Pat Jackson

Almost 2 years ago, my GI dr ordered an endoscopy because I told her how miserable I was and that I knew something was wrong. The biopsy showed celiac disease, which surprised me, but shouldn't have because I knew for years that wheat was a problem. I had thought it was just an allergy. Anyway, she followed up with the blood work, to "confirm" the result...

I was diagnosed with osteoporosis before menopause, which probably should have been a red flag for celiac, but this was 20 years ago. When I asked the dr why I had it, he just shrugged his shoulders and said we could treat it. In the following years, I had pretty much every treatment available. Fosamax was really hard on my stomach, and something else...

Thanks, Scott. I appreciate the response and I will take a look at the article.

I was diagnosed with celiac in Feb of 2020, by biopsy. 6 months or so later, I had another biopsy, and it showed no celiac damage any more. I was very excited!! I am extremely careful, don't eat out, eat mainly whole foods, and cook everything myself. However, I've had a lot of inflammation and gastritis that comes and goes, so the GI dr wanted to do...

I had my second Moderna 2 weeks ago. The first one gave me only a sore arm for a day or two. The second was quite a bit worse, with headache, body aches, slight fever, extreme fatigue, a rash on my arm. The first day was OK, and the second day was the worst. The third and fourth days were very mild. But all that is nothing compared to what covid might...

Ted33, I am one of those with negative blood tests but positive biopsy. I knew for years that wheat was a problem for me, but the symptoms got worse and worse and even worse, so when I finally saw the GI dr, they did all the tests at once. Going gluten free has made such a big difference in my quality of life! The two major issues I had were with severe...

I was diagnosed (by biopsy) early in the pandemic, after suffering for many, many years. Going gluten free has not been easy, but has been absolutely worth it. I had already eased off most gluten, because I had known for years that it was a problem. I thought it was just an allergy, as I had many of those. I live in a household of 5 adults, so we often...

I used to think it was normal to get 2-3 sinus infections a year, until I finally saw an allergist when I was in my 30's. She got me taking antihistamine daily, and had me use a nasal rinse regularly. Since then, the infections have been once a year in the fall when we close up the house, and my asthma is much better, but it took constant work on my part...

Its great that you are so worried about getting it right. He has a much better chance of success with you on his side! I was diagnosed in early March, and immediately went totally gluten free. At least, that was what I thought I was doing. It took a lot of time to figure it out, and I have to say that at 9 months in, I'm still learning. For me...

Thank you, Knitty Kitty!! I am going to have a lot of reading to do this weekend! And I definitely will. It sounds like your experiences are pretty similar to mine, so I'm very interested in the thiamine. I have also had some swallowing problems for years (its hard to swallow liquids, but not solids), and had a lot of testing and they found no reason...

Thank you Claire Grace for the information. I will definitely look at the website. I did have a spinal injury many years ago. This is all so complicated.

Thank you, cyclinglady, for the comments. It sounds like we have a lot in common (except for the Hashimoto's). It certainly helps to know there are other people in the world who are experiencing similar things. When I get sick, it feels so bad that I start to think maybe there's something else going wrong. But then, after a few days I start feeling better...

I've had digestive problems most of my adult life (71 now), and have known for years that wheat was a problem, but I just lived with it because the various doctors over the years didn't test for celiac. My gallbladder was removed 9 years ago (it didn't stop the abdominal pain, which wasn't very bad at that point). I was diagnosed with osteoporosis before...