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Kate333

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kate333

  1. Kate333
    💔for your dear mom, Beverly. "Life isn't about what happens to you, it's about what you do with what happens to you." What a wise, heroic woman!! So few of us get through this life without any trauma or pain. As Hemingway famously said: "The world breaks everyone and afterward many are strong at the broken places." Thanks for the kind, en...
  2. Kate333
    I hear you... The looting and rioting and crowds here were also just AWFUL. The glass doors a local pharmacy were shattered and its shelves looted. The stupid gov/mayor here said NOTHING to condemn, question it. They are too afraid of "offending" certain people (most of whom don't even bother voting).... I got a jury summons the other day!! Can you believe...
  3. Kate333
    Thanks for all that info, Bev! I wish you/family a safe Happy 4th! I am staying indoors as our gov her in Calif. just issued another order today, shutting everything down again....:(. Can't say I was surprised...crazy people here have been acting like bats out of hell, flocking to beaches, restaurants, bars and streets in droves since Memorial Day...
  4. Kate333
    Thanks Bev. I get so many different, even conflicting advice/opinions on this blog, from docs, product manufacturers, and in life that it's sometimes very confusing, difficult to know what to think....I am newly diagnosed and just learning...my blood tests are reduced from dx date but STILL too high after 6 mo. on gluten-free diet, so am trying to "sniff...
  5. Kate333
    Hi C. Mr. Bean is a hoot! I also loved to watch Monty Python & the Flying Circus. How cool to meet Hyacinth and thanks for sharing your memories of her. That woman made me laugh to the point of tears whenever I saw her on the telly. You are so lucky to have been invited to Buckingham Palace! How exciting! I really think you folks in the...
  6. Kate333
    Hi Cristiana, "I get very scared each time any gastro symptoms come back as I always think "What if it's this or that". Do you feel that too? It is too easy to google and I feel I've acquired a lot of unhelpful knowledge these past few years. (One consultant I saw for a lump in my tongue was convinced I was, like him, in the medical profession...
  7. Kate333
    I have had some same things others describe, esp. floaters and visual "aura" (VA) or "hallucinations". I am very nearsighted (NS) and have noticed/been annoyed by floaters most of my adult life. I never had VA before until twice last year (once in Sept. another in Dec.). Both times it came suddenly. The first time I was so scared, I ran across the...
  8. Kate333
    You're welcome Gratiba! I know I'm a bit long-winded (I will try to work on that!) and that some of my views, esp. re: negative effect of big pharma/influence of corp. $$ on medical research/treatment decisions, are still hotly debated--even in the medical community. But the last few years of health challenges and personal experience have certainly...
  9. Kate333
    Thanks for sharing Trents and the great advice! You are so right....Whenever I get hopping mad/wallow in self-pity (seemingly ALWAYS these days), I need to tell myself ("What can you do to feel better/heal?" rather than "How did this @#$% happen and what did I do wrong"..."What else can go wrong in life?"). I probably need to spend less time on the Internet...
  10. Kate333
    LOL. I wish Vera aired here in "The Colonies" (I live in Northern California); it seems like great fun! I get my daily telly "Brit-fix" from PBS (Public broadcasting System) and BBC and, unfortunately, Vera is not on either channel. (I don't have to translate that acronym for you!😉). I esp. love the old rerun Brit-coms "Keeping Up Appearances" (remember Hy...
  11. Kate333
    Hi C. No I haven't seen/heard of "Vera" yet but it sounds really interesting! I hope your MRI goes well and you are feeling better. Today has been really hard for me. I awoke this morning only to have stomach cramps followed by MULTIPLE loose BMs (about 4 this AM so far!). Has Celiac ever so dramatically messed with your digestion or given you these...
  12. Kate333
    I hope you get off that stuff soon. Here is a NIH study linking it to ESRD (end-stage kidney disease). It's also been linked to dementia and osteoporosis. And PLS!! stay home as much as possible, socially distance, and wear masks if you go out. I see so many people--seniors, even!!--risking their health/lives during this pandemic. Oops....
  13. Kate333
    Understood. I only wish I even knew enough years ago to even ask for a celiac disease test. Had I begun a gluten-free diet much earlier, perhaps my gut and overall health now would not be so compromised. (I read celiac disease-related gut damage is even much more quickly healed on gluten-free diet in childhood than later adulthood.) But you are in a better...
