rt-116
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About Me
26 year old female diagnosed with coeliac disease by tTG and endoscopy in January 2020. Happy to speak to anyone concerned with symptoms. Looking for recovery advice and tasty food ideas! 
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Hi everyone, bit of an odd question from me today. I'm almost 5 months gluten free and really starting to feel some benefits health wise. More energy, less stomach pain, less anxiety, less diarrhoea etc, and I am no longer anemic whereas my ferritin levels have increased. However, my question is - has anyone ever glutened themselves once, on purpose...
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cyclinglady reacted to a post in a topic:
Frustration and worry
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knitty kitty reacted to a post in a topic:
Frustration and worry
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Frustration and worry
rt-116 replied to joeycass123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi there Sorry you're feeling so lost at the moment. I have been exactly where you are. I also had ALL of the symptoms you had. I myself thought it was anxiety and so did my friends and family whenever I voiced my concerns. I also thought maybe ibs, or my imagination. However, I finally went to the doctors after a few months of this and it was... -
Thank you so much for your response, this is encouraging to know. Perhaps I am being v impatient! Would it be possible for you to tell me what symptoms you had who u persisted? I am low on vitamin D as well so this would be really useful go see if we are similar. Thanks so much again!
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Hi everyone. Might be a bit of weird ask... but I was wondering if anyone could tell me about any negative experiences / difficulties they had / problems that persisted during the initial few months /year of going gluten free. I've seen a variety of experiences and many positive, but i've been gluten free for two months now (not very long I know!) and...
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rt-116 reacted to a post in a topic:
Twitching.... Keen to hear others experiences
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rt-116 reacted to a post in a topic:
Twitching.... Keen to hear others experiences
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Thank you so much for sharing!
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rt-116 reacted to a post in a topic:
Twitching.... Keen to hear others experiences
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Thank you so much for your comments and the information!
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rt-116 reacted to a post in a topic:
1 month in, still struggling, Dietician and Drs coming up.
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rt-116 reacted to a post in a topic:
1 month in, still struggling, Dietician and Drs coming up.
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Thank you so much for your thoughts and for sharing your experiences. Really appreciate it!
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Hi everybody I've posted a couple of times previously on here and found the advice from you lovely people really useful and supportive. I'm sorry for any repetition in my post today - currently at work feeling completely overwhelmed and tearful all over again at current symptoms and feelings and thought I'd try and seek a bit more advice. Brief...
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I'm sorry you are struggling so much with all those horrible symptoms. And for so long too. I can relate, I thought I was going crazy - most of the symptoms I discussed with friends and family COULD have been attributed to anxiety, it's what they all told me, so I ended up trying to convince myself the same. During an appointment with a very very kind doctor...
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Thank you SO much for posting these links. Started reading them already and incredibly helpful. This forum is amazing for advice! Many thanks again.
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Incredibly helpful thank you so much for sharing your experience. I am really keeping this in mind.
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Hi everyone I was diagnosed with coeliac disease 2 weeks ago. I have been eating gluten free and trying my best to avoid cross contamination. I would be really grateful to hear from anyone who had any kind of twitches pre and post going gluten free, as mine have still not resolved. I am aware of other scary diseases that can cause twitching but...
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Really helpful reading your experience. Thank you so much for taking the time to share.
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Thank you so much for your thoughts. Its been such an overwhelming couple of days and this has been very helpful! Thanks!
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rt-116 reacted to a post in a topic:
Recently diagnosed - Question about vitamins
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Just wondering what vitamins people were advised to take after diagnosis? I am anemic so think I need to improve my iron, presuming low on b12 and D but am yet to have full vitamin checks. Obviously will have these checked soon. Of course will vary for all, but just curious about the advice given to others prior to seeing my GP again. If you do...