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pokey449

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by pokey449

  1. pokey449
    Yeh I’ve been wondering about that. I’ll avoid the oatmeal for a few days and see if that sheds any light.
  2. pokey449
    I am in this category. I have mild villi blunting but no other diagnostic indications. Ive been gluten free for 6 months, well except for the regular oatmeal that I found out a couple weeks ago might be gluten contaminated. So I switched to gluten free oatmeal and I am still having sxs. Lots of nausea. I was diagnosed and treated for SIBO and I went off my...
  3. pokey449
    Haylee: Have you been tested for SIBO as well. SIBO = small intestinal bacteria overgrowth. You sxs sound very much like what I was experiencing. I did the breath test for SIBO in July and I had it big time. I think I had had it for some time, but just attributed it to being overly gassy with an irritable GI track. However after being treated for SIBO I keep...
  4. pokey449
    I’ve basically been told I “might” have celiac. The only clue is an endoscopy showed mild villi blunting. Serology was negative. I asked my GI doc if a genetic test would confirm a diagnosis. He was not that enthusiastic that it would. I requested the test which he granted but I just found out it costs $212 and Medicare may not cover it. As far as I know ...
  5. pokey449
    What symptoms are you having
  6. pokey449
    Ive been on a low FODMAP diet and dairy free for 6 months. I thought I was gluten free for the same amount of time except for learning that my oatmeal was not likely gluten free. I switched to certified gluten free oatmeal for a couple weeks now. I had SIBO back in August and was treated successfully for that and went off my PPI then as well. Been off it...
  7. pokey449
    My lower GI tract is doing OK. No cramping, bloating and minimal gas. No diarrhea but I keep having stomach nausea, day and night with that irritated feeling like I have to much acid on my stomach. I think its excessive acid secretion from coming off the PPI I was on for so long, but I'm not sure. Then there is the fatigue and malaise. I feel very tired and...
  8. pokey449
    After one goes on a gluten free diet how long does it take to feel well. I don’t mean not having symptoms. I mean how does it take for you to have a renewed sense of well-being?
  9. pokey449
    Wheatwacked. I read the article you referenced. I think I had read it before. It like other articles I’ve read regarding weaning off PPIs continue to baffle me. All of them talk about taking your PPI every other day or so intermingled with taking H2 antagonists and spread out your PPI dose more and more. Such a protocol is difficult for most people. I had m...
  10. pokey449
    Placey. Eggs don’t seem to bother me. I’ve been in a low FODMAP diet for 6 months and I thought gluten free as well except I just recently learned the oatmeal I was eating probably wasn’t gluten free so I switched to certified gluten free oatmeal. Sxs have improved though I still have some nausea but then I have had dyspepsia for years. I got off the PPI I...
  11. pokey449
    So far all that’s been shown is I have mild villi blunting and negative serology but I had been trying to avoid gluten beforehand because I was put on a low FODMAP diet due to having been diagnosed with SIBO. I was told to avoid foods with gluten because many such foods, like bread had sugars in them I was supposed to be avoiding. So I attempted to go gluten f...
  12. pokey449
    No. What is the DNA test for gluten sensitivity/celiac??
  13. pokey449
    I guess either way it’s water under the bridge in my case. There does not seem to be at this time any other test available ( is there) to clearly indicate whether I have celiac or not. I’ve got mildly blunted villi with negative serology and that’s all I know. I might, I might not have celiac. My assumption is all I can do is stay gluten free for a while...
  14. pokey449
    I assume that’s not my issue now. I’ve been off my PPI for 5 months
  15. pokey449
    I’ll consider that approach
  16. pokey449
    Scott. Yeh I recall seeing #s like that on having celiac v gluten sensitivity. And as I understand one can have villi blunting for reasons other than celiac and not be gluten sensitive??? Would being on a PPI for 17 years cause blunting? How about having had SIBO? At this point I’m not sure what to do??? Do I assume I have celiac or gluten sensitivity and g...
  17. pokey449
    My results for both blood tests were well within the normal range for both tests. I’m a former biomedical research technologist so I’m pretty sure I didn’t misread the results and normal ranges.
  18. pokey449
    IGA was 327mg/dL and TTG/IGA was 0.4U/L
  19. pokey449
    OK my 2 blood tests are negative, but my biopsy showed mild villi blunting. I've gotten no clear guidance from my GI doctor one way or another, other than his nurse saying the blood tests were negative for celiac. I'd like to definitively know if I have celiac or not. Are there other tests I could have that for sure will tell me if I do/don't have it???
  20. pokey449
    OK my 2 blood tests are negative, but my biopsy showed mild villi blunting. I've gotten no clear guidance from my GI doctor one way or another, other than his nurse saying the blood tests were negative for celiac. I'd like to definitively know if I have celiac or not. Are there other tests I could have that for sure will tell me if I do/don't have it???
  21. pokey449
    I have right sided upper pain that radiates to the back. I asked my doc if it might be my gallbladder but I have no sensory pain when i palpate the area. I think it might be gas or what they call hepatic flexure syndrome. Either way I’m having a CT of the abdomen to see what we can see to make sure there’s no nasty cause.
  22. pokey449
    Thanks GFnDC. I’m already on a low FODMAP diet and have dropped off those sugars and dairy. gluten-free soy sauce does not seem to bother me. I made the switch to certified gluten-free oatmeal and so far that seems ok. In fact soon after I went to the gluten-free oatmeal I seemed to start feeling better. As far as I know?? the regular run of the mill oatmeal w...
  23. pokey449
    Me too. Thank you.
  24. pokey449
    I’ve had blood tests and biopsy looking for celiac. The blood test was negative which I understand doesn’t mean I don’t have celiac. The biopsy showed mild villi blunting which I understand can be caused by things other than celiac. Earlier this summer I had bloating cramping gas nausea and was diagnosed with SIBO. I had two rounds of antibiotics and the 2...
  25. pokey449
    Thanks Trents. I’m tending towards not doing the food sensitivity tests. Im of the mind they are not that accurate and definitive.
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