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raspberryfirecracker

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by raspberryfirecracker

  1. raspberryfirecracker
    Fantastic!! Both for you and anyone googling us, haha 🎉
  2. raspberryfirecracker
    Wait, @Nikki2777 how was the seltzer??
  3. raspberryfirecracker
    I reversed my interstitial cystitis... Haven't had SIBO in over ten years. Can eat as much starch as I want. That's what your life can be. At least 1 in 100 people have celiac disease, in some countries it's higher. We'd definitely all prefer not to be permanently restricted from foods we were raised on, but we're all incredibly grateful to know the...
  4. raspberryfirecracker
    https://pubmed.ncbi.nlm.nih.gov/22760575/ Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease Victor F Zevallos et al. Am J Clin Nutr.2012 Aug.
  5. raspberryfirecracker
    Ahhhhh! So that's it! I'm going to mention this in all my anti-oat replies 😂 Thank you, somehow knowing they've identified "the thing" in oats that makes some of us with celiac disease ill just helps me feel less bonkers. Scott you should do a post on the research that showed some species of quinoa cause reactivity in vitro (cells from celiac patients we...
  6. raspberryfirecracker
    Whatever you have, I hope your body can recover from the damage it's already caused, and that you won't sustain more.
  7. raspberryfirecracker
    I use this one, I think it's corn free but someone more skilled in corn reactivity will have to confirm: https://jason-personalcare.com/products/powersmile®-whitening-paste-vanilla-peppermint If it's indeed corn free you might can check their other flavors. If you have severe corn allergy there are many websites and lists made by people who have ...
  8. raspberryfirecracker
    Thank you both for trying to assist, I think my issue might be the type I bought. The link shared is so on point! The little test cheese I have is very fresh, better for my MCAS because the less aging = the less histamine issue, but according to the 🐐🧀 experts it's SUPPOSED to taste "like that" when it's fresh and basically only a cheese fiend would...
  9. raspberryfirecracker
    Your post reads like, "person accidentally glutening themselves with oatmeal wonders why they don't feel better" 🤣 Many of us can't eat oats at all. I can't, gluten-free certified or not. Also that level of famotidine is intense; are you on a multivitamin and monitoring your b12/folate levels especially? If FODMAP were your answer you wouldn't ...
  10. raspberryfirecracker
    Jessie to me your post reads as a medical emergency. When you read these replies, immediately inform your doctor of what you just told us--call the office, schedule the next appointment asap, leave a message with the nurse, write them a message if they have an online portal, something. They need to know. They should've already at least talked to you about...
  11. raspberryfirecracker
    I once had a naturopath tell me which foods to eat based on whether she could push my arm down while I was holding them.... 🤨 Just picture, me holding an apple in one hand, my other arm sticking out in the air like a kettle spout. Repeat with pear, yogurt, bread... I may have secretly been on a hidden camera prank show? 🤭 What I'm saying is at least yours...
  12. raspberryfirecracker
    That's a really good point Scott. When you're on proton pump inhibitors and your stomach acid gets too low, it causes a rebound effect and you end up with even more stomach acid than you would've had before treatment. Our body is pretty smart like that. GERD for me correlated with something I was intolerant to, so it resolved after going gluten...
  13. raspberryfirecracker
    Website / Product Information PDF *** Note, the methylfolate combo is almost identical to prescription DEPLIN® 7.5. Deplin is a treatment for folate deficiency only and does not provide other vitamins. Metafolin®, methylcobalamin, and NAC are all available over-the-counter. The Cerefolin website also says, "If your insurance company does not c...
  14. raspberryfirecracker
    Is it the type of sore throat something like chloraseptic or a numbing cough drop would help, a sore throat like the acid burn you get at the bottom of your throat from GERD, or not an internal sore throat but an inflamed sore-lymphatic-ache around your throat that doesn't actually involve the esophagus?
  15. raspberryfirecracker
    Things like this make me wonder if no one was ever supposed to eat wheat in the first place 🤪
  16. raspberryfirecracker
    Well that's horrifying... I do think there's no telling how the crazy chemicals in medicine would combine with the assay in the strips, so I'm glad they tell you upfront not to take it to heart. You can find out the exact inactive ingredients in your medication by looking up its NDC number on the bottle (I think that's what it's called) and searching...
  17. raspberryfirecracker
    I think legally (in USA) it has to mention if it contains gluten or the top 8 allergens, so I wouldn't be concerned there, but you might still get nauseated if you drink too much; that's my two cents. Insert joke about my username here 🤭
  18. raspberryfirecracker
    Vonnie here's one of my "learned from earlier mistakes." Years ago I used to get a rice noodle dish at this one Chinese restaurant because I thought it was gluten free (I asked, repeatedly) but eventually I realized they add soy sauce to it, they literally add it to all the dishes they cook, even the ones it doesn't seem like it. That's why things are so...
  19. raspberryfirecracker
    Please for the love of goat someone tell me how to make goat cheese edible?! Someone suggested I put it in rice pudding to give it a cheesecake flavor and it tasted exactly like it had just come back up, not that it was on its way down! 😱🤢😓 I never ate much regular dairy to begin with, but my goat cheese experiment is not going too well. I read recipes ...
  20. raspberryfirecracker
    Bump. Don't get scoped after already going gluten free!
  21. raspberryfirecracker
    (And what trent said--sorry I didn't see there was a page two until I'd already replied!)
  22. raspberryfirecracker
    This is not the same as being a diagnostician; knowing a disease exists doesn't make anyone a medical doctor trained to diagnose diseases. This isn't an accurate understanding of celiac disease, Hoody. You are born with the genes, but genetic diseases can either be active from birth, get triggered in adolescence, or get triggered in adulthood. People...
  23. raspberryfirecracker
    I hadn't either until about 6 years ago; some genes are directly correlated with deficiency if you get the worse versions (MTHFR, VDR), others are responsible for a culmination effect, so that you might need extra such-and-such like kitty said, or on the opposite spectrum have to be careful with them, depending. When anything throws deficiencies at us...
  24. raspberryfirecracker
    It depends on how you metabolize them, genetically, much like celiac. People will never know if they have any issues with this unless taking vitamins starts to cause problems. Then you might have to go down the route of genetic testing to see which nutrients you need more of, which forms of them you can/can't take, and vigilance in case you're getting sick...
  25. raspberryfirecracker
    Yenni, Goodness I feel like I'm just going around warning people of histamine, but, well, the last time I got sick with fish, it was because I let it thaw much longer than usual and just about poisoned myself with it! Fish has to be frozen at all times from the moment it comes out of the water until minutes before you cook it, or you can get scromboid...
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