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gfjennie

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  1. gfjennie
    got it, thank you, that is very helpful
  2. gfjennie
    that makes sense with everything I've heard and is a bit clearer I'm still wondering about outside of the intestines, our doctors have said there is an overall "inflammatory" response - is this also caused by the antibodies produced against Tissue Transglutaminase? or is there some other biological process happening?
  3. gfjennie
    I don't have any background in biology and was trying to understand the ttg levels - and this may be covered somewhere else in the site - is the ttg test just providing an indicator? or is the what the ttg test measures part of what is harmful to your body? Aside from the impact within the gut, I'm particularly interested in understanding what our doctors...
  4. icon gfjennie reacted to a post in a topic: how low is 20 parts per million (ppm) of gluten ???
  5. gfjennie
    good ideas! luckily he loves a vegan pesto we developed (with pistachios) and he likes things with almond flour and coconut milk or oil, loves avocados and eats tons of them, and I have been adding more olive oil to his stuff as well.... I think it probably is important to focus more on plant based solutions, so thanks for the suggestions and encouragement...
  6. gfjennie
    incidentally is your shoulder pain in joints or muscles? his used to be both, but felt it overwhelmingly in his leg muscles (he went from being a bit of a soccer player to barely being able to walk most mornings and also at the end of a school day). now he mostly has joint pain in his knees, and sometimes some muscle pain, but more often "deadness" where...
  7. gfjennie
    a little over a year and a half (TTG down from somewhere north of 100 to 20)... when he has stomach problems he doesn't eat dairy, but otherwise he does it and it seems to be fine... and the doctors have said it is fine for him to eat, but I do worry that it is inflammatory, so we work to reduce dairy and eat lots of veg, but at the same time he is also...
  8. gfjennie
    thank you... yes, the pain pretty much ensures he does not cheat. It had been rather debilitating prior to the diagnosis.
  9. gfjennie
    thank you for this, I'm eager to dig in to these links I had not heard of this, though we have learned about "decaking agents" and "wax" on non organic fruit.... dental products like toothpaste and floss.... what else am I missing?! if there are other processing agents or non-ingredient ingredients we should be watching out for please let me know...
  10. gfjennie
    Hi Sharona, my son gets muscle aches as well, though his doctors have said this is not a common side effect of celiac..... have you had confirmation that this is from celiac?bhis debilitating soreness has cleared up since he was diagnosed and went gluten free about 2 years ago, but when his stomach distress does flair up, so do his aches and pains. I...
  11. gfjennie
    looking at the ingredients, it is just corn four, brown rice four, mono and diglycerides I don't see any "pea protein" they say it is made in a dedicated gluten free facility, and certified gluten-free but perhaps the mono or diglycerides are contaminated it is totally a mystery to me why I (celiac) was a little sick, and my son (very...
  12. gfjennie
    My son and I both have Celiac. The last few times we've had this he seemed to react as though he's been glutened, and this last time acutely. He is more sensitive than I am and I did not have a big reaction, and could have just had "lasagna tummy" from eating too much as it is delicious. As for the possible corn sensitivity, he does not appear to have one...
  13. gfjennie
    gfjennie joined the community
  14. gfjennie
    me too! both me and my son definitely react to Kettle chips. I thought it was just the sour cream and onion, but also the plain. does anyone have any recommendation for safe potato chips from Trader Joe's (particularly in the crisp Kettle chip or Cape Cod chip style?)
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