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NNowak

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NNowak

  1. NNowak
    Regarding research, I typically enter a topic in my search engine to see if anything new pops up. Reputable research comes from NIH, Johns Hopkins, Harvard, University of Chicago (Dr Guandolini), University of Maryland (Dr Fadsno), and various other organizations. You are intelligent and will be able to discern relevant material. The holistic healing methods...
  2. NNowak
    I’m a very sensitive celiac with other health issues that flare when my celiac is triggered. My home consists of my husband (who loves all food), and 4 kids resistant to a gluten-free diet despite 2 being diagnosed (1 is celiac and 1 has NCGS). We’ve lived in multiple locations over the past 24 years since my diagnosis, including apartments and homes wit...
  3. NNowak
    To add onto my previous response, you seem to be doing everything right. It also sounds like you should go see a different GI so your symptoms can be managed properly. There is no scientific evidence to support replacing cookware, dishes or appliances as the autoimmune response requires 20ppm to illicit a celiac response. For this reason, it seems likely...
  4. NNowak
    I’m sorry you aren’t feeling well. We all heal at different rates, but I can honestly say that 3 months is not a reasonable expectation. It takes a longer period of time to regenerate villi and calm the inflammatory autoimmune response. For some it can be over a year, others well over two years once the gluten-free diet is mastered. Has your GI referred you...
  5. NNowak
    I was diagnosed 24 years ago. It seems the hypoglycemia is a “thing” for me, too. I focus only on whole foods, high protein and rarely sugars. The foods I eat for dinner greatly influence my next few days. Rice and pasta are out, as that guarantees a hypoglycemic episode the following day. Fiber, protein and a few healthy carbs are what I consume. Recognize tha...
  6. NNowak
    I cannot expound on the factual information listed in previous posts. I can, however, encourage you to follow your instincts as the mom, but also caution you with the statement that it takes a lot of time to heal. My 12 year old daughter has been having problems for a few years. I’ve been a diagnosed celiac for 24 years with new autoimmune diseases now p...
  7. NNowak
    That appears to be your official swearing in as a Celiac. Welcome to the club! It took 24 years after my diagnosis to get that from my doc. who also accused me of purposely dropping 30# in a short period of time while dismissing my symptoms for over 2 years. After running tests I was found to be deficient in D, B12 and Folate with an extremely high Ferritin...
  8. NNowak
    Many things can raise cholesterol (ie. alcohol, sugar, carbs) and some people are simply genetically predisposed to higher numbers. If your physician isn’t concerned, you can probably avoid that worry. I agree with cyclinglady that you may want to look into a GI that specializes in Celiac. The most reliable test for SIBO is biopsy, and will determine which b...
  9. NNowak
    Good for you! I’m glad you are feeling better and can enjoy food. Every Celiac has unique symptoms and their timeline for healing. Take care!
  10. NNowak
    It’s not uncommon for celiacs to have previously struggled with an eating disorder. Consciously or subconsciously food is uncomfortable once ingested so it’s easier to avoid. Obviously this causes a whole host of other issues. I’d suggest the Dx of any “eating disorder” to be incorrect if Celiac hasn’t been ruled out first. Having that as part of your jou...
  11. NNowak
    That’s a tough Dx. I’m not certain if gastritis is connected to Celiac, but it seems present the majority of time for myself and my Celiac/NCGS family members. My father has Crohns but doesn’t seem to have gastritis issues. I recently was diagnosed with B12/Folate deficiency, then prescribed cyanocobalamin injections. After a short time on the injections, my l...
  12. NNowak
    I’m terribly sorry this happened to you. Unfortunately, I feel most of us can relate. In my opinion, the larger a healthcare system grows, the less healthcare is given. These docs and nurses are expected to see a certain number of patients daily, thus time is limited with patients and charting is done while in the room during that limited time frame. Actual p...
