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JD-New to Celiac

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JD-New to Celiac last won the day on March 30 2023

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  1. icon IrishCoeliacDad reacted to a post in a topic: Travelling to Orlando Florida from Ireland
  2. icon Scott Adams reacted to a post in a topic: Travelling to Orlando Florida from Ireland
  3. icon Scott Adams reacted to a post in a topic: Newly diagnosed and struggling
  4. JD-New to Celiac started following Genetic Testing for Celiac , Travelling to Orlando Florida from Ireland , Newly diagnosed and struggling and 7 others
  5. JD-New to Celiac
    Hello IrishCoeliacDad - I live in Central Florida and I have been successful in finding foods that are gluten free. Publix is another supermarket chain in the area. If staying on Universal property you'll need to do a rideshare like Lyft or Uber in order to get to Publix. I recommend the Publix on Sand Lake Road at Plaza Venezia. Whole Foods is right in that...
  6. JD-New to Celiac
    Megrosewalker - We have all been there. The shock of the diagnosis and then the ongoing challenge of what to eat and what not to eat. Upon diagnosis I tossed out all of my bakeware, toaster, and anything that I thought would expose me to a crumb of gluten. I recall being in the grocery store, going aisle by aisle and finding nothing to eat. Even today, after...
  7. icon Scott Adams reacted to a post in a topic: Help with ongoing issues and diagnosis
  8. JD-New to Celiac
    I am not sure if my challenges were entirely due to deficiencies but as my celiac symptoms got worse I found that I had pain in my joints. It seemed to travel from one joint to another. I had X-rays done of two of the more painful areas and I was told it was osteoarthrosis. They noted spurring in the knee and the plantar fascia. Bone density though is listed...
  9. JD-New to Celiac
    I have watched (very slowly) the Tissue Transglutaminase IgA levels go down over two and half years and late last year I was finally at a normal level. Then two months ago I started getting a painful and itchy rash on my elbows. Dermatologist just diagnosed it as dermatitis herpetiformis. Is it possible to get brand new symptoms even though I am fairly confident...
  10. JD-New to Celiac
    It is interesting that no one in my family that I am aware of has celiac. With that said on one side of the family there is a long history of various (and severe) autoimmune diseases. My sister was severely disabled from RA and died at a young age as a result. My uncle died at a young age from Addisons and on and on. There were so many. I would imagine there...
  11. icon Scott Adams reacted to a post in a topic: DQ2.2 Homozygous
  12. JD-New to Celiac
    I had my genetic testing done as well although the results were not quite as detailed as yours are. I did post them on this site but did not get any response. I have to assume that most do not have this testing done. Like you I was lost at what the results meant so I reached out to the online lab I used to get them done and the reply is that they are not...
  13. icon Scott Adams reacted to a post in a topic: Night Sweats?
  14. JD-New to Celiac
    I have been getting them more frequently. I pulled this from another post - "With all this said, my husband is actually at the doctor getting tested for celiac disease again this morning. Jeff was diagnosed last year with Sarcoidosis, which has done quite a transformation to his body. Sarcoidosis and celiac disease can be associated with one another." .....
  15. JD-New to Celiac
    Every month is a new symptom for me. The last couple of months have been excruciating muscle spasms when I stretch my legs. You know how you just want to raise your arms up in the air and then stretch your entire body. It should feel awesome but if I am not careful and I stretch my legs, I will get these unbearable spasms in my calves, thighs or feet that...
  16. JD-New to Celiac
    Yes, Trents, I do regularly take a whole list of vitamins and supplements. One member suggested a certain form of Thiamine HCI along with magnesium glycerinate and I take that along with a b-complex that a ENT doctor suggested I take (I have pulsatile tinnitus - he felt that might help). I am honestly not happy I have to pea protein but meat truly makes me...
  17. icon JD-New to Celiac reacted to a post in a topic: Self diagnosed for gluten intolerant
  18. JD-New to Celiac
    Well, yes, Tracy414, I am confirmed but based only on bloodwork. No biopsy. As one member has said at this point I have accepted the fact that I have celiac, but I thought doing the genetic testing would give me a guarantee of some sort. I have tried Google to research the test results and I am afraid I would need a much higher college degree to understand...
  19. JD-New to Celiac
    In addition to a gluten free diet I am allergic to dairy, soy, eggs, fish, oats and shellfish. That does not leave many options. I typically just look for gluten free vegan options but must watch they do not sneak in soy. In the US is a brand known as Naked and I go with Naked Pea as my go to for a protein supplement. There are not many protein options for...
  20. JD-New to Celiac
    I was wondering if anyone can explain the Celiac genetic testing I had done recently. I did one of the online tests and they really didn't explain the results. I never had the biopsy done but blood test showed positive results with 20 times the normal limit for the tTg IgA and Endomysial IgA showing a positive result and abnormal. HLA DQ2 = Postive ...
  21. icon Scott Adams reacted to a post in a topic: New Potential Diagnosis
  22. icon Scott Adams reacted to a post in a topic: New Potential Diagnosis
  23. icon Scott Adams reacted to a post in a topic: What should I have in my medicine cabinet?
  24. JD-New to Celiac
    Sorry K-Cope - I went off topic and I wanted to share my go to for a bread option. I have many other allergies besides gluten but found the brand Ener-G bread to be a good option. Until recently I was able to eat the Multigrain Loaf. The weird thing is this bread is vacuum packed and does not need to be frozen. One negative, I have seen online folks that...
  25. JD-New to Celiac
    I have to agree with looking at your diet. I am now on a low FODMAP diet and magically I am not having the horrible symptoms I was having. I believe I developed SIBO although have yet to be tested for it. Of course the cure creates other issues. I agree with the other post - Target acetaminophen, Phazyme, and I found something called Enzymedica Acid Soothe...
  26. icon Tracy414 reacted to a post in a topic: Celiac, IBS, SIBO and an online health clinic
  27. JD-New to Celiac
    Yes, that is my new GO TO...online testing. I use "Request a Test" and so far they seem to be legit. I just had the genetic testing done as I just wanted further confirmation. My doctor would not order the copper test that I've been reading about so I might get that done. Thanks for advice and indeed...healthcare is frustrating.
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