jas3734

Don't be afraid to self advocate for yourself!

I too am over the lack of compassion with physicians not listening. I know there are great ones out there but apparently those aren't educated in rare diseases like DH. I have another urological condition called VUR that is typically outgrown by the time you are 12 y.o. I, however, did not outgrow it. The only doctors I can find that treat it are pediatric...

I've been taking hemp extract oil orally for a few months to calm my nerves during this pandemic. I just put a drop on an active DH rash and it gave some immediate relief. I also have a hemp extract lotion but that didn't seem to provide as much relief. The oil probably has more of a concentration of it.

I am not the OP but thanks for acknowledging that it is ok to not have a formal diagnosis. I struggle with this as I refuse to eat gluten for the tests. The saddest part to me is that I had to suffer for a year with this because no doctor had any idea of what it was. I wish I had found someone who could have suggested the testing back when I had a year...

I too am undiagnosed with DH. But I know that is what it is. I went to so many doctors about this rash and they just kept prescribing steroid cream and all ignored me when I told them I thought it was related to something I was eating. I went to an acupuncturist at the recommendation of a friend and she immediately told me that the rash was coming from...