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yuluyouyue

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by yuluyouyue

  1. yuluyouyue
    You are right. Everyone is different. I was a silent celiac, no symptoms before diagnosis. On stric gluten free diet for almost 4 years. Ate a whole wheat cookie by mistake a few months ago. Was expecting a big reaction as everyone said it was what would happen once my body is totally clear of gluten. But... nothing whatsoever. Felt totally fine. Not that...
  2. yuluyouyue
    I can guarantee that this shall pass. I felt exactly the same for the first 3 to 6 months or so. Total gloom and doom and fear of all sorts of diseases. Now it has been 3 years and I hardly think about those things. It just became normal that I have celiac and I believe I am now as healthy as the next peŕson in my age group, which is mid 40ies. Actually,...
  3. yuluyouyue
    I don't think celiac necessarily makes you more succeptible to infections. I must have haD celiac my whole life but I never even got so much as a cold, let alone flu. I take it that my immune system is just strong, for better or worse.
  4. yuluyouyue
    I have been having twitches and tension forever. I chalk it up to anxiety. Could be also something celiac related. I also have white spots on my brain. But they seem pretty common. I am fine otherwise so I don't worry.
  5. yuluyouyue
    You will be fine as long as your food does not touch that table. I guess it is in a container or on a plate. Also, unless it's a bunch of people hovering over you and your food with their donuts, you should also bE fine 😊. Relax and enjoy your desrved lunch breaks.
  6. yuluyouyue
    I travel without problems. When I don't travel, I never eat in a restaurant that is not dedicated gluten free. When I travel, I sometimes do. I always checked my antibodies after traveling in the past and they were fine. I believe if in my regular life I limit gluten exposure to a minimum, then eating out a few times a year, the possible cc won't be...
  7. yuluyouyue
    Sabaaraya, did you have to do a colonoscopy to check the cause of occult bleeding or did they explain it with gastritis?
  8. yuluyouyue
    I am sorry you feel so miserable. But I guarantee you that you won't feel like this forever. You said you love to cook (when not injured), so this could be a chance to try and learn how to make tasty food that you can eat. I also crave pizza, but I found schär pizza base to be really good. I put whichever topping I have and my pizza is ready in 10 minutes....
  9. yuluyouyue
    No I haven't. I will soon as it has been 2 years, but I am not in a hurry as I don't think there is anything more I could do even if it hasnt healed completely yet. I mean I am already very careful with food and try to live healthy. I check my antibodies every 6 months. Always fine. I don't have any symptoms either. So I don't want to make myself worry...
  10. yuluyouyue
    It takes sometimes more than a year to heal so no need to panic if it turns out you are not there yet. Also, what exactly do you mean by gliadin IGA? I thoguht that is supposed to be positive in order for antibody test to be valid and it is not a sign of celiac on its own. If so and if your Mom feels well there is really no need to put her through more testing...
  11. yuluyouyue
    I must say I don't really get the need for a shared kitchen and I would not be comfortable using one. Even if I would get used to it, I think it's unnecessary additional worry, caution and effort. But of course, it all depends on what food a family is used to eating. After my diagnosis, the only thing that changed for everyone is bread (now made gluten free...
  12. yuluyouyue
    Thank you for replying. My antibiodies also normalized within a year and have stayed so for the following two. I am careful but not as you. I eat in normal restaurants when I travel, so a few times a year. I also eat suff that is gluten free, even if only declaration wise, such as snickers or bounty. I know it's not 100% safe but I feel fine and it doesnt...
  13. yuluyouyue
    I see. I did some research and it seems dgp is a newer test, and while ttg is rather cheaply available in most private labs in my country, dgp is not. I will try to ask my doctor next time. I hope only negative ttg still means I am doing well. 😥
  14. yuluyouyue
    Thanks for replying. I never tested dpg. Is ttg not enough?
  15. yuluyouyue
    Hello, I have a question for those who have been diagnosed a while/years ago. How often do you check your blood for antibiodies ttg iga to make sure celiac is not active? And if you check them often enough, like once a year, do they fluctuate? Are they higher if you have been contaminated recently? I check mine once a year. So far so good but...
  16. yuluyouyue
    Hello. Almost the same description was on my biopsy report. Plus it also said it was Marsh 3 damage which is almost total damage. But don't let this discourage you. Your villi will heal on gluten free diet and then your starting point won't matter, ie. you will be no different than someone who had mild damage at diagnosis.
  17. yuluyouyue
    Hello, shouldn't your daughters get tested too?
  18. yuluyouyue
    It is a relief to hear that. I also eat quite a lot of it. It seems there is no winning with food nowadays, what with pollution and allergies.
  19. yuluyouyue
    I just wonder, if rice is such danger, how does half of Asia eat it as much as 3 times a day, every day?
  20. yuluyouyue
    I agree and will add that there are plenty non celiacs suffering from mh issues as well as celiacs whose disease is completely under control for years and yet they still suffer from mh issues. Gluten free and supplements are not magic depression cures. And I think people who think depression is just a temporary side effect of untreated celiac and it should...
  21. yuluyouyue
    I quote Sahamies: Yes your symptoms will get worse. Gluten intolerance always gets worse, not better. A lot of people don’t like the gluten free baking. That you can’t eat buckwheat, which isn’t even a grain, is a sign your gluten intolerance is bad. If you bake a lot, you probably put on weight too. Sorry to crush your dreams. Please don't...
  22. yuluyouyue
    I don't know why symptoms would get worse on a gluten free diet provided baking of gluten free food is done in a clean environment and that later LiJ starts a gluten free bakery . LiJ, do you actually feel unwell after eating buckwheat eggs and dairy or is that just a result of an alergy test? Those are not always accurate. It is also possible, if...
  23. yuluyouyue
    If you really like baking so much and if there is a way for you to change recipes by using gluten free ingredients during your classes, you could try finishing it (your classmates might also benefit from learning how different ingredients behave and change the end product). And if later you can open a gluten free bakery, many people like me will be grateful...
  24. yuluyouyue
    I think bold lettering is the law in the EU and Sweden is in the EU. Also, Finland is doing pretty good on the celiac front too.
  25. yuluyouyue
    I am sorry to hear about your uncle. If it helps, after my diagnosis, I started having extreme health anxiety and overall felt way worse than before the diagnosis (even though my diet remained more or less the same - I mainly eat home cooked food). My blood work improved, my antibodies stabilised which means I should have felt in better shape than before...
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