have been avoiding them. Thanks for the reminder, though. I should make sure it is not in any of the non-food products I use too. I’m guessing oats are common in creams, etc. I am just trying not to use anything on my skin until I feel better. Amazingly, my skin has never looked better, so I feel like I can get a...

Thank you! I will check that out. The rash has gotten considerably better since i’ve stopped eating gluten. I also noticed that the over the counter hydrocortisone cream I used to put on it has GLUTEN in it!

I have not even seen the GI doctor yet. They could not get me in until the end of August, but told me over the phone to stop eating gluten. One of the tests I had done was the Endomysial AB Scrn IgA, which has over a 99% specificity for Celiac Disease. My TTG IgA was also high, so I guess given my symptoms they’re convinced I have it even without the e...

Thank you so much for your reply! I do eat pretty well, and I did before I was diagnosed as well. I have my own garden, and eat mostly whole foods. I did cut out dairy as well, but now I am down to 100lbs. (I am 5’7”.) I still have constant stomach pain, and I’m concerned that there might be something else going on in addition to Celiac. I did go on va...