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GodsGal

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GodsGal

  1. GodsGal
    I have not been diagnosed with it myself, but I do have a friend that was diagnosed with rheumatoid arthritis related to gluten intolerance.
  2. GodsGal
    I know that it is hard, but I would definitely stop eating oats and dairy products. Many of us can't eat them, especially while our guts are still healing. Celiac wasn't on my radar either. But, once I went gluten free, I began to realize just how many symptoms I did have that I thought were normal. I really like Vanicream skin care products and...
  3. GodsGal
    Yes. Healing is a long process. Good job with the blood vitamin levels!Hang in there, my friend!
  4. GodsGal
    Hi! I think that you are on the right path. Have you checked for any less obvious sources of gluten? It can be found in toothpaste, soaps, shampoos, lotions, etc. I know that my skin feels much better if I use gluten free products. Are you eating oats and dairy? If so, they may be contributing to your pain. I hope this helps!
  5. GodsGal
    Hi! I personally use 7th Generation detergent products for my laundry. Their website said that they test for gluten. And I have had good results!
  6. GodsGal
    Hi Bill, I would probably recommend replacing wooden utensils. Also, you will need to check for gluten in things like your toothpaste, lotions, soaps, and medications. And, I would recommend changing your toothbrush. It's a big change that you are going through. I think that a nutritionist is a good idea. I found it helpful. Also, do you know...
  7. GodsGal
    I would recommend that your daughter see a GI specialist. I know that it can be awkward at restaurants. We get to be ambassadors for celiac disease. That's not an easy job. But you can do it!
  8. GodsGal
    I can totally relate! I'm not that sensitive to it, but I get scared too. And being able to participate in fun activities is absolutely vital. I guess we are both human, huh?😊 Speaking of campfires, have you found a good marshmallow? I have reacted to Kraft marshmallows. But the Campfire brand works well for me. I will have to check out those sausages as...
  9. GodsGal
    I am finding a lot of success with seventh generation laundry detergent and dish detergent. I also have been able to use vanicream products. I am currently making my own shampoo (equal parts coconut milk and castile soap). I follow that with a rinse made from equal parts apple cider vinegar and water (if you use this rinse, be careful not to get it...
  10. GodsGal
    Hi JDNJ! First of all I want to say that your daughter is blessed to have you as a parent. I can tell how much you care. I know how cranky and irritable I get when my belly hurts. I would say that what your family is experiencing is pretty normal. In addition, at her age, is she also experiencing the beginning of puberty? Do you know other...
  11. GodsGal
    I do know that there is a third party group that uses the Sandwich R5 ELISA and the Competitive R5 ELISA to test for gluten content. And sometimes things test to less than 5 ppm. But I am not aware of any official organization that officially certifies at 5 ppm. If you do find one, I would love to hear about it! Hi Daphne, I realize that...
  12. GodsGal
    I do know that there is a third party group that uses the Sandwich R5 ELISA and the Competitive R5 ELISA to test for gluten content. And sometimes things test to less than 5 ppm. But I am not aware of any official organization that officially certifies at 5 ppm. If you do find one, I would love to hear about it!
  13. GodsGal
    Thanks!
  14. GodsGal
    Hi Friends! I have celiac disease, can't eat oats, and I have a dairy intolerance. Recently I found out that I need a tonsillectomy. My first thought was what in the world am I going to eat. My second thought was, my friends and family are going to want to bring me food. 😥 I have come up with a few ideas regarding smoothies, broth, gluten free da...
  15. GodsGal
    Another thing that I have read is that when you are substituting gluten free flour for regular flour, you should use a kitchen scale and substitute by ounce/gram instead of cup for cup.
  16. GodsGal
    Hi Kristi! Thanks for sharing. I have also struggled with feelings of depression and isolation. We have had a significant loss. Celiac disease was not on my radar until I got tested for it. And it threw me for a tailspin. I have been able to speak to a counselor, and that has helped a lot. Is there a counselor in your area that you can talk to? It sounds...
  17. GodsGal
    Hi! I'm glad you are here. I agree with the others that you are going to need a new doctor. No one person can know everything. And, with as many diseases and ailments as there are out there, even the best doctors don't know everything.
  18. GodsGal
    I'm not a medical or mental professional. I also want to say that I agree with @trentsand @Scott Adams. Violence is never ok. You need to focus on your physical safety first. I don't know where you are located. Is there a domestic violence shelter in your area? They would be someone who could help you plan the logistics involved in leaving safely. I...
  19. GodsGal
    Your symptoms sound a lot like what I experienced before diagnosis. I have not had any major flare ups since going gluten free. My understanding is that it can take quite awhile for symptoms to clear. Unfortunately, 4 days or longer is not uncommon. 😞 I would also suggest that you check for any potential sources of gluten that you may be getting into. E...
  20. GodsGal
    Hi! I am not a medical professional. I think that your symptoms are pretty common for either a gluten intolerance or celiac. I would suggest that you talk with your doctor.
  21. GodsGal
    Hi! I am not a medical professional. I think that your symptoms are pretty common for either a gluten intolerance or celiac. I would suggest that you talk with your doctor.
  22. GodsGal
    Yeah, that is the only thing I can think of as well. I am guessing that the scope was not powerful enough.
  23. GodsGal
    The surgeon didn't even see me after surgery. He just told my mom that "everything looked fine." That statement created a lot of confusion. And, after I got the call telling me that my biopsy results were positive for celiac, I had to face quite a bit of, "Are you sure you have celiac? Is it possible that there was a mixup in the lab? The doctor said everything...
  24. GodsGal
    Hi Daphne, I don't know if I am as sensitive as you. However 20 ppm is WAY too much for me. So far, I have done best with Applegate Farms (I think that they are certified to 10 ppm), and boar's head (not certified, but seems to be very gluten/allergy aware). I don't know if this information is helpful or not. Keep us posted!
  25. GodsGal
    Hi JCS! Yes, there is a huge learning curve. I felt totally overwhelmed at the beginning. And it is hard. But you can do this. Don't forget to breathe. I am not a medical professional, just a person who has also been diagnosed with celiac. You will need to avoid wheat, barley, rye, and probably oats as well. Read labels carefully, even the ones...
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