  13. NNowak
    I would agree with keeping your gastro in the loop. I can also tell you that my initial “recovery” once diagnosed took well over a year. My energy level was the first remarkable difference so I chose not to be bothered by the GI issues I’ve had since birth. In 1995, the years I was diagnosed, docs knew very little about celiac. My GI actually told me I cou...
  14. NNowak
    Hi Daphne, I have deficiencies as well, but also issues digesting vitamins. I’ve had the best luck with Dr. Axe. You can get them online. I also get my bone broth there. Ideally, the best source of nutrients is from a balanced diet from whole foods. I have malabsorption so I’m using the bone broth for healing my GI. Organic super greens powder is ano...
  15. NNowak
    Cyclinglady, I commented on an earlier post about our similarities - crazy! No, my family isn’t all about Celiac testing. My oldest son was diagnosed at 14 months old due to an immune deficiency. I had him tested again at around age 9 because the immune system isn’t mature under 2. It came back positive because of all the gluten he was consuming at ...
  16. NNowak
    Welcome! Sadly, it’s exhausting trying to get a diagnosis at times. Thankfully, you’re proactive and implementing natural healing methods so you’ll feel better. Proper nutrition for your body type will do wonders for your health and well-being!! if you’re looking for a label for this, call yourself Gluten Sensitive - make sure it’s in your medi...
  17. NNowak
    I never go along with the gluten-free labeling on a package for this specific reason. It may be safe to consume for most, but may also result in health issues for some. When a Celiac or NCGS is trying to heal, or prevent complications (ie. miscarriage) it is irresponsible to slap a gluten-free label on a product to target a segment of consumers. Fundamentally...
  18. NNowak
    Besides the limit of gluten to 20 ppm, the rule permits labeling a food “gluten-free, if the food does not contain: An ingredient that is any type of wheat, rye, barley, or crossbreeds of these grains, An ingredient derived from these grains that has not been processed to remove gluten, or, More items.....
  19. NNowak
    This is what I found: Yes, autolyzed yeast is gluten-free. Carefully read the label because, even though autolyzed yeast is gluten-free, “autolyzed yeast extract” is made from barley and is not gluten-free. https://www.beyondceliac.org › yeast Is Yeast Glute...
  20. NNowak
    Sounds like you have been put through the wringer! I’m sorry you haven’t felt well for so long. I had similar symptoms to yours and found I have pernicious anemia (B12). After the third injection of B12 the stomach pain and watery stool normalized. I am unable to take vitamins because of the fiery pain in my stomach, which often results in chest pain. Wh...
  21. NNowak
    The small bowel biopsy is more important in diagnosing Celiac than the bloodwork. Some people have an undetectable level of antibodies in their blood, the tests are not sensitive enough to pick up low levels in those who recently developed the disease, or in those who are IgA deficient. Celiac seems to be an imperfect science and quite individual with reaction...
  22. NNowak
    Fantastic!!! What a wonderful community to come together in support of one another!! I’m so happy to hear about the wonderful people in your lives doing what we were put on earth to do. Thank you for sharing your sweet boy and his triumphs with us!!
  23. NNowak
    The EGD is not bad. I’d highly recommend it so you can get some answers. You should get a colonoscopy, too. Especially with history of Crohns. My sister dealt with refractory sprue, and I can tell you it takes years to heal from. If you are dealing with another issue, your Celiac will kick in due to the stress your body is going through. Pregnancy is definitely a...
  24. NNowak
    If you have a new topic, start a new thread so it can be filed or searched accordingly. As far as the roommate and cookware........it takes a certain amount of gluten to illicit the autoimmune response (20 ppm - 2 slices of gluten free bread). I’m extremely sensitive (diagnosed 24 years ago) and can use the same toaster as my gluten addicted children, c...
  25. NNowak
    The methods of your gastro are unfamiliar to any I’ve heard. Typically a “gluten challenge” is 2 months in duration, consists of the equivalent of 2 slices of gluten bread daily and is for the purposes of the bloodwork. Intestinal damage varies by person. If you had been gluten-free for several months your GI could vary well be healed, or show little damag...
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