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Corinne D.

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Corinne D.

  1. Corinne D.
    I suppose it has to do with how celiac specifically manifests in my body. If you browse this forum, you will notice that a lot of us have intolerances to various other foods apart from gluten - of course, not everyone has the same or as many intolerances as others. However, this it by no means a rule - there are certainly celiacs who can have all the foods...
  2. Corinne D.
    When I was still able to have coconut milk, I would choose one with only coconut and water as ingredients and make sure there was no mention of gluten traces. Being very sensitive to all sorts of things, I would never buy one with additives like carrageenan or guar gum. None of the products I chose were certified gluten-free and I never had problems with...
  3. Corinne D.
    For calories, you can up your fat intake - choose fattier cuts of meat. Also, olive oil, coconut oil, coconut milk and avocadoes are healthy and high calorie.
  4. Corinne D.
    Yes, first I had to fast for at least six hours before the MRI. Some protocols may have you on a low-residue diet for a few days before. About one hour before I had to drink some laxative to completely empty the small bowel, but a lot less than the amount for a colonoscopy, maybe like half. They gave me an IV antispasmodic (glucagon) (to slow down the peristalsis...
  5. Corinne D.
    Hi blurryface, I had a small bowel MRI, because I had ulcerations in my duodenum and my doctors wanted to see if they were also present in the jejeunum - the part of the small bowel beyond the reach of endoscopy. It usually shows any structural abnormalities in the intestine, lesions, ulcerations, and yes, it is usually done to check for inflammatory diseases...
  6. Corinne D.
    Hi JD, I did the videocapsule endoscopy. The advantange is that it is less invasive than the traditional version, there is no anesthesia and it goes through the whole length of the small intestine. With the traditional one they can only go as far as the duodenum. The downside is that they cannot take biopsies, unlike with the traditional one. So they can...
  7. Corinne D.
    Hi Stephanie. Dermatitis herpetiformis is a form of celiac disease. Apparently, celiacs with DH may not have elevated serum antibodies, but if the skin biopsy is positive, there is no room for doubt. You should most certainly go gluten free as soon as possible. And very strictly too, avoiding all cross-contamination. Be sure to check the DH section of this...
  8. Corinne D.
    Hi Kate, I found a no-filler multi from Pure Vitamin Club. Contains most vitamins and minerals with the notable exception of iron (because it's generally poorly tolerated). However, the dosages may be rather low.
  9. Corinne D.
    Hi Mary Jo, It is great that your antibodies are decreasing. However, a still positive result after one year gluten free could indicate either that gluten is still sneaking into your diet, or that you have some other autoimmune issue brewing. I believe these antibodies can also be elevated in type I diabetes and inflammatory bowel diseases. However,...
  10. Corinne D.
    Hi Matt, have you tried eating only well-cooked fruits and vegetables? Raw stuff can be tough to digest for a while for a damaged gut. Hang in there.
  11. Corinne D.
    knitty kitty, in February, when I stopped tolerating some of my vitamins and my medication, I took them all out for a week, then reintroduced them one by one. Vitamin C caused no issues, I only reacted to the steroids and the vitamins with fillers. But I can repeat the experiment, no problem, and will report next week. As a side note, I take 250mg of vitamin...
  12. Corinne D.
    Perhaps I have not been clear. I have no symptoms on a regular basis, when I eat beef and take vit. C, calcium and potassium. In fact, I feel great, all buzzing with energy and good mood. I work, exercise, do yoga, meditate, write poetry, cook, clean up, sleep well, make love and can't wait for this confinement to be over to go hiking in the mountains again...
  13. Corinne D.
    @knitty kitty, thanks for the warning. As I was saying I took a B50 complex daily for a few months with absolutely no issues, so I don't expect any with pure thiamine. I will start very low anyway, as I do with any food/supplement. I gave up the B50 because I started having bad abdominal pain and diarrhea after a few months of taking it daily. When I...
  14. Corinne D.
    Naltrexone is approved, but only for alcohol withdrawal and only on prescription.
  15. Corinne D.
    NNowak, thanks, I've had a look over Dr. Theoharides's research. I know MCAS is tough to diagnose and would be ready to believe I have it, even if a specialist would not diagnose me with it. It is just strange that I have no skin symptoms, no flushing, nothing obviously looking like a histamine reaction, and that my digestive symptoms happen with a long delay...
  16. Corinne D.
    knitty kitty, you may have a point and thank you for making it and supporting it with those articles. I do try to get as much nutrition as I can, although my diet is so limited. I am aware that vitamins get destroyed by cooking and this is why I try not to overcook my meat and will actually head towards eating it on the rare to raw side if I cannot manage...
  17. Corinne D.
    @knitty kitty Thanks a lot for the info. There are many symptoms of sulfur intolerance that I don't have. I only get digestive symptoms (pain, diarrhea) when I eat a very small amount of anything else but beef. I have a running prescription for monthly labs and so far I have been adjusting my supplementation based on those. I have never had any deficiencies...
  18. Corinne D.
    Have you tried cod liver oil? It's a pretty good source of vitamin D.
  19. Corinne D.
    Thanks for the support, NNowak. I have seen a mast-cell specialist who has ruled out systemic mastocytosis and found my clinical and histological picture inconsistent with MCAS. Symptom-wise, among other things, I don't seem to have a problem with histamine. Although bone broth does not go down well (home-made), I can have meat cooked three days ago with...
  20. Corinne D.
    Thanks for the suggestion, Ennis. I have organ meats every day, heart, liver, tongue, bone marrow, anything I can get my hands on. I only skip kidneys, as I just cannot stand the taste. Otherwise, I literally eat nose to tail. I've been mostly boiling the meat in the pressure cooker as I don't much enjoy the texture, but I will move on to grilling and leaving...
  21. Corinne D.
    Another update to this post for whoever has the patience or curiosity to read it or finds themselves in a similar situation. As of March, I cannot eat fish anymore. Through February, I tried eating smaller and smaller quantities, but I kept getting worse and worse from ridiculous amounts, so I just gave it up a short while ago. I currently eat only beef...
  22. Corinne D.
    Hi Mike, sorry to hear you are struggling. Sometimes celiacs have additional intolerances apart from gluten. In many cases, these intolerances are temporary and resolve once healing has occurred. However, to speed healing and prevent symptoms, it is recommended to eliminate these additional foods and reintroduce them after a while, like six months, to see...
  23. Corinne D.
    AuntieE, in Europe we have these protective masks called FPP2, which are typically designed as professional dust masks, but also protect both against transmitting and getting the virus. I got mine in a regular small-town pharmacy. Wearing such a mask and frequently rubbing hands with alcohol, which can be carried around in a small bottle, are quite effective...
  24. Corinne D.
    Thanks for your support, AuntieE I'm actually not so worried about getting the virus itself, as I am about getting it with mild symptoms and being hospitalised anyway. In Italy, they leave people with mild symptoms (over 85%) ride it out at home because they clear it on their own anyway. But here in France there are not yet so many cases, so it still seems...
  25. Corinne D.
    My diet is even more restricted than yours. I can only eat well-cooked beef and small amounts of fish - and that's it. I can have nothing canned, not even in salt and water, it has to be cooked from fresh or frozen. However, I would not worry so much about being quarantined for very long. I live in France and was in Italy recently. Now I am required...
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