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Ellawells

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  1. Ellawells started following Marsh scale , Advice please and Questions to ask
  2. Ellawells
    Good evening everyone, Its been a while since I’ve posted but need some expert advice if possible, I’m almost one year in on gluten-free living and to be honest the first few months felt amazing.... however as time has gone on I’m struggling with going to the toilet and when I do I don’t stop, is this my body still adjusting to the diet, I’m definit...
  3. Ellawells
    Thank you for replying, I’m currently waiting for my bone scan and dietitian appointment, they are in a couple of weeks. Everything was increased on my biopsy results, I would like my marsh scale confirmed and a full nutrient test as well. I’ll ask about those, I suppose they will just go over the damage i have and give me a stern talking to about not...
  4. Ellawells
    Hi, I’m after some advice so obviously this is the best place I got my official diagnosis around a month ago, since then I have (I think) been gluten free completely, I feel amazing right now 😊 and I had no obvious symptoms in the first place but I must of without knowing. Anyway my doctors referred me back to the specialist clinic, I have my a...
  5. icon cristiana reacted to a post in a topic: Marsh scale
  6. Ellawells
    Thank you for the brilliant information, I’m in the uk so very lucky that I’ll now be under the umbrella for this now. I know covid has taken its toll on our nhs but so far so good, I’m just waiting for my appointments to come through which is frustrating as I have zero patience. I’m definitely going to be aware of any symptoms that might clear up, I’m...
  7. Ellawells
    That’s heartening that it can be reversed, I’m guessing I’ll probably have it to be honest. once I see my dietitian I’ll take and do anything I have to, I want to have my yearly endoscopy and hopefully see some improvement. thank you for your input, sounds like we could be celiac twins 😊
  8. Ellawells
    Wow that’s exactly what was said to me, like you I was carrying on with my life. As long as I could keep my 20k steps up a day I figured it was just the way I was. just one more question if that’s ok, did you have a bone scan and was it ok, doctor immediately put me on calcium and vitamin d, 4 a day, not quite sure how I’ll be absorbing that or is it...
  9. Ellawells
    Wow, that’s so interesting, thanks for your reply, without doubt I’ve had it for years, it only got picked up by one very keen doctor this year, I know I wasn’t presenting classic symptoms but one doctor told me to take 12 iron tablets a day, surely he should of thought there’s an absorption problem, I’m a bit salty about it to be honest but very thankful ...
  10. Ellawells
    Hi , just wondering if anyone can shed some light for me about my marsh scale, I had my lab report back and it was positive, I spoke to my doctors but he didn’t know what my level was...... I really want to know so I know where I’m at for healing etc, would it be on my lab report or will my dietitian know. It says “ large areas of total flattening of vi...
  11. Ellawells
    Ahh you definitely are, I’m sort of getting my head around it all now but very disappointed I can’t have my all time favourite crisps anymore 🙁 I’ll move to the other forum now I’m positive, no doubt we will be meeting there x
  12. Ellawells
    Ahh thanks Christiana, that’s a whole load of amazing information for me , I’ve downloaded the checker and had an hour of fun scanning my food cupboard. Doctor called and confirmed it, he’s done everything you said they would and put me on extra calcium and vitamin d, also he’s referred me back to the gastro department to be under their care from now on....
  13. icon Scott Adams reacted to a post in a topic: Not sure what this means now
  14. icon cristiana reacted to a post in a topic: Not sure what this means now
  15. Ellawells
    Hi, just an update on my celiac journey...... I picked up my results today and I am celiac, bit of a shock considering I have no symptoms, I have large areas of complete flattening of villi and lots of other areas that are damaged but not flattened, doctor is calling me to discuss so I’ll keep you posted, thanks everyone for your time and information a...
  16. icon GodsGal reacted to a post in a topic: Not sure what this means now
  17. Ellawells
    Good evening 😊 thank you so much for everyone that has given me so much advice and time to reply to me..... just an update, I had my endoscopy today, it went down my throat not through my nose, not sure why but I was ok with that, I have to say after being so nervous it wasn’t anywhere near as bad as I thought it would be 😊 I feel fine just a bit bloated...
  18. Ellawells
    Thanks again Christina for all your knowledge. I’ll let you know what it’s like, on the face of it, it does look like an easier procedure to have, I’m hoping it’s true 😊 I’m such a baby, I’ve had 2 c sections but this to me is an entirely more scary thing to have .
  19. Ellawells
    Thank you so much for the information, I’m having a really hard time in thinking I am celiac, I’ve just looked at my original bloods taken in March and my endoymysial antibodies were normal but my serum endoymysium antibodies were positive, surely both would be positive if I was celiac. Oh and also I’ve had an enormous amount of paperwork and seems I am ...
  20. icon notme reacted to a post in a topic: Not sure what this means now
  21. icon Scott Adams reacted to a post in a topic: Not sure what this means now
  22. Ellawells
    That’s alot of very useful information, thank you very much for taking the time to pass it on. I suppose I’ll know when I know and in the meantime I’ll try not to overthink it. I guess if I had symptoms I absolutely wouldn’t mind going but I’m worried as I have no symptoms what might of caused me to be positive or highly suggestive of celiac, I’m thinkin...
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