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NNowak

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NNowak

  1. NNowak
    Neither of my parents had celiac, but 3 of 4 daughters have it as well as the majority of grandchildren. I have both genes and know my mother only carries one gene. If my 4 children, 2 have celiac and 1 has a sensitivity to gluten. All of my children have only one of the genes. Genes are truly fascinating in this instance.
  2. NNowak
    Don’t beat yourself up. During the teen years the pressure to fit in and “just be a kid,” outweighs a strict diet few understand. I was diagnosed at age 24, I carry both celiac genes. I have 4 children that each have one of the genes. My oldest was diagnosed with celiac as a toddler. My youngest was diagnosed with NCGS in adolescence. All 4 children were ...
  3. NNowak
    Doctors are human. Many people declare themselves “Celiac” without the appropriate testing. Also, if your daughter was on a gluten-free diet for a number of years, any celiac labs should be negative. That said, your daughter is an adult and will need to find her own way. I have 4 children ages 24 to 15. My 24 year old was diagnosed by different doc...
  4. NNowak
    Your efforts are good, but the form of your supplements need guidance. I’ve experienced much of the same as you (tinnitus, heartbeat in the ear, etc, etc). The only way to properly measure Folate and B12 are to include MMA and homocysteine at the same time. These additional serum markers will show what is available at the cellular level. There are many p...
  5. NNowak
    I’m sorry you’re not feeling great - yet. You are wise pursuing an evaluation with a rheumatologist. Celiac is connected to certain types of autoimmune arthritis, specifically spondyloarthropathies. I was Dx Celiac in 1995 and continued with the GI symptoms, joint pain and malaise. I saw 2 rheumatologists around 15 years ago who visually diagnosed me wit...
  6. NNowak
    After diagnosis at age 24, I experienced infertility and three second term miscarriages. I also have 4 beautiful children- now ages 15-24. Ask your practitioner about progesterone. Methylated B complex prior to your pregnancy, and during, is essential. You may need choline as well - phosphatidylcholine. Check with your OB. Right now detox with a lot...
  7. NNowak
    Zinc is essential to healing the gut lining, as well as vitamin A. Magnesium can be tricky as some celiacs are constipated, and should take it in citrate form. Those that aren’t constipated should take magnesium theorate - as well as those that struggle with depression or anxiety. This is the only form of magnesium that crosses the blood brain barrier. M...
  8. NNowak
    It’s not probable that the human body has a single deficiency of one B vitamin. The methylation process and how the body uses/recycles/stores our B vitamins is the likely cause of any B deficiency. That said, it’s more likely a collective deficiency of several B’s due to an autoimmune condition preventing absorption of B12, MTHFR, inflammation of the small...
  9. NNowak
    Oftentimes cancer is treated by starving the cells of glucose - ketosis. Epilepsy is another condition known for using ketosis for treatment. You may want to clarify the fasting window and how she wants you to approach this. Most people need to work up to an 18 hour fast by starting at 10, 12, 14 hours and so on. You need to know how your body works and...
  10. NNowak
    There are many reasons for nausea related to a GI that needs healing. Is there a functional medicine professional that you can connect with through telemedicine at this time? You should have some labs run and some direction from a professional so you aren’t spinning your wheels. In health.
  11. NNowak
    A functional medicine doctor will evaluate your GI function, as well as your other systems to see where you need assistance with your healing. I strongly recommend you look at a functional medicine professional to form a relationship with as you navigate through this chapter in your life. Microbiome, MTHFR, mitochondria, COMT, Vit D receptors, hormones and...
  12. NNowak
    I’m with you 150%!! I spent $10k out of pocket last year with insurance ponying up 90% of the rest for a GI to tell me I might have overactive nerve endings. After 3 years with my internist and MS like symptoms including a fall on my steps resulting in 4 broken vertebrae, 2 broken ribs, a punctured lung and a week in the hospital - my internist failed t...
  13. NNowak
    Good articles! I take 2 huge magnesium pills at dinner time in addition to my other supplements throughout the day. I’m still in the healing process so there are a few supplements I take to equate to double the RDA. Primarily, I’ve noticed magnesium helps with recovery after a workout. It does give some people loose stool, so if you can focus on implementing foo...
