Bob Healey
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Informed consent is a thing....
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I didn't even know it was immunosupressant until a few days after I started taking it and mentioned it to my mother, a retired RN. I was just told it might help, and I'd be on it 6-9 months and once I started it I couldn't stop it without completing the entire course of treatment. I am not comfortable or happy being on an immonsupressant while working at...
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Pretty much. Short of not eating, not sure how I can improve things. Except for the cheese, which I've cut way back, due to both challenge of finding compliant cheese and not eating as many dishes that use cheese, I am pretty much milk free. Can't have ice cream anymore due to dental, and I was only using milk to make gluten free muffins. I used to go...
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This got cut off on my last reply and I missed the edit window: I had major dental work and was forced on a soft food (nothing that required chewing, nothing that kept its shape after poking it) diet during the 4 weeks it took to complete. I've been required to eliminate sugar where possible as a result of the dental work. I need to prove beyond all...
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Today's been 5 so far, typically 10 in, 30-40 out, repeat over 4-5 hours. Tomorrow I'll probably have 1 or none, Tues I'll have 0, 1, or 4-5. This month: 12/1: 1, 12/3: 2, 12/5: 7, 12/6: 1, 12/7: 2, 12/8: 1, 12/10: 1, 12/11: 1, 12/12: 3, 12/13: 4
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Typically, its 4-5 ~40 minutes apart, then 1-2 days of quiet, then repeat. Since I wrote that response, the daily average for Dec 2020 is now 1.8. The medication hasn't had a noticeable effect. I can't tell if I'm having a good month, or if its actually helped. Given this is my 3rd or 4th bad day so far this month, I'm thinking no. And if I had known...
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Colonoscopy was done 3/2014 and 3/2020. Endoscopy/bioposy was done 7/15/2020. Frequent (every 30-40 minutes over a 4-5 hour span) was the complaint. I've been living with it since 2013/2014. I didn't know the celiac panel was done by my PCP in 2019 until I was getting covid results from Labcorp for work. The 3/2020 and 11/2020 were ordered by the GI doctor...
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I was diagnosed officially 7/28. I was told I could finish my open bread/etc before going completely gluten free. I closed on a house 8/3 and made the decision that no gluten would ever enter it. By 9/1 I was fully gluten free, having had to get regular take out during the move due to lack of suitable food supplies/unpacked kitchen equipment. During...
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I am not allowed to eat out unless it is a certified gluten free kitchen and bar - doctor's orders. I was treated for SIBO in 2019, and it solved my problems for about 3 months. I also went lactose free under doctor supervision in 2019 for a few months, and nothing changed. With the hours I work, seeing some heat and eat sold as gluten free was good for...
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It sounds like the only way I can be in compliance is to buy a literal farm, and not eat anything I do not grow myself, since I can't trust gluten-free labels.
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The biggest frustration is my only symptom is frequent bowel movements. I had been tested several times over the last few years, and until 2020, there were no indications I was celiac. In fact, Xifaxen cleared me up for 2 months. But because of this diagnosis, I can't ever travel again, I can never eat food I have not personally prepared myself, in my...
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Here's what's currently in my pantry/fridge. Where am I going wrong? Udi's Gluten Free Hot Dog rolls Udi's Gluten Free Hamburger rolls Hummel Bros Hotdogs (labeled gluten-free) Barilla Gluten Free Pasta Ronzoni Gluten Free Pasta Ruffles Potato Chips (labeled gluten-free) McCormick Garlic Powder (will be replaced...
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I was diagnosed via bloodwork (TTG-G and total igA levels) and endoscopy (single sample) in July as celiac, after complaining for 6+ years about excessive bowel episodes (4-5 in a 3-4 hour span). Bloodwork prior to 2020 was negative for celiac. My most recent blood work shows me as non-compliant (elevated total igA, ttg-g levels), but I've replaced 99%...