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Lotte18

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Lotte18 last won the day on August 28 2024

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  1. icon Scott Adams reacted to a post in a topic: Can food allergies like milk and soy flatten villi?
  2. icon knitty kitty reacted to a post in a topic: Can food allergies like milk and soy flatten villi?
  3. Lotte18
    I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's. Maybe there's a home test kit for that? I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!
  4. Lotte18
    Hi Knitty Kitty, Thanks for sending all of these articles. Some of them are too complex for me to parse. That said, I had extensive blood tests done when the ataxia started. I was a little low on Vit. D. My doc thought I might be low on Vit. K. But no. K levels were completely normal as were all of my B Vits. levels. I take a D supplement but even...
  5. icon Scott Adams reacted to a post in a topic: Can food allergies like milk and soy flatten villi?
  6. Lotte18
    Hi Scott, I thought I'd be like "most people" and could go back to having dairy once my villi had healed. But after dealing with neurological problems that cropped up long after my gut had healed it turned out that this just wasn't true. I have no idea if celiac influences pancreatic enzyme production or if it's the other way around--for some of us-- but...
  7. Lotte18 started following Can food allergies like milk and soy flatten villi?
  8. Lotte18
    Hi Matt, So sorry you're having to suffer all this. I'm just chiming in on your dairy question because the answers are often far from what we or our doctors assume. For example, I thought I could go back to having dairy once my intestinal villi healed. I was fine for about 8 months. And then I wasn't. Started having weird issues with maintaining my...
  9. icon Scott Adams reacted to a comment: Understanding Dermatitis Herpetiformis: The Skin Manifestation of Celiac Disease
  10. Lotte18
    Of course no one is studying whether there is a connection or not. The lack of solid information is exasperating. Living with this much uncertainty is so stressful. I get blood tests every year and they never show a vitamin deficiency. I've never had a diet high in carbs, etc. etc. But I am aging. And that seems to create a lot of bio chemical drama...
  11. icon Scott Adams reacted to a comment: Understanding Dermatitis Herpetiformis: The Skin Manifestation of Celiac Disease
  12. Lotte18
    I guess my fungal issue was also blood related. Had to do some heavy antibiotics. Awful. I will try the Dapsone gel and cross my fingers. Thanks for posting...
  13. Lotte18 started following Understanding Dermatitis Herpetiformis: The Skin Manifestation of Celiac Disease
  14. Lotte18
    Hi All, Thanks for all the input on dermatitis herpetiformis. Once again these discussions highlight how little understanding there is by our drs. about celiac disease. About 8 years ago I was also diagnosed with a "rare" fungal infection. Hope it's not related to what's on my leg now. I'm putting Clobetasol .05% on it now. Seems like strong stuff....
  15. Lotte18 started following Still Having Issues, Dont know Why and Adverse effects from figs...???
  16. Lotte18
    Hi all, I've suddenly got a skin rash on my leg that might be dermatitis herpetiformis...can figs trigger this? Has anyone else had a similar reaction to eating figs? And if so, what did you do to treat it? Or did it go away on its own after a few days? At the moment I'm just icing it and hoping it dissipates. Many thanks, Charlotte
  17. Lotte18
    So sorry that you're going through this during your college years. The first year or two of this is the hardest. The Drs. don't seem to know that there's a recovery phase that requires more than going gluten free. Coffee and lactose should be avoided. You need to calm the system down. Start your day with ginger tea. Basic Culture grain free bread instead...
  18. icon Scott Adams reacted to a comment: Understanding Celiac Disease Through Organoid Models: The Role of IL-7
  19. Lotte18
    So perhaps, if the RA and/or MS folks come up with an experimental treatment for IL-7 first, us celiacs can apply to try that route as well. (I assume their research grants are much larger and more consistent than ours.)
  20. icon Scott Adams reacted to a comment: Understanding Celiac Disease Through Organoid Models: The Role of IL-7
  21. Lotte18 started following Understanding Celiac Disease Through Organoid Models: The Role of IL-7
  22. Lotte18
    Thanks for posting this. And for translating the technical medical language in Nature's article into something the average reader can digest. Pun intended! Do you know if IL-7 is being looked into by researchers who study MS? RA? How much cross pollination goes on among these researchers? I have an aunt with MS from the same branch of the family that...
  23. icon Scott Adams reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  24. Lotte18
    Thanks for clarifying Scott. The FDA does have an enormous job. Looking forward to seeing what else you uncover from this evolving story. Many thanks for keeping us informed.
  25. Lotte18
    Trents, Thanks for your comment. Like so many, I was completely unaware of the GFCO step down testing process. I assumed they were testing on a consistent, perpetual basis. My understanding is that companies pay a minimum of $10,000 a year for this certification. You and I pay a premium for that certified product. Testing should be consistent. The FDA...
  26. icon Scott Adams reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  27. Lotte18 started following Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  28. Lotte18
    Scott, As always thanks for providing our community with this much needed information. Like so many, I just could not figure out why I would suddenly feel intestinal pain--everything thing I ate was "Certified gluten-free." After reading about Simple Foods I threw out their crackers and cookies--products that I was eating on a regular basis. Their Almond...
  29. Lotte18 started following New Study Highlights Role of Gut Microbiota in Celiac Disease
  30. Lotte18
    Hi Jefferson, This research is so interesting! Thanks for posting it. It makes me wonder if doctors performing endoscopies will be made aware of it so that they can biopsy these specific locations within the intestine. I know that my doctor took six tissue samples but I have no idea what the intestinal points were. Are D1, D2, D3 universal terms...
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