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OpenlyCanadian

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by OpenlyCanadian

  1. OpenlyCanadian
    Yes! Definitely an allergy. The only thing I have changed in the past couple days environmentally and dietary is the addition of wheat bread unfortunately, I am suspecting this may be some sort of adult onset severe food allergies... whether or not that could be causing all of my problems I am not sure but I will definitely be avoiding wheat. Since I have...
  2. OpenlyCanadian
    AN UPDATE TO MY GLUTEN CHALLENGE: I will be discontinuing the challenge as of this morning as I do not feel it is medically safe to continue. I have notified my GI they may not be able to test for celiac in biopsy. I guess I could always order the gene test just to see but whether or not it’s celiacs disease I’m not sure if it matters because I w...
  3. OpenlyCanadian
    I am so glad I decided to post here after lurking for so long, my family and I are all so new to this information especially the information around testing and types of testing. Our doctors have been generally unhelpful regarding the possibility of celiacs and generally in disbelief until my current GI. This is why I’ve started eating gluten before even b...
  4. OpenlyCanadian
    For whatever reason, my doctors seem to be very resistant to any sort of genetic testing because I’d also like to be tested for lupus markers which we do know does run in our family. I am not sure why this is, that they are resistant. So I am just going through the motions.
  5. OpenlyCanadian
    After going off gluten, a lot of my symptoms subsided but didn’t completely resolve. This test is part of a massive work up to figure out what exactly is wrong with me. After the death of my father many other family members started talking about their digestive health issues, my brother seems to be ill with almost identical issues. We are all seeking answers a...
  6. OpenlyCanadian
    Is there anything I can do to combat the awful symptoms that follow or do I just sort of have to weather the storm here?
  7. OpenlyCanadian
    I had the blood test and it was negative. I’d been off gluten for two months prior and the doctor failed to tell me that I was supposed to be eating gluten so the test was inconclusive. I do have full coverage insurance now. Because of the severity of my symptoms and a family history of digestive cancer they HAVE to do an endoscopy and colonoscopy to look f...
  8. OpenlyCanadian
    So after a year of severe illness I finally was able to see a gastroenterologist. I have been living in the states for many years and haven’t had medical insurance (that’s a whole other story) but long story short I do now and finally finally finally someone is going to look at my guts. I’ve lost about 50lbs and am having trouble maintaining my cu...
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