newcon2021
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newcon2021's Achievements
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Iron supplement - I am still discussing with Doctor to see if they will recommend; HCT 38.2 low (Ref Int 40-50); HGB 125 (Ref Int 120-140). Vitamins C/D/B1/B6/C/Zn/Cu//Mg/Fe/Ca/Folate were done. D was low. B6 was high. Everything else OK. Endoscopy/Biopsy were done. Normal. Marsh0 and did not indicate Celiac. But we had TTG/EMA high and now after...
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Ferritin 12.99 (REF Interval is 21.8-274.6). So obviously it is very low. Not sure why. Perhaps can hypothesize mal-absorption due to Celiac GI tract. Pyridoxal Phosphate (Vit B6) 113.2 (REF Interval 36-110). So obviously this is very high. Not sure why. Vit B12 424 (REF Interval is 187-883). This is fine. We were taking supplements off and on for...
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Any recommendations for improving Ferritin?
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Casein - good question. We asked around and the local labs/clinics don't seem to have any test for casein. We will keep looking for it. Previous urine test was specifically for Lactose Intolerance and showed body was not processing lactose. So we were trying to avoid lactose and will continue to keep it low. As far as Celiac/Dairy cross interaction preventing...
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Hello All, Update 10-27-2021: After biopsy from March showing negative (Marsh0), we restarted strict gluten-free diet for last 7 months. We did another TTG/EMA/Glia Celiac Panel. His weight gain is marginal 2.5kg in the last 12-15months. So doctor thinks this is normal. Doctor is recommending increasing calorie count to ~2000 cal/day to help further...
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Update 3-26-2021: The second TTG/EMA measured again shows similar numbers as 6 months ago. TTG=19.5; EMA=20.5. All vitamins/thiamine were normal. Another visit to a specialist had following results - Urine test showed positive for lactose intolerance; normal for IgA deficiency check; liver test normal. Biopsy done at 5 sites - no tissue damage was observed...
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Scott Adams reacted to a post in a topic:
Underweight child with possible Celiac - need help with how to diagnose correctly
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Will do. We just got him tested for TTG this week again along with vitamins B1/B6/C/Zn/Cu/WBC/Lipids/glucose. Will know results of TTG in 2 weeks. Meanwhile, we will phone-consult with a pediatric GI specialist. If the results and doctor consultation both are inconclusive or positive, we will request a biopsy after 2-3 weeks and go into 1-2 slices of bread...
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Hi Kitty, Very nice article indeed. Very helpful. In this article, they considered 120 subjects with TTG>18 IU/ml for biopsy studies. And the conclusion is that an underweight child who has borderline high TTG (say ~19) could have showed much higher TTG values if that child were not underweight. Also, it convinces me to not try to avoid biopsy for my son...
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Hi Scott, As I highlighted in my response to Trents, our son was on normal diet (with gluten) during first test in Jul 2020 when he got a TTG of 19 u/ml. We have not done a follow up or biopsy due to covid situation. Now we want to pursue this further and get official/serious about this. We will try to setup a consultation with a specialist soon. I will provide...
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Mr.Trents, Thank you for your committed response to help my son in this journey. I do understand the significant collateral impact from ignored Celiac Disease and want to quickly arrive at an accurate diagnosis. I don't want to trigger any other autoimmune conditions in the future for the kid going into his teens. That said, our doctor here did...
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Trents, This is a very insightful response. Some folks on this forum indicate their TTG readings were very large (200 or 2000 etc). So I was hopeful ~19 is only a borderline value and could be characterized as non-celiac. But it appears once Celiac Disease sets in, it is an On/Off response. No significance of 20 or 200 or larger in terms of impact to duodenal...
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My 11yr old son has been underweight and had not added any weight for last 1 year. He was on 40%ile weight curve for age 5-8. Then for age 9-11, he has dropped to 15%ile. The doctor recommended an anti-Celiac antibody test. The results are as follow GliaDea IgA=5.62, IgG=2.07 (<10 means negative); Anit-huTransG IgA=19.81, IgG=3.86 (Ref Interval is 0.0...