  14. NNowak
    Regarding your sleep issue: there are many natural, plant based solutions you can try. Passion Flower is widely known as well as Valerian Root. These are the 2 I’ve tried, but there are many many more. Gaia is a well researched company and has both of those supplements. You can also find them on Amazon, but be careful of the brand you choose. Passion Flower e...
  15. NNowak
    Based on your comments, I’m lead to believe you are female. If so, there are no commercially available DHEA supplements (that I know of) in the right dosage for women. If men need to supplement, the dosage is 20mg to 50mg. Women supplement between 2.5mg and 5mg. Most supplements available start at 50mg. Considering our testosterone and/or estrogen hormones d...
  16. NNowak
    Ah, you’re referring to the cholesterol pathway. Pregnenolone is greatly affected by the adrenal gland, thus affecting DHEA production. Mine is extremely low because my adrenals are insufficient at this time - I won’t go into why, but I’m only 48, not 70. To begin to repair the adrenals, higher levels of methylated B vitamins are recommended as well as a ...
  17. NNowak
    Our hormones are greatly affected by deficiencies in our micronutrients. Testosterone naturally declines in men beginning at age 30. Add in the deficiencies and you create a much more rapid decline. Low T also affects cognitive functioning. For women, deficiencies are connected to estrogen dominance, infertility, miscarries, birth defects and cognitive decline...
  18. NNowak
    It is a fact that celiacs maintain an underlying inflammation in their GI tract regardless of strict adherence to a gluten-free diet. It is also a fact that the gluten-free diet does not contain all the micronutrients humans need. One needs to be a nutritionist, have zero inflammation and spend many hours daily to ensure they are getting everything they need...
  19. NNowak
    I, too, have histamine challenges. Decades of inflammation, migraines, GI issues, extreme weight loss, itching.......finally pressed the docs. After several appts with various specialists who segmented my symptoms according to their specialty, they still missed the MCAS. It took a functional medicine doctor 6 weeks to diagnose something western medicine had...
  20. NNowak
    Corrine, I absolutely understand!! A note on the Bs: they can be very hard on a sensitive stomach. After 7 months of healing, I can take 1 of the 2 B capsules recommended for me. Conventional docs don’t seem to know this, yet it’s common knowledge among pharmacists. If you are ever willing to try a supplement, I strongly recommend DGL by ...
  21. NNowak
    Knitty Kitty, You have provided valuable and interesting information. I know magnesium affected MCAS, but was unaware of the thiamine connection. Corrine, You can try Sweetish Bitters as a digestive enzyme right before you eat. Digestzyme-V from OrthoMolecular is a gentle digestive enzyme taken 15 minutes prior to a meal. Both can be taken...
  22. NNowak
    Is naltrexone approved in France? LDN typically is compounded by a specialty pharmacy in the US. Which is good, because the pharmacist calls before compounding it to see which things you’re sensitive to prior to putting in a capsule, tablet or mixable powder. LDN therapy is off label use of naltrexone in the US. Most western medicine docs poo poo LDN, s...
  23. NNowak
    Corrine, It really seems like your body is having a hypersensitivity reaction. This is exactly what I experienced. The docs I saw, and docs who have MCAS, have stated it’s extremely difficult to diagnose. There are many variables to accurately diagnose, including your handling of the labs and the lab handling/processing the specimens exactly right. ...
  24. NNowak
    Hey cyclinglady! I have not made bone broth myself. Nausea was one of my chronic symptoms - I have a bionic sense of smell and hearing, thus, I avoided anything I could that had a smell. My sister makes hers and said it smells terrible. How do you make yours? I’m able to try that now. Dr Axe has a chocolate flavor that I love. I’m allergic to ...
  25. NNowak
    Corrine, My heart aches for you - I was in the same situation for 3 years. I am just now returning to where I was 15 years ago. Pernicious anemia along with decades of malabsorption, SIBO and MCAS snuck up on me, and I was too busy with my family to care for myself. What brought about the healing was bone broth, weekly B12 injections and low dose...
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