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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by GodsGal
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GI symptoms not going away
GodsGal replied to Kate1990's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Kate! I'm not a medical professional, just a friend on the journey. I can imagine how difficult and discouraging this experience must be. I sounds like you are doing the right steps. Have you consulted with your GI doctor? -
Gluten free fresh pasta recipes please
GodsGal replied to Happy tummy's topic in Gluten-Free Recipes & Cooking Tips
Hey Alex! I appreciate your attitude as well! I definitely had some cookies flop on Friday. But they still tasted pretty good! Hope your next batch of pasta works well! -
Hi Skoit, I don't know if anyone has studied gluten, sugar, dairy addiction. What I do know is that it took a while for my body to get adjusted to the new diet. Stick with it. It will get better. Have you worked with a dietitian? They can help you make sure that you are getting the nutritional balance you need. Part of it for me was also...
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Hi Alan, First I want to say that I think that it is really cool that you are studying medicine! I think that having experienced gluten issues yourself, you will be better able to understand and support future patients. Sometimes it takes awhile for the people around us to really understand and come to terms with what is our new reality. Especially...
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14 years after diagnosis I’m cheating
GodsGal replied to Gluten-Hater's topic in Coping with Celiac Disease
My heritage is more progressive as well. My roots are in Virginia. I very much appreciate modern technology. 🙂 It's interesting that in all of life, we have to decide what we need to let go of, and what we want to hold onto. And for those of us with celiac and other food issues, the question might look more like, "Can I adapt this recipe in some way? O... -
Hi Brian, I am not a doctor, but I have been living with a celiac disease diagnosis since February of 2020. It sounds like you may have a more "silent" form of celiac disease. I can understand how it would be hard to take it seriously. But, it is important. My understanding is that if we ignore celiac disease, it increases our risk of major illness....
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Does this sound like celiac?
GodsGal replied to Skoit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Skoit, Going gluten free is tough. And, it can be overwhelming. In the beginning, I felt like I was trying to get a drink of water from a fire hose. Just a thought... You should also look at non-food items in your home for gluten. Check any toothpaste, lotions, cosmetics, soaps, detergents, shampoos, conditioners medications, pet food, etc. That... -
14 years after diagnosis I’m cheating
GodsGal replied to Gluten-Hater's topic in Coping with Celiac Disease
Trent's, thanks for mentioning the church activities. I am experiencing that reality as well. The Mennonite Relief Sale is happening soon in my area. Part of me wants to go, but I know that it will be hard. "Food, food everywhere, and not a bite to eat." There will probably be some raw vegetables and fresh fruit. But the other food will likely be... -
14 years after diagnosis I’m cheating
GodsGal replied to Gluten-Hater's topic in Coping with Celiac Disease
Hi Glutenlover, I know that it is tough. Celiac disease feels very isolating for me too. Some people "get it" and others don't. I also have a hard time affording food sometimes. The struggle is real. Hang in there. You are not alone in this. I have not binged, but I have been tempted to. Do you know any people in your area who also have celiac... -
Hi Hulia, I agree that you should probably consult your doctor. I think that mine was caught in the beginning of my "Celiac crisis", so it was not blatantly obvious. But, after going gluten free, I started noticing symptoms that I thought were normal for me starting to go away. I don't know what options are available to you if you do need an endoscopy...
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Hi Suila, thanks for sharing. I also was diagnosed around that time. It really is hard in every aspect. Physically, emotionally, mentally, spiritually, relationally, socially, every part of our lives is affected either positively or negatively. It's a major change in life. And, it can feel lonely. How are you doing now? Have you been able to find people locally...
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Hi Daphne, I just saw that the Dietz & Watson gluten free hotdogs are certified by the Celiac Sprue Association. If I understand correctly, they certify to 5 ppm.
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Hi Susie, I got my diagnosis in February 2020. Many of us with celiac disease also have other foods that trigger problems. Milk and oat products are problematic for me. As are some raw vegetables. I can have issues if I get too much soy. I have seen others post about not doing well with xantham gum. 🥴 I am curious...are you eating gluten free pr...
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Intestine healing
GodsGal replied to EdenLaShae's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You are very welcome! @Scott Adams mentioned a website awhile back that has been very helpful for me when checking for gluten in medication. dailymed.nlm.nih.gov -
Intestine healing
GodsGal replied to EdenLaShae's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi EdenLaShae! Have you checked for gluten in non food sources? Have you checked your toothpaste, soaps, detergents, shampoo, lotions, cosmetics, medications, or any pet food you may come in contact with? Gluten seems to be everywhere. Are you eating any processed food? If so, look for certified gluten free labels, and check the ingredients list... -
Interesting to think about. There could be a connection.
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- casein
- cows milk protein
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Do these symptoms fit?
GodsGal replied to alittle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! Sorry you are feeling so bad! That's no fun. I am not a medical professional. Please don't take any of this as medical advice. I think that you are definitely on the right track and that you are wise to wait on going gluten free until you get the tests/scans done. A couple of questions are coming to mind: 1) You mentioned that your symptoms... -
Seronegative 5 year old?
GodsGal replied to Karly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Keep us posted! -
Need some help regarding rice
GodsGal replied to bmdRsq21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi! I would try the rice cakes as well. Make sure you read the labels though. Some of them have milk in them. -
Seronegative 5 year old?
GodsGal replied to Karly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Karly! Have you checked things like toothpaste, soaps, lotions, pet food, etc for gluten? It's amazing where all gluten can be found. -
worried about endoscopy
GodsGal replied to ellajones's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Ellajones! Glad to talk to you. I hope your exams are going well. I realize that you are starting a gluten challenge. I am curious, how long have you been gluten free? Sometimes it can take a long time for your gut to heal and for symptoms to improve. And sometimes gluten can be found in crazy places like toothpaste, soaps, cosmetics, lotions... -
I'm not a medical professional. Just a friend with celiac. So, I can only speak from my personal experience and from what I have read. I have not had any problems with eggs. The problem that many of us have with milk is an intolerance. Sometimes it is with the milk protein (casein), and sometimes it is related to the sugar (lactose). I actually discovered...