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Phosis

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Phosis

  1. Phosis
    I am going to try a pro-biotic actually. That is one thing I haven't really tried at this point seriously. Digestive enzymes, no. But I was told not to take them while having diarrhea.
  2. Phosis
    I think it's misleading to say "it can take up to two years to heal". It can certainly take longer than that for some, especially if they are continuing to eat processed foods etc, as that can confuse things a lot. It's more accurate to say the majority of people sticking to gluten-free will experience healing by the two year mark. But many still will...
  3. Phosis
    Many people with Celiac disease are still in the healing process at the 5 year mark after a gluten free diet has been adopted. Up to a third of people in fact do not have full intestinal healing by this point. Be careful what you read about other peoples stories. They can be misleading and discouraging. Or statements like "you should heal three weeks...
  4. Phosis
    Only you can make a decision like that. But understand there are many factors involved in Celiac, and if it is not kept under strict control, it can lead to worse problems down the road, such as cancer. IEL elevation is one of the markers of Celiac disease along with villous atrophy. TTG-IGA markers can be low or 0 in people with Celiac. Blood is not...
  5. Phosis
    Hey all, I switched to an AIP diet recently, and the entire time (14 days) experienced terrible diarrhea. The doctors thought it might be colitis in fact when I went to the hospital. As soon as I removed the vegetable matter from my diet, boom, normal bowel movement. I was diagnosed about 1 and a half years ago. Strict gluten-free diet. Little...
  6. Phosis
    Hey guys! Been on this Celiac journey for close to 8 months now. Been gluten free all except a bad poisoning two months ago by accident, when I mistook packaging to be gluten free. I have talked before about terrible indigestion, and bowel looseness. This eventually led to terrible fatigue, brain fog, light-headedness down the road. Low B12 was...
  7. Phosis
    Anything, anyone?
  8. Phosis
    Hey everyone. I have been gluten free now a little over six months. I was in complete misery when I got diagnosed celiac. TTG-IGA high, but not overly, but near total villous atrophy, and all the other relevant markers in place...mom also has Celiac disease. I am 34, it started after a bad flu two years ago. Had to go on PPI, which did absolutely nothing...
  9. Phosis
    So big, big stuff... Started injecting B12. The effects were almost immediate. Went from functioning at about 40 percent to about 80. Been four days now, feel much MUCH better. I still have the odd little neurological "tick", it's not "perfect", but I was the walking dead for the past three months. Just a ball of misery. I couldn't do anything, even...
  10. Phosis
    Update to this: my doctor pointed out low B12 levels from a test done sometime last year. 189, no idea what that number entails. So he recommended injecting B12. I had my blood tested again for it yesterday as well. He also referred me to a neurologist just to rule out possible tumor etc, as a "just in case thing". Normally that would have made my anxiety...
  11. Phosis
    So I finally saw my GI, and she told me everything I needed to hear: "You definitely have celiac disease." "But what if-" "No. It's definitely celiac." And fair enough. After two and a half months of being gluten free, my bowels have finally reached a pretty normal state. I can load up on fat, and yes, even some dairy again, with no urgency...
  12. Phosis
    Okay so I just want to kind of go over this one more time... Ill keep it short as I have spoken here before...digestive issues for a couple of years. TTG-IGA and EMA test early on in that process. TGA-IGA was a positive (not extraordinarily high) EMA was negative. Did an endoscopy two months ago, showed "near total villous atrophy", elevated IEL...
  13. Phosis
    I just want to chime in. I have not been "officially" diagnosed, as I don't actually see my GI doctor til february to discuss my results. But I had a positive TTG-IGA (negative for any other blood test), near total villous atrophy, elevated IEL, and was also diagnosed with chronic gastritis (no H. Pylori found in biopsy). I have been on a gluten free...
  14. Phosis
    Thanks NNowak. It was the recommendation of my doc to take the Pentaloc for a few weeks, and the reason is to heal my gastritis. I am definitely noticing big improvements. I had some fatty food last night which caused me some issues but the rest of me week has been fantastic. I will have to wait til new year to see my GI doc, but my old clinic told me this...
  15. Phosis
    I had an apppointment with my non GI family doctor to get her up to speed with all this. Despite "near total villous atrophy" and my GI doctor thinking I have celiac, she said "I think it's just your anxiety." and was really dismissive about the whole thing. Time for a new family doctor.
  16. Phosis
    Thanks cyclinglady!
  17. Phosis
    It was found in biopsy. But they did not identify it as autoimmune gastritis. So hopefully not?
  18. Phosis
    Thanks for the replies. Sorry it was a long weekend! Went to emergency for stomach issues, and they figure it was just a stomach bug that happened coincidentally. So hard to tell anymore. Anyways, I am noticing some problems are definitely starting to reduce. I really do need to eat every few hours to keep the indigestion intact. I am on a low fodmap...
  19. Phosis
    Hello. I was just diagnosed with Celiac yesterday. Conditions in the title. Currently, I have been prescribed with a PPI. I have not started taking this. Apart from the usual diahrea, and inability to properly digest fat, I have also been diagnosed with chronic gastritis. This seems to be what is causing all of my major indigestion problems. This has...
  20. Phosis
    An update: my doctor confirmed celiac. I do not have all the details in front of me but "total vilious atrophy" or something like that. And also chronic gastritis. H pylori biopsy negative. Had extensive bloodwork checking liver pancreas and gallbladder and no issues there or anywhere else. So it looks like I have my answer. I am mostly okay with it...
  21. Phosis
    Thanks. My problem is I work a full time job and just to manage the systems properly, going gluten free seems to have been a necessary change. It was so bad I missed a week and a half of work. While I am certainly still having issues, things seem to be calming down significantly for me now. But who knows what will happen going forward!
  22. Phosis
    Thank you for the response. I have been looking it up and I did test positive, and it seems like false negatives are not very common. I will make sure even if the results are negative that they keep looking for reasons, but it sounds like I am on the right track to stay on a gluten free diet as it does seem to be having some effect. This makes me feel much...
  23. Phosis
    So here is my story...I am 33, started having really bad digestive issues after a flu early last year. Indigestion, cramps, diarrhea. My stomach has always been sensitive, but this was a whole new mess, and so I want to multiple appointments with my GP, including blood work that I didn't know was looking for celiac (my mother is celiac as well) The doctor...
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