Hollybee

Thanks for everyone posting. It really helps to have some input from people who have gone through something similar. All my blood work came back totally normal and I haven't heard from the neurologist in the last two weeks (they do have the results, I checked cause I'm getting kind of neurotic on the medical front, but they only call with bad news), so in...

I thought it all seemed like thyroid issues too, but I don't have any nodules (had an ultrasound a couple months ago) and my tsh, t3 and t4 are all very normal. Dr is pretty skeptical at this point it's thyroid. I would be less worried if the symptoms were old, but getting new ones (especially neuro symptoms) if pretty unnerving. I'm hoping you all are right...

That's interesting. I'm definitely going to look into the food sensitivities possibilities. It sounds like they are a lot more common than I'd thought.

I am going to ask about allergens next time I'm at the Dr. Hopefully that's all this is! Not that getting rid of more food is fun, but it would be more fun than feeling like I do right now, all the time!

I hope you are feeling much better now. Perhaps I will ask about the food allergy and intolerance testing at my gastro appointment next month. It's so disheartening to think you have finally found a solution, and then realize it is not nearly so simple. I'm glad to hear you were able to find some answers though! If you don't mind me asking, were...

Hi. Thank you for the helpful words. I wrote a different reply but for some reason it didn't post. Anyway, this is good advice. I take a thyroid replacement too, just not sure if it's autoimmune. Seems likely though. I will work on doing what I can to heal the celiac. The neuro issues are the part that scares me the most, but hopefully I'll have some more...

I'm considering abolishing the shared kitchen. There is no gluten flour in my house. I did ban that at least! Breaks my heart a little, because I used to love making homemade bread. I just don't get the same joy from making a gluten free loaf, cause there's no kneading! At the very least, I am definitely going have to think about how we're handling food and...

Hi all, Never posted here before, but I could use some words of encouragement. I am a 35 year old woman, diagnosed about six months ago via blood testing and endoscopy. Antibody levels were through the roof. Getting the diagnosis took almost 18 months and I was very, very unwell for all of them. Immediately after the diagnosis I changed to a really...