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Onegiantcrunchie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Onegiantcrunchie

  1. Onegiantcrunchie
    I'll def keep updating. Thanks again!
  2. Onegiantcrunchie
    Thank you so much again for the lengthy reply! You're always extremely knowledgeable. I'm a bit disheartened because I've just checked the website I usually get private blood tests done at and it looks like they've stopped doing the coeliac panels which means I'll have to go with the NHS only. I did ring my GP last week saying I've not been contacted...
  3. Onegiantcrunchie
    Hi cristiana, thanks so much for the detailed reply! My symptoms aren't actually gastric. What I get is this strange pale/blue tinge to my under eyes, lips and nails, that make it look like I'm either extremely cold or recently been short of oxygen. Yes, I am British! I haven't had my annual follow up in 3 years now. I have to confess that because...
  4. Onegiantcrunchie
    Hi cristiana. I was wondering if you'd share how gluten was sneaking in that you weren't aware of please? Trying to get to the bottom of my own recurring symptoms too right now!
  5. Onegiantcrunchie
    Hi everyone. All these years gone by and I don't actually know the answer to this one but... Since many seemingly reputable sources say that soap and water (basically a proper wash) removes gluten, why is it that we're often told to have our own separate utensils? And in a similar vein, if we need separate utensils, why is it that we can we eat...
  6. Onegiantcrunchie
    Hahaha I've never in my life just had a SALAD. I might as well just have ketchup! People really don't get it yep.
  7. Onegiantcrunchie
    Thank you for your reply! That sounds like such a pain in the neck, the nearest option being 100 miles away! Re: chinese food, I don't understand why more places don't just use rice flour instead of the wheat flour, that way they'd get the coeliac customers too. And yeah, why should you have to travel all that way just to get what everyone else can get with...
  8. Onegiantcrunchie
    That's brilliant news, congratulations
  9. Onegiantcrunchie
    UK here. I "basically" got diagnosed without one about 4 years ago, off the back of 2 positive blood tests. I don't think they made it fully official but they do treat me as a coeliac. My positives were mild though and yours is high, so they might have more certainty with you. I hope they diagnose you without needing you to do a biopsy!
  10. Onegiantcrunchie
    😂 Just a bit of a vent. I wanted to order food today (as I was away visiting family and they had nothing I could eat) so I went onto Deliveroo, and JustEat. Turned on the 'gluten free' filter. I swear, the only gluten free options available for delivery are the desserts or the junk foods. There is never a gluten free-labelled soup, or meat and po...
  11. Onegiantcrunchie
    Isn't it a measure of the body's immune response to the gluten, not the amount of gluten solely? So, if your body is a certain amount reactive to gluten, the more you eat of it, the higher the antibody level would be. But if you're not that reactive, then that same amount of gluten would give you a lower level of antibodies. And if you're not coeliac...
  12. Onegiantcrunchie
    Sorry to hear that you feel this way. It can be very stressful worrying about hidden gluten in products. When you feel like this probably the best thing to do is to just stick to simple homemade food, fish and veggies, chicken, yogurt, baked potatoes etc. That way you know there's NOTHING hidden in it. Also make some homemade soups and casseroles that...
  13. Onegiantcrunchie
    Thank you guys for your replies and support
  14. Onegiantcrunchie
    Hi Universal. Before I got my first positive blood test I went back and forth to gluten for months at a time. Even when I didn't think I was having symptoms, other people would tell me that I did. They used to tell me that under my eyes would get all blue/purple tinged (like 'dark circles') whenever I'd eaten bread. So just because you haven't noticed...
  15. Onegiantcrunchie
    Thank you everyone for your kind words and support and encouragement. Just to say I initially thought I'd got away with it as I felt no symptoms - but then 5 days later suddenly got really sick and that lasted about 5 days too. Not sure if a coincidence or a really delayed reaction but either way I haven't been tempted to shortcut my diet since.
  16. Onegiantcrunchie
    I hope it's okay me posting this, but I don't really have anyone to talk to about it. I'm not advocating that anyone here go eat gluten. But here's what happened... It's been over 3 years since I got my positive blood test and quit all gluten. I've been having a very emotional few weeks dealing with unrelated medical stuff plus work, and earlier...
  17. Onegiantcrunchie
    Hi trents, I always thought butter doesn't count for some reason ? I've heard some lactose intolerant people say they can have butter but not milk
  18. Onegiantcrunchie
    Hi Amanda. Hope you're okay today. If you want to gain weight could you add a some extra butter or olive oil into your meals? 10g of butter is close to 80 kcals, and one tablespoon olive oil is around 120 kcals. Those add up fast. Also maybe try and have a snack of a drink with 1-2 cookies? I don't want to recommend unhealthy things but they definitely...
  19. Onegiantcrunchie
    Wow, in that case that's great news. It would be better news if you had no positive TTG of course but considering... Although I always read that intestinal damage shows up before positive antibodies so that's very interesting! Do you find yourself sort of naturally eating low gluten anyway? For years before my symptoms even appeared I had a sort...
  20. Onegiantcrunchie
    ahh sorry Ruu, I think you even mentioned that you work in medicine before, didn't mean to patronise you! I don't know if there's an early test other than the usual ones, what about the test looking for the coeliac gene? Although it wouldn't confirm it's active would it but it might give you an earlier heads up than the ones that require you to be eating...
  21. Onegiantcrunchie
    Hi Ruu. The endoscopy/biopsy specifically looks for damage - the gluten causes the damage. That's why they have you do the gluten challenge before the biopsy, because if you cut gluten out before, there's a chance that any damage there was could heal before the biopsy, leaving nothing to find. So, a coeliac case might look like a non-coeliac. I'm guessing...
  22. Onegiantcrunchie
    Good luck, we're here to support you!
  23. Onegiantcrunchie
    That's very interesting. I wonder if they were both autoimmune before they met, or they both became autoimmune afterwards. If it's the latter, maybe that could be explained by shared environmental triggers.
  24. Onegiantcrunchie
    I think it's only awkward sometimes because lots of people will not feel comfortable with them eating and us not eating and will instead say let's go somewhere where you CAN eat, which is great, but if that became a regular thing and eventually led to them missing out on THEIR favourite places to eat, it would be better to strike that balance. What I've done...
  25. Onegiantcrunchie
    Genuine question, if it's non coeliac would there be antibodies?? Or is TTG IGG not the antibodies? *confused* Ruu, it does sound like coeliac to me if you've had a positive antibodies result. Not sure what else it could be? The endoscopy is just the 'gold standard', the way it's established to be done, and like final confirmation as far as I know. ...
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