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M Susan

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  1. And whatever medication is finally developed and approved will probably be very expensive.
  2. My niece was "lucky". She has celiac in both sides of her family (her father and maternal aunt (me)) so when she went to the doctor with symptoms, they tested her for celiac disease FIRST and her numbers were very high. She didn't have to go through years of seeing doctors before her diagnosis.
  3. PS - But I when I had a problem with low iron, my primary doctor sent me to the best gastroenterologist to find out why my body was not absorbing the iron supplements she had me taking. She was worried about the iron, but not the diarrhea I often had. The FIRST thing the GI dr tested me for was celiac. He told me I had celiac disease the day before he...
  4. My Baptist church has communion (aka the Lord's Supper) a few times a year, with grape juice and special crackers passed down the pews (pre covid). Since I was diagnosed in 2007, I drink the juice and skip the cracker. The first time was only two weeks after I was diagnosed and I admit, I almost cried.
  5. Check Target UP&UP OTC meds. These generics are either labeled gluten-free on the box, or on the price label on the shelf below the product. I've been using various ones for years with no problems.
  6. When I was diagnosed at 49, my father was 74. His dr did not test him because "he had no symptoms". When Dad developed recurring diarrhea, the dr said he was lactose intolerant, without testing for celiac. It would have been easy to switch to a gluten-free diet because all he would have to do would be to eat my gluten-free cereal, bread, etc. His dinners...
  7. My niece was diagnosed despite a negative biopsy because - 1 - her blood test numbers were very high (I don't know which tests) and 2 - she has celiac on both sides of her family - her father and her maternal aunt (me) She just didn't have to go through 10+ years of damage to her villi before she was diagnosed. She was given the blood test...
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