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Lotte18

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lotte18

  1. Lotte18
    Does anyone know of a well informed dental practice in NYC that uses only gluten free treatments? Has anyone used or heard of this new toothpaste called Tartar End? https://tartarend.com/frequently-asked-questions/. The ingredients list carragenan which I don't like, but I don't think there's any gluten in it. I have really bad tartar buildup--- the...
  2. Lotte18
    I was diagnosed with Celiac after having an endoscopy/colonoscopy in January. I highly recommend getting both done in one go. The colonoscopy revealed a very large polyp that would have become cancerous in a few years. The endoscopy ruled out stomach issues and other potential intestinal problems. The prep included drinking a vat of Gatorade. Really...
  3. Lotte18
    Hi Scott, Does one's TTg level correlate to the area size of villi destruction? I wonder if we heal in patches as well. It would make a difference as to when certain foods can be tolerated, yes? As discussed earlier, I went off rice. It seemed to help and yet...my allergist says I should try it again to see what happens. Can you recommend...
  4. Lotte18
    Hi Scott, Ancient Harvest Quinoa for breakfast. So much lighter than buckwheat. And yes, seems it still comes from the high Andes. Thanks for the reassurance on the GFness. On a different note...I'm wondering if gluten wears down intestinal villi in patches...like the high traffic areas of a carpet? Or is the destruction universal? And if as...
  5. Lotte18
    Good to know! Thank you so much Scott.
  6. Lotte18
    Hi again, Just wondering if you know whether Ancient Harvest's Quinoa cereal is safe. Doesn't seem to be certified-- but neither is Pocono buckwheat cereal and I've been eating that with no issues. Thanks for all your help!
  7. Lotte18
    Just checked their site. The bread looks delicious, pricey, but delicious. However, I don't think it's available on the East Coast. The Farmer's Market in Union Square is supposed to have a great gluten-free baker. I just haven't gotten there since the pandemic.
  8. Lotte18
    If you feel like switching from WF's bread, 3 Bakers' bread is Certified gluten-free and does not have sorghum or millet. Just found Simple Mills Almond flour crackers--grain free, Certified gluten-free. Delicious but very salty. Tomorrow I'm going to try some Pocono buckwheat hot cereal. It's not certified but they say they follow very strict gluten...
  9. Lotte18
    Just out of curiosity, what bread do you buy? Crackers? When this whole thing started I had to get an abdominal ultrasound at NYU Langone. They had a special air purification system in the room. Felt really safe there. You will be in good hands. Hope your villi have responded well to all your efforts!
  10. Lotte18
    Hi Melissa, I did find an allergist-- Dr. Joshua Grossman at NY Allergy & Sinus. We've only had a video visit so far. As you may have read, he thinks I may have developed an allergy to rice. As you know, once you quit gluten you end up with bread, cereal and crackers that are usually rice flour based. I was also eating it as is with dinner....
  11. Lotte18
    Hi Kate, Thank you so much for your post. You give me hope! Your progress from 224 to 28 is truly impressive. I can't fathom how you kept yourself fed while you were doing the eliminations. As you say it's really hard to discern the causal relations between what you eat and your symptoms. I don't seem to react right away. There's a lag time so I just...
  12. Lotte18
    I'm encouraged that you consider it a big drop! I'm such a newbie, I thought I was failing. However, if rice, as you say isn't the culprit, I don't know what to think. But maybe I've just been overdoing it? I will get the blood test tomorrow and in a few days report the results. If negative, you have carte blanche for a big I-told-you-so!
  13. Lotte18
    Hi CMCM, It's hard enough being an adult dealing with this stuff. My heart really goes out to parents and kids slogging through this minefield. I will keep your advice in mind as I go through this weird process of elimination, or is it whack-a-mole?!
  14. Lotte18
    Hi Scott, Just got off the phone with my new Allergist. My antibody levels have gone down from 27 to 10.6. So they have dropped but not disappeared. He's going to test for problems with rice. Since cutting out wheat, I'm eating lots of rice and rice based crackers, cereal. In answer to your other question, I don't eat out at all. ;(.
  15. Lotte18
    Hi Scott, I'm avoiding all oats and have limited diary intake to a little butter and hard boiled eggs. My only source of sugar is a spoonful of honey on my cream of rice cereal, (B&G). Waiting for results of a TTG test I took on Friday.
  16. Lotte18
    Hi all, I was diagnosed with Celiac at the end of January. My condition seemed to be improving as I went gluten free. Then I suddenly took a nose dive, (cross contamination perhaps), and I can't get back on track. At this point I feel like I'm starving. I keep reading that allergy food blood testing can help. Does anyone have an allergist in NYC that...
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