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GodsGal

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GodsGal

  1. GodsGal
    Yes, mucus can come alone. Have you been tested for celiac disease?
  2. GodsGal
    Hi Malcolm! I have seen that mucus too. When I see that, I know that something slipped past my radar, and is irritating my bowels. Then I start looking back over the past several days to see if I could have been cross contaminated, or if I ate something I have not tried before. I have to avoid oats and dairy as well wheat, barley, rye, and spelt. And...
  3. GodsGal
    Hi Heidiho2! Thanks for posting your question. I think we all face that scenario. Is it comfortable? No, it is not. If I am invited to a meal, I explain that I have celiac disease, and that I have a very strict diet that I have to follow, I ask if they would mind if I bring my own food. If I am being invited to a restaurant, then I would call...
  4. GodsGal
    Hi Meena! Thanks for posting! It is very common for those of us with celiac to need to take supplements. And that's because the damage that has been done to our duodenum and small intestines doesn't allow us to absorb the vitamins we need from our food. I have had low iron levels from time to time, low vitamin D, and I am trying a B complex vitamin now...
  5. GodsGal
    That looks interesting! Thanks for sharing. I have not done the gene testing. It would be interesting to know.
  6. GodsGal
    Yes, vitamins can contain gluten. So, you will need to make sure that they are gluten free.
  7. GodsGal
    Hi again! I am sorry that your dietitian appointment didn't go well. I hope the next one is better. Here in the USA, things can be labeled gluten free and still have up to 20 ppm of gluten in them. You will want to look for things that say "certified gluten free". Most of the certification companies, like the Gluten Free Certification Company, will certify...
  8. GodsGal
    I get it. My symptoms were not noticeable to other people. I was asleep when they did the endoscopy. So I never actually talked to the doctor who did the test. He just told my mom that everything looked ok. So, when the results came back from the lab, and I definitely had celiac, there was quite a bit of denial. On several occasions I heard, "The doctor said...
  9. GodsGal
    My symptoms were more GI related and a rash on the back of my hands. I was having upper right abdominal pain, bloating, foul smelling bowel movements, and food intolerances. But, for me, I didn't suspect celiac at all. Other than the abdominal pain, I thought that all of the other symptoms were "normal for me". So it was a shock when I got diagnosed. Are...
  10. GodsGal
    Hi, You said that you have celiac symptoms. Have you been tested for celiac? It could be DH, but it could also be something else.
  11. GodsGal
    Hi Sabaarya, Anxiety is pretty common. Especially in the beginning. There is a lot to learn, and it's pretty overwhelming. Many people live long, healthy lives after going gluten free. I am only about 18 months into my diagnosis. So I am still in the healing stages. How long have you been gluten free? My understanding is that it takes an average...
  12. GodsGal

    Confused and upset

    GodsGal replied to Belll's topic in Doctors

    My understanding is that a written request, whether it comes in paper form, or through email, it becomes a part of your patient record. Then it is harder to dismiss or ignore. I know that it is a lot, and it is probably overwhelming sometimes. You can do it! We're in your corner.
  13. GodsGal

    Confused and upset

    GodsGal replied to Belll's topic in Doctors

    I think that your first post was just fine. I think that it helps to communicate the full picture and exactly how you are feeling. And, that is important. Honestly, the thought of a gluten challenge would scare me too. Also, there are hundreds of symptoms that can be caused by gluten issues. Your symptoms are valid, and they are worth looking into...
  14. GodsGal

    Confused and upset

    GodsGal replied to Belll's topic in Doctors

    Hi Belll, That is rough. Keep in mind that in order for your tests to be accurate you will need to be eating the equivalent of the amount of gluten found in 2 slices of wheat bread each day. You will need to be eating gluten for 6-8 weeks for the blood serum test, and 2 weeks for the endoscopy. I agree with Trents. You need to be seen by a different...
  15. GodsGal
    I am so sorry to hear about your grandma. That's tough. Be gracious with yourself. Going gluten free is harder than it seems. Because of all of the hidden sources, cross contamination, and the lack of understanding about eating gluten free as a medical necessity in society as a whole, going gluten free is not for the faint of heart. It often requires...
  16. GodsGal
    Hi Ashtae220, Thanks for posting. I can imagine that it would be confusing. I am not a medical professional. From what I have read, my understanding is that it is possible to have positive blood work and a negative biopsy. I read that there are situations and locations where celiac disease is diagnosed based solely on blood work. Would you be willing...
  17. GodsGal
    Hi, I'm sorry to hear that you are going through a family health emergency. That's hard. I am assuming that when you talk about sources of gluten you are probably talking about bread vs. pasta, and not corn vs. wheat/barley/rye/oats. Am I understanding that correctly? I don't have NCGS. I have celiac. I am not a medical professional. So...
  18. GodsGal
    Iceberg lettuce is terrible for me. I'm doing better with cucumbers since going gluten free.
  19. GodsGal
    One website that really helped me out as I got started is glutenfreewatchdog.org. Also, this might be a good place to get some information!
  20. GodsGal
    Hi! Welcome! I'm not a medical professional, so please don't take this as a diagnosis or medical advice. It could be celiac disease. But it could also be something else. I would keep asking for the test. Would you be able to see a different gastroenterologist for a second opinion? You mentioned a rash. Have you seen a dermatologist? I hope...
  21. GodsGal
    Glad you are feeling better!
  22. GodsGal
    I would not trust it, especially if the product is not certified gluten free. I ordered some spices the other day. Unfortunately I didn't read the label close enough. When they arrived, I saw "may contain traces of wheat." I gave it to my neighbor. 😊
  23. GodsGal
    Glad it was not any worse than that!
  24. GodsGal
    Sounds delicious! I am in the USA. I am very familiar with most of what you described. You are making me hungry!😊 I have a weird schedule, so it makes it hard to have time to make full fledged meals sometimes. I like simple, one pot meals. One of my favorite things to do is put some rice, vegetables, and a can of gluten free beans in the rice co...
  25. GodsGal
    That is a really good question! I don't know. Did you give it a try?
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