chocoholic
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by chocoholic
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Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
No worries. -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Not sure what you mean regarding 'western medicine mindset and a pill for that'. I was taking folic acid as a precautionary measure in case I do get pregnant. I didn't think it would reverse any of my symptoms. -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Thanks for explaining. I was taking only folic acid because where I live the B complex products are dosed very low, so I didn't bother. I've only been taking folic acid for about 8 months though and my symptoms have been the same for decades. I used to take sublingual B12 (methylcobalamin) for about 20 years before taking a break since my blood level was... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
That's an interesting thought Knitty Kitty. My MCV is normal though (which is supposed to be high for pernicious anemia). I'll bring this up with my GP, although I doubt that she understands this. Normal blood levels, normal everything, she'll say... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
My vitamin D (25OH-Vit.D) is 36.4 (normal 19.1 - 72.0). I've been taking 10,000 IU (D3) daily for the past 2 years. Either I don't absorb more or it doesn't contain as much as it claims. -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Hi Knitty Kitty, my B12 was extremely high a year ago (1140 pmol/l, normal range 156-672). It is now 492. -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Hi Shauna, thanks for your comment. My blood tests were done at the same time of day and on an empty stomach (no food for 10 hours). The only supplements I take are iron, zinc, folic acid and vitamin D. Which I didn't take for 2 days before the blood test just in case. I know that TSH values can run much higher in other people. I've read in many... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
In case anyone is interested, here are the findings of my recent blood test. I picked up the doc's report from the front desk but haven't seen my GP yet. FT3: 3.51 pg/ml (normal range 2.00 - 4.20pg/ml) TSH basal: 4.91 mcU/ml (normal range 0.35 - 4.50 mcU/ml) TPO: < 3 IU/ml (<5.61 IU/ml = negative) He wrote that the normal TPO... -
Hi Gael, I was diagnosed Aug. 2019 and gluten-free since. I've had an itchy scalp and dandruff since I was a teenager. I think there was an improvement while on 'the pill' (another topic, and I do NOT recommend taking BCP), but that was a long time ago. I have had undiagnosed skin issues since childhood: bouts of a rash with hives all over my body...
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Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Hi everyone, I'll just write one comment instead of several individual replies for less clutter - hope that's ok. Thank you all again for your input and the effort you've put into researching. 💛 I had my appointment with a nuclear medical doc yesterday. Turns out a scintigraphy is only applicable in cases with tumors, so not for me. My ultrasound wa... -
Intentional glutening for Hashimoto diagnosis?
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Hi Scott, thank you for your reply and the link. I was aware of the correlation among various autoimmune diseases. I just haven't found research that shows APO decreasing with a gluten free diet in celiacs. Contrary: one of your links states ("People with Celiac Disease Face Higher Risk of Thyroid Autoimmune Disorders" by Jefferson Adams): "After... -
Dear fellow sufferers 💛 In a previous posting, I described my current situation of being a diagnosed celiac (August 2019, gluten free since) who has recently received an iffy Hashimoto diagnosis. Question: Have you ever intentionally glutened yourself (even ongoing) before bloodwork for Hashimoto in order to see if your TPO antibodies would rise to...
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Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Thank you all so much for your comments - I apologize for not checking back in sooner...I've been having a very stressful time. I'll be having my thyroid exam next Tuesday. So far it's not for certain what kinds of tests will be done, but most likely an ultrasound and bloodwork. Perhaps also a scintigraphy. New question to you all: Would you consider... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
By anti-TG, I assume you mean what I know as TRAb? Then yes, I failed to mention it. It was <0.1 (normal reference range 0-1.5). A bit of a strange value then but apparently ok. -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Hi Shauna, thank you so much for sharing! Congratulations on finally getting diagnosed (hope you know how I mean it). Why are you panicked about your celiac diagnosis? You have all this experience with the diet and now have official proof, which is worth a lot! Now you have more control over this thing in many ways. Was it straightforward to test positive... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Thanks for all your info. It's interesting that iodine can be tested in the urine...I doubt though that any doctors near me would do that, or even know how to go about it. I can try. And yes, I see that many theories or observations are considered bogus by doctors for a long time until the mainstream gets there. Take my hair, for example. I still haven... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Hi Wheatwacked, thank you for your reply and all the information you went through the trouble to find for me. I haven't been avoiding dairy; I eat lactose free products. I use iodized salt. I don't know if there is a way of getting this tested; I've never heard of it being in a blood panel. Of course B vitamin deficiencies are always a possibility... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Thank you so much, Icelandgirl, for your caring reply! Yes, I'm a chocoholic (used to be funny, now it's pretty bad ) which no doubt has contributed to my triglyceride levels. Thanks for sharing your impressions. I'm very open to taking thyroid medication and I'm curious how I'd be feeling. What and how much do you take? Have you by any chance experienced... -
Hard to believe hashimoto-diagnosis :(
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Almost...as Icelandgirl wrote, the TPO is technically above normal. But when I read the values that Hashimoto patients have (high in the hundreds), then mine seems completely negligible. -
Hi everyone, I've posted here before about my celiac diagnosis (Aug 2019). Now I'd like to add that in April this year, I had a follow-up endoscopy, so 20 months after my initial one. The result was a normal villi architecture with an increased lymphocyte count, which I was told was "normal". I thought I'd share this in case other people are wondering...
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After 18 months still pregnant-looking
chocoholic replied to chocoholic's topic in Related Issues & Disorders
My skin has been very problematic for the past 5+ years. Extremely dry and itchy to various degrees. Today I was at a specialist to check my ears for an infection because they get (one more than the other) insanely itchy every day. He said there definitely is no infection or other abnormality; they are just very dry inside. The skin of body parts/areas...- 20 replies
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After 18 months still pregnant-looking
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Thank you, Knitty Kitty, yes...SIBO...I read about this here in the forum when I was diagnosed with celiac but kept living in a state of denial that this would really concern me. And paleo....that's really tough for me because ideally I like being vegan, but have switched to ovo-lacto-veg a few years ago, which is the most I want to consume animal-wise. I...- 20 replies
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After 18 months still pregnant-looking
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Thanks for your reply Charks, I can relate how you used to feel. I'm considering the 24-hr fast thing, although I dread the blood sugar issues, cravings, and hunger! Especially since I can't sleep hungry! 😨 Thanks for sharing your thoughts, Scott, you're so right about the food diary, I've been postponing this for years, long before celiac...- 20 replies
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After 18 months still pregnant-looking
chocoholic replied to chocoholic's topic in Related Issues & Disorders
And since I've been gluten free for so long, there shouldn't be any inflammation anyway, I guess..- 20 replies
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After 18 months still pregnant-looking
chocoholic replied to chocoholic's topic in Related Issues & Disorders
Hi Trents, thanks for your take on this. Interesting thought. You think inflammation caused by longterm gluten consumption decreases so rapidly? And if so, how does this go with the lactose intolerance that I seem to be having? If the villi are still damaged, wouldn't this mean they are also still inflamed?- 20 replies
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