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Ivana

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Ivana last won the day on October 31 2021

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  1. icon I.M.Celiac reacted to a post in a topic: Traveling after a celiac diagnosis
  2. icon Ivana reacted to a post in a topic: Advice on arthritis, certified gluten-free, and wine
  3. icon LovintheGFlife reacted to a post in a topic: Is Toblerone Gluten-Free?
  4. icon Scott Adams reacted to a post in a topic: Is Toblerone Gluten-Free?
  5. Ivana started following How to reduce bloating in colon at night , Is Toblerone Gluten-Free? , Newly diagnosed - Very anxious and 6 others
  6. Ivana
    I eat toblerone regularly. It seems to be on the OK list for celiacs in my country and I have the impression that we all eat it here. I don't know if anyone contacted the company or if they just assume it's ok because of the list of ingredients that doesn't list gluten, not even as "possible traces". I also eat other such snacks. Of course, it's best not...
  7. icon Ivana reacted to a post in a topic: Newly diagnosed - Very anxious
  8. Ivana
    Hello, I think these things differ from person to person, and the number itself is not crucial. Also, maybe different labs have different sensitivity levels, so it's also possible that smaller numbers were actually much bigger and vice versa? My reading of 979 was where regular values are below 20, 20-30 mild positive, above 30 positive. After 10 and a half...
  9. icon sadfaceemoji reacted to a post in a topic: Newly diagnosed - Very anxious
  10. Ivana
    Hello, I felt exactly the same when I was diagnosed 2 years ago. Same anxiety, same thoughts, same behaviours, except that my antibodies were almost a 1000, and Marsh 3C, and I was quite older than you. But now, celiac is for the most part not even on my mind. My antibodies normalised within one year and stayed that way. I eat in dedicated gluten free...
  11. icon Ivana reacted to a post in a topic: New potential celiac disease treatment begins Phase 1 clinical trials
  12. Ivana
    Scientists in the group, is this in any way promising: https://www.beyondceliac.org/research-news/guselkumab-phase1/?fbclid=IwAR2DtR4oU1bmHq09yddrydWdO7ofpB7FJT0PiY3fikrv08870NlGtKyphlY
  13. Ivana
    Hello, I would like to ask you what you mean by non responsive? Wouldn't it be too soon to tell whether you will get it under control again or not on gluten free diet after whatever caused the autoimmune reaction again? If I understood correctly, the symptoms improved in August? I had two Pfizer shots and I didn't have any reactions and am getting...
  14. icon Scott Adams reacted to a post in a topic: Do I quit for good?
  15. Ivana
    I think that for your friend the issue of possible gluten traces in cocaine (if she is a celiac), is minor compared to the issue of her regular indulgence in cocaine. If we speak of warnings 🙂
  16. icon Scott Adams reacted to a post in a topic: Anyone Try Daura gluten-free Beer?
  17. Ivana
    It is marked gluten free where I buy it. Their website also says so. It is another thing that even foods that are marked gluten free are not always totally gluten free, ie. in the EU, if I am not mistaken, 20 ppm is allowed. Daura website says their gluten free beer contains less than 3 ppm. I drink it occasionally but to each his own.
  18. Ivana
    Hello, I noticed that your daughter has been diagnosed a couple of years ago, but her antibodies are still rather high (70s). It is a different process for everyone, of course, and it can take time, but it is my understanding that they fall to negative or close to negative within a year or two. Is it possible that she is still having gluten regularly...
  19. icon Scott Adams reacted to a post in a topic: anti tTG update
  20. icon Ivana reacted to a post in a topic: anti tTG update
  21. icon Ivana reacted to a post in a topic: anti tTG update
  22. Ivana
    Thank you! I visited Finland. I realise now that "Scandinavian" might have been a misnomer 🙂.
  23. Ivana
    Hello everyone, here is another update almost 4 months later. So I retested ttg iga and now it was 3,4 (different lab from before, here negative is below 7; 7-10 is weak positive, above 10 positive). Needless to say, I am very relieved. So it took me about 14 months to go into the negative range from originally very high numbers. Just before doing this last...
  24. icon GodsGal reacted to a post in a topic: Blood test results, I think positive?
  25. icon cristiana reacted to a post in a topic: Blood test results, I think positive?
  26. Ivana
    Hello, my ttg iga were around 980, with positive above 20, and marsh 3C damage. They fell to 38 after 11 months, my iron and ferritin rose to normal levels (from extremely low). I am 40, probably had silent celiac for 20 years (anemia the only problem, was never on supplements though and didn't feel unwell). In a few days (3 months after the last test when...
  27. icon cristiana reacted to a post in a topic: How to reduce bloating in colon at night
  28. Ivana
    Hello sunyuzhe, I don't have answers to your questions but I would like to ask you a few questions about being a celiac in China (as it is the first time I see someone from China here), if that is ok. I gather from your post that you were not officially diagnosed? Do doctors not order antibody and other celiac related blood tests in general or was celiac...
  29. icon Ivana reacted to a post in a topic: I am a coeliac and I can't stop eating gluten
  30. icon Ivana reacted to a post in a topic: Help for extreme fatigue and stomach pain.
  31. Ivana
    I guess I am just really hoping some things not to be the case, which is not very scientific either, and am perhaps also more afraid of some of these conditions (even if they occur) than I should be. Thank you also for your input.
  32. Ivana
    Again, this can indicate an increased incidence. (Although, there are 98000 members here; how many of them said that they have an additional AI, exactly? And for how many it is only others here that suggested something like that without an official diagnosis by a doctor? Also, some conditions like Hashimoto are rather frequent in general populaton too. Long...
  33. Ivana
    Yes, I understand that, but there is still the question whether most celiacs are on this forum, or whether there are still many around who don't post and don't have these conditions, and then also many who don't even know they have celiacs and also don't have these conditions. Maybe it is a professional deformation, but I am a bit sensitive to how data is...
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