JD-New to Celiac
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Everything posted by JD-New to Celiac
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Has Anyone Gotten Covid Shot(s) Yet?
JD-New to Celiac replied to Kate333's topic in Coping with Celiac Disease
I didn't realize there were two posts on the vaccine question. Do we talk about anything else these days? Ugh. I added my question here as well... Has anyone been vaccinated with the J&J? I received my shot yesterday and I am finding the usual symptoms of pain all down the side of my body that had the injection, headache, nausea, fatigue... -
are you going to take the vaccine
JD-New to Celiac replied to DJFL77I's topic in Coping with Celiac Disease
Has anyone been vaccinated with the J&J? I received my shot yesterday and I am finding the usual symptoms of pain all down the side of my body that had the injection, headache, nausea, fatigue and my joints are flaring up. The one that is a bit more concerning is shortness of breath or labored breathing especially when I am lying down. It's not bad but... -
Need some Celiac advice
JD-New to Celiac replied to DemonKnight's topic in Coping with Celiac Disease
Hi DemonKnight - I am in no way an expert. I have just read quite a bit and I continue to learn as I go along. Like you when I got incredibly sick last summer I started to lose weight...45 pounds in a matter of two or three months. I met with a nutritionist but I found that each of us need to learn what our bodies will tolerate. During my initial diagnosis... -
I had a similar situation and thanks to one or two contributors on this blog, I opted to continue to stay off gluten and not do a biopsy. It was actually my PCP that diagnosed me with celiac based on blood tests alone. I have yet to have the genetic testing done but from what I understand you can be gluten free and get this done at any time. In the past I...
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Gemini - thank you for your detailed reply. It was very helpful. I've decided I am comfortable with the decision to be gluten-free and not worry about the biopsy. Again thank you for your time and interest.
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Hi Scott - thanks for the replies. I don't believe my doctor intended for the GI to diagnose me with Celiac. I believe if I recall he said that a GI is specialized in the disease and would better understand my needs going forward and that is why I was referred. I believe the reason for going gluten free was the weight loss and the current symptoms. ...
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It was good to hear that WBC low is normal for Celiac. One post I read suggested Lupus as I believe that will destroy white blood cells. You never know what you're reading though on the internet so I was not sure and the PCP did not know what might be causing it. Yes, Gemini, the doctor did order the EMA IgA test and it came back "Positive and abnormal...
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I was wondering if anyone has done the video endoscopy capsule (VEC)? I don't want to do the traditional endoscopy, so I read this is an alternative. From what I understand there is a risk of the capsule getting "stuck" along the way? I'm not sure the VEC is even necessary. I was diagnosed about ten days ago with Celiac just based on blood-work and symptoms...
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Thank you for the replies. Yes, PCP did diagnose Celiac and told me to go on a gluten free diet immediately, which I have been doing for about a week. He did refer me to a GI, but with crazy virus situation the appointment was at that time over two weeks. Yes, other symptoms lost 30 pounds over two months and I am still losing. Loss of appetite. Low...
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I am a newbie and I was wondering what does it mean when your bloodwork comes back and reads - Transglutaminase IgA >250 | and Gliadin IgA >89? The PCP said I had Celiac and referred me to a GI, but with limited appointments I can't get in to see GI for over a week. Do those numbers pretty much guarantee Celiac? Are they very high? I have other symptoms...
