BuddhaBar
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by BuddhaBar
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WorriedMum
BuddhaBar replied to Worriedmummy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Having one autoimmune disease puts him at an increased (something like 34%) risk of getting another one. Severe pain and bleeding from the bowels sounds a lot like Crohns disease. -
Welcome Yes, things will get better, but give it time. Give it lots of time. You've been sick for 10 years. 10 years do A LOT of damage so expect a long recovery. Don't give up. You will still be sick for a long period of times, but it will gradually get better and better. You will get glutened too, especially in the beginning. Google, google, google...
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It does sound like celiac. Those pins and needles I'm familiar with too. That skin rash is probably urticaria. It looks very similar to insect bites. I've had those too many years ago. About the constipation. Yes, it can get worse on a gluten free diet because it's lacking in fibre. Try a gluten free fiber supplement like psyllium seeds. But you shouldn...
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Thank you for all your support through this! Just want to let you know that I'm alright. I slept through the night for this first time in 3 weeks. I even went back to sleep for a couple of hours and got out of bed at 8. Anxiety attacks are completely gone. Still having some twiching and stuff, but nothing that's bothering me too much. Stool is back to my...
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Now I'm convinced. IT'S GLUTEN! Today I got the same "weird feeling" I got during the last glutening. Very hard to describe the feeling. I'm very foggy, my body feels soft and warm. I'm extremely relaxed in an unpleasant way. Feels like I'm on drugs or in a dream. My legs feels like jelly and when I stand up for too long I get the sensation that I'm falling...
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Thank you so much for this information! I suspected this. Got diagnosed 6 months ago. Deep cleaned the kitchen, bought new pans, new cutting boards etc. Googled all ingredients in facial creams, makeup etc. Been very strict with foods, but despite all this I've been glutened 3 times.
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A little improvement. Woke up after 4,5 hours (at 2:30), but this time I was still tired. Had some difficulties going back to sleep again, but I didn't care. Don't know when I fell asleep again, but I guess it was an hour later, at 03:30. Woke up at 5. This means I got a total of 6 hours of sleep this night. YAY! Although I'm tired, there is a difference...
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I don't have severe diarrhea. It's only watery once in a while. Most of the time it's just soft, but I pass stools more often than normal. I don't think I'm dehydrated. I'm drinking water and urinate like crazy. Almost like a diabetic. I'm gonna ask for a full blood work. Still on sick leave and I will ask the doctor for even longer sick leave. I'm gonna...
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I'm experiencing the same type of symptoms right now. Muscle twitches and burning sensation, but the burning is located in my feet. I had another episode of this 4 years ago and it was even worse then. This was before I found out I had celiac disease. It disappeared after I found out I had a severe vitamin D deficiency. But it took a while. I took monster...
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Thank you for all your replies! Unfortunately, my condition hasn't improved much. Anxiety is worse, bowel movements more frequent, sleep still sucks, muscle twitches are worse, getting palpitations, hot flushes, thirst, tremors, losing weight without trying etc. I've booked a doctor's appointment on Monday. I'm beginning to suspect my thyroid. I have...
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knitty kitty: I know what it's like. Going to several doctors with tons of symptoms and they find nothing is wrong with you. Isn't that weird? That something so well known as celiac disease can be missed by so many doctors for so many years? Slept better, but still not good. It's going to take some time to reset this. Read more about that shift work...
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Could it be caeliac?
BuddhaBar replied to Karaokequeen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You have a lot of the same symptoms I had. I thought I was multi-sick. That I had tons of issues, but it turned out it was only one. The thing about Celiac disease is that it can affect almost anything in your body and a lot of the symptoms are also symptoms of other diseases. My experience is that a lot of doctors are not really good detectives. They just... -
knitty kitty: Now, that's what I call knowledge! Last time I got checked my b12 was alright. I take b-complex daily. Took my vitamin D an hour ago. I take D3 too. The omega 3 is not a problem here. We eat some sort of fish almost every day. I've been eating very "clean" for many months, but the holiday season with all it's food and candy. I thought I...
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Yes, you can buy a celiac test at the pharmacy. It's a simple blood test. Only a positive or a negative result. It indicates if you have gluten antibodies or not. The test I got was 96% accurate. I got 2 tests just to be sure. The waiting for the doctor's test results are pretty frustrating. And then there is the waiting for the endoscopy. And you...
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Like a lot of celiacs, my journey to diagnosis was a long one. I suspect my Celiac genes got activated about 4 years ago. I got constipated at first. Not anything severe and I thought it was my diet. Didn't pay much attention to it. Then the sleep issues started. I didn't have anxiety, but I wasn't as relaxed as I used to be. I had just started a new...
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Thanks for your comments! My worries about fatal insomnia probably stems from my anxiety which stems from the insomnia. Kind of a vicious cycle. It's probably a combination of various things. First of all I worked 4 night shifts before Christmas and completely reversed my biological clock. Second, I think I'm one of the super sensitive celiacs who reacts...
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Now I've decided to stop worrying so much! Or at least try to not worry. Not sleeping, but I don't care. Gonna stay up for 24 hours listening to happy music and try to reset my sleeping pattern. Hope it works.?
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Is Endoscopy Necessary?
BuddhaBar replied to Olivia28's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had an endoscopy years ago due to reflux issues and it was the most terrible thing I've ever experienced. So you can imagine how I felt when I found out I had to do one more! But I asked the doctor if I could get a double dose of sedatives and also double dose of throat anesthetic spray. I don't remember anything of the endoscopy until they were almost... -
I'm a woman, but I lost about 20% of my hair due to celiac disease. Been gluten free for 6 months, but my hair hasn't grown back. It's still thin.
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New member here :) I'm a 37 yo woman who got diagnosed with Celiac disease 6 months ago. I've been gluten free ever since. I've had some troubles with sleeping, but not anything severe, but this time it's REALLY bad. I don't know if I've been glutened or if this is something else. I'm kind of a hypochondriac sometimes so I'm really scared it's that...
