LLBoll

Just want to update everyone! Thanks everyone so much for the comments. We recently went to a gastroenterologist who specializes in celiac. He did an endoscopy & confirmed that my husband does in fact have celiac along with the DH. He also confirmed the strict no gluten diet. He was amazed when we told him another doctor had told us otherwise.

Yes - I try to go to most of the appointments with him. But this was our first appointment at this “specialist”. This is the second dermatologist he has seen. This one was supposed to be more knowledgeable....

Maybe I should edit this to say that he has had no digestive symptoms... sorry I’m new to all this. Thank you for these links! He has had the biopsy & that’s how he was diagnosed. This is the fourth doctor we have been to & the first to tell him he can have gluten. He is so excited & I hate to be the bearer of bad news. He has been eaten gluten for...

Thank you guys so much for the replies! They have done many tests at multiple doctors & have concluded that he is part of a small percentage that doesn’t have celiac - only DH. Him ingesting gluten does cause the DH though. They have been testing him while he’s been taking this smaller dose & everything seems to be fine.

My husband has been diagnosed with DH for over a year now. He has been trying his best to be gluten free since we got back from Italy in January of this year. He went to see a dermatologist yesterday (one of the best in the country they say) and she told him that he needed to up his dose of dapsone from 50 mg a day to 100 mg because he still has some rash...