Susan in NS

I agree. Dr.'s love to throw IBS at everything. My husband's grandmother died of stomach cancer as did my natural father..I'd bet they both had it for years.

I wish it would become more standardized in testing...a simple blood test! It should be a part of regular check ups. I know at least 3 people who have a lot of the symptoms and have never been tested. When I list the symptoms they shrug and probably wont talk to their Dr. As the Dr. didnt come up with it. If more people were tested then more manufacturers...

Thank you for the articles, I will read them to my family. I believe all 3 of us have it but I am the only one who has been tested. I threw out all the gluten in the house and there was an almost immediate improvements in um ...bathroom/stomach issues lol that had been ongoing for years for my husband. I am trying to convince him to go to the dr. As well...

Heathy diet will be a huge obstacle for me tbh I have the eating patterns of a 12 year old at an unsupervised sleepover. I'm a Baker by nature not a cook. But it's a learning curve. I do believe that it's a hugely under diagnosed disease. I believe my husband and spouse have it as well, my son (21) has had issues since about 12 and decided on his own to try...

I've heard of people waiting 3 years for scopes right now where I am. My scope was scheduled in Feb 2019, it was not originally booked because of this issue but because a lasik eye surgery apt showed bear tracks in my retina which could indicate colon cancer. As I have a hiatal hernia the dr threw in the upper scope as well to do a check on that. I called...

I believe you 100% I believe I have had it for so long that all the symptoms became a new normal. I chalked a lot down to normal middleage (51) until the persistant pain in my side came along and thr blood test came back then I read the symptoms and couldent wait to go gluten-free to see what changes would come. I am afraid that when I start again for the...

Are there other tests other then the scope? That sounds like there are other more dire tests that maybe in the future?

Thank you for your quick response but you are really putting a damper on my imagined gluten food fest lol...I have a bucket list of pretzels, chinese food and Montana cajun onions. If all I get is a slice it shall be fresh, homemade and dripping with enough butter to make a cardiologist cringe.

Hi, failed the blood test 250 so my dr. Says I'm celiac but need to wait for the scope. I stopped eating wheat about 4 weeks ago and see improvement but was already on a scope list (hernia) for 14 months. When they call to book- when ever that may be...how long should I eat gluten before being scoped?.I believe I have had this for at least 8 years as my ...