GodsGal

I have to admit that, as someone with celiac disease, I feel for the mom in this story. I know that there are some gluten free baked goods that are not very palatable. However, there are some that you would never know were gluten free unless someone told you. 

1) The child is 1 year old. They most likely won't remember, or care, whether it's gluten free or not. And likely, if the parents don't make a big deal about it in the future, the child will never even think about it.

2) I would be curious as to the nature of the father's aversion to the gluten free cake. Is there any medical reason at all? Or is it simply a preference? If it is simply a preference, then I would say that whether or not he chose to eat it would be his choice. And he could choose whether or not he wanted to participate in that way.

3) The mom doesn't have a choice in the matter. With having celiac disease, if the cake contains gluten, she will not be able to participate. For that reason, I would tend to agree with the mom.

But I also wonder if they would be open to a compromise. Would they consider cupcakes instead of one large cake? Half of the cupcakes could be gluten free, and the other half could be regular. That would be one way that he could have his preference, and she could be safe.

On 2/1/2022 at 9:23 AM, Guest Jared in NC said:

The airport didn't have salads? That's really difficult to believe. I'm having a hard time feeling sympathy over them having to spend 70 pounds given that they're wealthy enough to take a ski trip in the posh Italian Alps. Stories like this do more damage than good for the celiac community.

One thing that I really appreciate about the celiac community is the fact that even though our stories and situations (economic or otherwise) are diverse, we can still relate to the stories of the food challenges that we all face. I honestly feel bad for the family. Not being able to find food is one of my biggest concerns about traveling.

I feel like that there may be some, rather personal, information involved that we as readers don't have. For example, in addition to celiac, I also have intolerances to dairy products, some varieties of lettuce, and certain raw vegetables. So, if I am to eat a salad I need to know:

1) What vegetables are in the salad?

2) What is the potential for cross contamination?

3) Are there any croutons, noodles, granola, etc?

4) Is there a dressing? If so, what is in the dressing?

5) Are there any dairy products in the salad?

6) Are the salads pre-made, or are they safely customizable? 

I miss the days where I didn't have to worry about what I was eating. 

31 minutes ago, Hellodee said:

Diagnosed 2006 and was told to find a dietician to help me with my meals. We were on Military salary and I couldn't afford that. I was not comfortable with my knowledge of hidden gluten until I'd been on the diet for 10 yrs. Most of my doctors say I'm allergic to wheat and have THAT written in my chart. Doctors need more training. I know more than my GP does about Celiac and that's not right. I did more crying that first year after diagnosis than I care to admit. I still avoid eating at any social gathering and I rarely eat in restaurants. I use my Celiac to get out of most food related social gatherings. I hate 'good intentions food' because if I didn't watch you make it or if you're not Celiac, I feel bad refusing your food but I WILL NOT eat it.  

I think we should have a "buddy system". People can sign up at the doctor's office to help newly diagnosed celiacs shop for food. I would love to help someone not feel so alone at the market. I'm the only Celiac in my family. How did I get so lucky?  Those are just my thoughts.

I like the buddy system idea! 👍

3 hours ago, Guest Liese N said:

My daughter was diagnosed in1989 and she was 2 years old. It fell on me to read thousand of labels with mush confusion. nobody believed me. They thought I was making it up!  Modified food starch was said it came from wheat but we later found American modified food starch  was only made from corn. I could go on and on. No help from the doctor (he said it’s kind of funny) but he  knew nothing. Vinegar was a question,  I had to make everything from scratch. Bread, pizza crusts, desserts. I could go on and on. I helped started the a support group in Westchester NY. There is much more help. Every product tells you if there’s wheat or even if it’s gluten-free.  Take your time and eat as much natural foods as possible.  Don’t give up!

 

 

I can't imagine how hard that was. Thanks for being a part of the group who blazed the trail for me!

I totally agree. I would be a little careful about how the dietary information is presented though. Right after diagnosis, I would sometimes struggle with information overload. So, I think that having a good support system is vital.