NeverLikedRollercoasters

I guess the complex I was taking wasn't quite enough. I was taking them twice most days and I would still think it would get me out of the hole if they were even close to working. Had a visit with my GP and I've switched to liquid B2 and sublingual B12 and also got on weekly B12 injections. My urine is now a yellow color after taking the liquid B2 so I guess...

Also, I want to add that in those pictures of hematocrit and hemoglobin, those red spikes are from when I was experiencing a reaction of which I assume was due to gluten.

Hi Trents, thanks for the reply. I have been gluten-free for about a year and a half now. But in the beginning, it took probably a good 6 months to navigate around and I kept contaminating myself. For the past year, I have had 1 light glutening and 2 really bad ones, so even though I'm gluten free, I guess I'm still learning, or I'm just really really sensitive...

I created a lengthy post last September and received a lot of good information from some of you. For a quick recap, I've had a horrible time with various doctors and have not received a concrete diagnosis in anything as of yet, although everything seemed to point to Celiac Disease, and in my opinion it still does. I also received a diagnosis of Hemochromatosis...

Hi Cristiana. Although I don't have a concrete celiac disease diagnosis due to many reasons, I have nothing else to explain all my symptoms when I eat gluten as just about everything else has been ruled out. I just wanted to respond to this because I haven't seen anyone else really mention it. I've had bad teeth all my life and have had a lot of dental...

Just want to jump in and make sure your test was proper. You need to be eating gluten for at least 6-8 weeks prior to the blood test and 2 weeks for endoscopy biopsies. From your post it sort of sounds like you ate gluten for 1 day and took the test in the same day which would not be proper at all.

Yes, but I can't explain it. There's plenty of articles about it, but there's no determined reason for it. I don't know enough but for some reason it's only Hep B vaccine, not the A. Just a few articles I've found but there's tons: https://celiac.org/about-celiac-disease/related-conditions/hepatitis-b/ https://www.ncbi.nlm.nih.gov/pmc...

@Posterboy @cyclinglady @DJFL77I and others following along here.. Just thought I'd swing back in and give an update. I finally got my referral to go through for Mayo after being denied on my previous insurance. So, I went last week and spent an entire day going through testing and imaging. Originally, I was sent there for hemochromatosis with gastric...

Entirely incorrect sir. Maybe 6 drinks in a week and no more than 3 in one day. Edit: Never liked getting pee drunk to begin with. Maybe been 'drunk' twice in my life. Used to just like sippin' a beer (mostly Guiness). I could make 1 last 1/2 an evening. Only had 1 drink in over 3 months now so I'm sure I'm not an alchy

Apparently it can cause quite a few issues. One thing I'm confused about is my doctor said it typically takes years to accumulate and cause damage to organs. I asked why my iron levels were fine in February, and my ct scan a year ago didn't show any issues in my liver and he didn't really have an answer for me. But my GI symptoms started long before this...

This might have to wait until Mayo can get me in. Think is, I don't really eat anything fatty except maybe a steak once in a while. Furthermore, that stabbing pain near my gallbladder only hurts when I have a flare. And seems to be positively affected by PPIs which leads me to believe it's a duodenal ulcer. Can't really be sure. I recall the first time I...

I know everyone is on pins and needles waiting for an update, so here it is. Confirmed diagnosis of hemochromatosis and had my first phlebotomy last friday. I have moderate damage to my liver and notes of iron in my vertebrae. Doctor doesn't want to push it so we're doing them in 3 month intervals while checking my iron levels each time. He wants...

I'll be seeing my primary this week and will ask for a full panel. He's on my side so he probably wont give me a hassle. Thank you @Bebygirl. I have been tested for cancers of the marrow / bone, and any other genetic mutations my hematologist recommended. All came back clean. Also, only one of my tests over the past year showed elevated white blood...

Thank you again Posterboy. Are you a bot, by chance (hehe just kidding). But you seem pretty knowledgeable. I will look into that. I'm assuming part of my fatigue issue is the iron overload as well, but who knows. No problem for me.. call me a sissy if you will but I've never been able to swallow pills. Had a bad experience as a child and unless...