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MADMOM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MADMOM

  1. MADMOM
    any other conditions over the years? i’m so scared of getting something bad however i had ultrasounds and blood work prior to dx and liver gallbladder anf kidneys were all normal as well as blood test - other than slight anemia - i don’t understand why they scare us with these early death blogs etc when we are treating this condition... shouldn’t we have ...
  2. MADMOM
    i take a brand called Garden of Life Dr formulated which has 50 billion cfu of which 40 billion are lacto cultures including lactobacillus rhamnosus - they sell on amazon
  3. MADMOM
    how long befire you did a repeat endoscopy to check for healing? my doc thinks i should go around 8-12 month mark - also how often did u check ur celiac levels and how fast did they come down?
  4. MADMOM
    i have been been reading lots of blogs and articles on google about all these liver / gallbladder/organ issues associated with celiac and just wondering if this is something super common or “can happen if untreated”? so many things i read are scary and i had checked my liver pancreas and gallbladder prior to dx and also had an almost perfect cbc panel a m...
  5. MADMOM
    i have been gluten free since mid jan -diagnosed then as well - initially i lost 6-7 pounds from the anxiety and fear i had over my dx; i didn’t have any GI issues other than pinchy pains under my ribs that started around nov 20. i was dx through biopsy and blood work; i noticed this last month that i put on a good 7-8 pounds and my nails grew nice and s...
  6. MADMOM
    thank god i had no pre C damage in my gut -
  7. MADMOM
    oh yes i use the garden of life one that is gluten free everything free -i take it everyday ... idk it’s just odd that these little twinges of pains still arise but i hope it slowly goes away
  8. MADMOM
    i’m assuming it’s hard to digest and maybe hurt my stomach - other than these few little sharp pains on occasion i’m feeling so good - i just hate to feel like i took 2 steps forward and 5 back!
  9. MADMOM
    i’ve been on them since jan - they don’t normally bother me but i find if i take on an empty stomach they do - i also had broccoli last night steamed - i’m wondering if it’s too hard to digest and causing this uncomfortable feeling ? my doc says i should only take the acid reducer this one last time and then off
  10. MADMOM
    i don’t eat out / everything i eat is gluten free - lactose free - i find that when i’m hungry or haven’t eaten i feel them more - for the most part i’m ok - today for example i didn’t get a chance to eat until lunch time and i felt that stabby pain - i also think the acid reducer i started to take again bothers me on an empty stomach - i hadn’t taken it...
  11. MADMOM
    hi - ive been gluten free roughly 4 months now - i do not eat out and have been very strict with my diet - i’ve improved in my health already so much - my flank pain disappeared my headaches gone my joint pain almost completely gone - i even notice my nails growing healthy which in all my life could never do - i’m thinking i’m absorbing the vitamins i tak...
  12. MADMOM
    what does late histologic conditions mean? i am terrified when i see lymphoma
  13. MADMOM
    how long did it take for your levels to go from 224 to 28? i’m about 4 months in and doing well - hoping i wll have results like that
  14. MADMOM
    ugh that sounds better than thinking i will get another. since i am treating my celiac and gives me more peace / ty Scott for all your knowledge
  15. MADMOM
    why are there so many other risk factors for people with celiac? i see higher risks for other autoimmune diseases and issues with liver pancreas gallbladder etc... if we are treating this disease and staying gluten free why would we be at higher risks for these other bad things to happen? isn’t that the same for any normal person?
  16. MADMOM
    ty Scott - i get so sad feeling like i messed up after i’ve been feeling so good.. just wondering if there are gluten free things like garlic or certain veggies that can give you that cc feeling without actual contamination
  17. MADMOM
    i am gluten free almost 4 months and i hAd that same stringy mucus stuff in my poop too on and off for a few weeks around month 3 - i too thought it was worms - i also see mucus in my poop yellow mainly but sometimes slightly clear to white on and off however i read that probiotics can also cause this as well as certain foods like sweet potatoes which have...
  18. MADMOM
    so i’ve been feeling pinchy pains mildly on both sides of my ribs for a week/ although i have been watching everything i eat ... i don’t eat out and anything i eat is usually from scratch - i use my own cutting board and utensils etc... could you still feel these pains from possible foods that you just don’t react well too but are still gluten free? i’m...
  19. MADMOM
    wow my level was 156 at my first appt and diagnosis - i am waiting to follow up bloodwork at 4 months - hoping it drops - my dr was looking for a 50 point drop!! is this realistic?
  20. MADMOM
    i agree i’m on this journey almost 4 months now and from time to time can feel hungry a lot. gluten free products, in my opinion aren’t as filling as glutened products - i try to fill up on fruits but yes i noticed a difference in my hunger as well
  21. MADMOM
    i have been on gluten free diet since jan and initially lost 6-7 pounds mainly i felt anxious and scared! i have since gained all the weight back and have been feeling so much better until last week i think i got some cross contamination although i don’t know from what since i don’t eat out anymore and everything i do eat is “supposedly” gluten free pe...
  22. MADMOM
    why so many surgeries? are they linked to your celiac? please elaborate if you can
  23. MADMOM
    i asked for an endoscopy not knowing what i had - my GI symptoms were mild - i began feeling pinching under my ribs and near my belly button - that would not go away - my GI saw mild blunting and then did blood work which confirmed celiac disease
  24. MADMOM
    i only started having symptoms of pinchiness under my ribs in october of 2020 - very mild until dec it felt a bit stronger then did endoscopy and blood work and was diagnosed but i’ve always been anemic and i’ve had a traumatic situation happen to my son two years ago which i feel brought this on or woke it up rather - i’m praying o continue to feel bette...
  25. MADMOM
    ty so much i’m hoping i will only continue to feel even better - so i’ve only incorporated dairy in small increments - but generally have lactose free milk and yogurt - i had stopped dairy for two weeks just to test my gut but it really never bothered me anyway - i didn’t see much of a difference so i added little bits of butter or ice cream and see no re...
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