  14. Kate333
    No worries...I admit I am far too long-winded and my sentences often far too long and complex. Apologies if my comments weren't very clear. I'll try to remember Hemingway's great advice for keeping sentences simple and brief! 😉 I am happy you are feeling better. I just find it less stressful to avoid PPIs, get EGDs if recommended and have regular ch...
  15. Kate333
    I don't advocate vitamins, supplements, or naturopathy as a treatment for GERD or "all health problems". I also did not say that big pharma-funded studies "automatically" disqualifies or renders them "illegitimate" or that BE/EC are not linked to LT acid reflux. I merely said there are no studies to date showing that LT PPI use can prevent EC (2 different...
  16. Kate333
    I was diagnosed with "probable" celiac a few months ago after 5 years of taking PPIs daily. (I quit taking them after my most recent EGD/biopsies came were essentially normal.) Since then, I have suffered from CONSTANT daily digestive issues (D, C, gas). My doc also thinks I may have IBS as well. I was shocked/angered when I searched the net (...
  17. Kate333
    Christiana, I forgot to mention how delighted I am to "meet" someone who lives in BC on this blog! I am a HUGE Anglophile, from early childhood!! Rabid, lifelong fan of EVERYTHING British: Downton Abbey, "brit-coms," TV series "Victoria", JK Rowling/HP, Vivian Leigh, Julie Andrews, Dame Judy Dench, Petula Clark, Dusty Springfield, the Beatles, ALL of...
  18. Kate333
    Hi folks. Such interesting comments/perspectives! I totally understand why people rely on PPIs to control or reduce painful heartburn symptoms. That makes sense because they certainly do that very well by significantly reducing the amount of acid contents in the stomach. But I think it's a false sense of security to assume that PPIs will ever ...
  19. Kate333
    Hi Keight and KK, thanks so much for your detailed responses! KK, thanks for the comments/suggestions. My recent B12 test and others were all normal. I already take daily multivitamin, but I will also ask my doc for additional tests of thiamine, magnesium, iron, adrenal levels just make sure something is not being overlooked. Keight, your comments...
  20. Kate333
    Hi Keight. BTW love that name. As another Kate, I thought I already new every possible way to spell my/your name..:). Congrats on your latest bloodwork and I hope your upcoming blood numbers are headed in the right direction... A few Qs about your fatigue symptom: Could you pls. describe your fatigue, how did your body feel when it was its...
  21. Kate333
    Hi all. I am a newly diagnosed member. And have a few Qs: 1. What was your highest tTG test number (when first diagnosed) vs. your lowest now that you are on a gluten-free diet? My first # was 224. I have been gluten-free for 6 months and my last 2 readings were 73 and 81. I guess I should count myself lucky because I have heard that some folks...
  22. Kate333
    Thanks KK. Am just so new to all this...recently diagnosed and began gluten-free diet just a few months ago... There is so much info. out there, esp. "don't eat this...don't eat that" ..makes me so confused, afraid to even trust clear labels (gluten-free vs. "CERTIFIED" gluten-free??) or afraid to try anything that could [even remotely] trigger a bad...
  23. Kate333
    Hi Christiana...I hope you feel better soon...Interesting thread... 2 thoughts: 1. Have you considered that your muscle "pains" might possibly be the result primarily of intense or chronic stress/worries? Certainly understandable in this current pandemic. Mind you, I am not implying that you are a hypochondriac. But, based on MY OWN experience...
  24. Kate333
    Hi Knitty Kitty (love that name!). Thanks for your comments, encouragement, and article links. Very enlightening! I had heard of MTG, often called "pink slime," but never knew it was so commonly used not only in the meat industry but in so many others foods as well. And I thought my lunchmeat, labeled "gluten-free, Nitrite-Free, Antibiotic-Free and...
  25. Kate333
    Thanks AWOL and others. I have pretty much ditched ALL packaged food, even labeled gluten-free (with the one exception of gluten-free-labeled brown rice because I want to get some fiber in my diet). I mostly eat only meat, chicken, fish (bought raw and cooked at home by me), eggs, fresh fruits and veggies, which I thoroughly rinse before eating--CV paranoia...
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